Hannah’s Mitzvah Project

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Hannah has been working on her Mitzvah project for quite a while now. When Hannah was 12 she started writing a children’s book. Many months later, when she finished, she was 13. Hannah would like to sell her book to raise money for Rett Syndrome research on behalf of all the girls around the world who suffer from this disease. With any donation made to RSRT, Hannah is sending a copy of her book. The cost to create each book is $27 so we would be grateful for contributions of that amount or more. All books will be mailed out in April.

Many thanks to anyone who would like to participate.

In Hannah’s own words:

I am an author. It is not what I aspire to become, it is what I am. When I was 12 an idea came to me to write a book about a lion. My OT helped me type the book. After many long hours of typing one letter at a time I finished the book. As you know I have Rett Syndrome which some people say can stop you from working, but I intend a life full of work. As a children’s book author I can inspire other Rett girls to follow their dreams. My Mitzvah project is to sell my children’s book to raise money for a cure for Rett Syndrome.

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (13)

  1. Marci Valner 
    3 days ago
  2. Linda Collins 
    3 days ago
  3. Ellen Rose 
    5 days ago
  4. Monica Coenraads 
    3 weeks ago
  5. Michael Amato 
    1 month ago
  6. Teree Bergman 
    1 month ago
  7. Joan Sivalon 
    1 month ago
  8. Brooke Vanzuiden 
    1 month ago
  9. Michael Bergman 
    1 month ago
  10. Mady Bergman 
    1 month ago
  11. michael francis 
    2 months ago
  12. Marcia Lederman 
    2 months ago
  13. Anonymous 
    2 months ago

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