Hannah’s Mitzvah Project

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Hannah has been working on her Mitzvah project for quite a while now. When Hannah was 12 she started writing a children’s book. Many months later, when she finished, she was 13. Hannah would like to sell her book to raise money for Rett Syndrome research on behalf of all the girls around the world who suffer from this disease. With any donation made to RSRT, Hannah is sending a copy of her book. The cost to create each book is $27 so we would be grateful for contributions of that amount or more. All books will be mailed out in April.

Many thanks to anyone who would like to participate.



In Hannah’s own words:

I am an author. It is not what I aspire to become, it is what I am. When I was 12 an idea came to me to write a book about a lion. My OT helped me type the book. After many long hours of typing one letter at a time I finished the book. As you know I have Rett Syndrome which some people say can stop you from working, but I intend a life full of work. As a children’s book author I can inspire other Rett girls to follow their dreams. My Mitzvah project is to sell my children’s book to raise money for a cure for Rett Syndrome.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (56)

  1. Frances Berman 
    1 month ago
    $100
  2. Todd Chitoff 
    3 months ago
    $100
  3. Carole Schwartz Alex Fragen 
    3 months ago
    $1,008
  4. Marilyn Lawrence 
    3 months ago
    $234
  5. Frances & Brian Bloom/ Mendelsohn 
    3 months ago
    $270
  6. Carol Weiner 
    3 months ago
    $100
  7. Stacy Sharf 
    3 months ago
    $500
  8. MELODY CONRAD 
    3 months ago
    $54
  9. Jeffrey Pomeranz 
    3 months ago
    $54
  10. Monica Gati 
    3 months ago
    $200
  11. Stephanie Bohn 
    3 months ago
    $72
  12. IlySSA Golding 
    3 months ago
    $100
  13. AJ Tesler 
    3 months ago
    $54
  14. Malin Delling 
    3 months ago
    $50
  15. hilary rosen 
    3 months ago
    $54
  16. Barbara and David Ratner 
    3 months ago
    $100
  17. Kelly Kratzer 
    3 months ago
    $54
  18. Ed Adler 
    3 months ago
    $180
  19. Matt Baker 
    3 months ago
    $108
  20. Danielle Ludwin 
    3 months ago
    $200
  21. zephan rose 
    3 months ago
    $50
  22. Danny Miller 
    3 months ago
    $50
  23. Raffi Jalakian 
    3 months ago
    $81
  24. Larry Sulham 
    3 months ago
    $500
  25. Jordan Epstein 
    3 months ago
    $118
  26. Amy Williams 
    3 months ago
    $127
  27. Rose Regenstein 
    4 months ago
    $50
  28. Christine Philippi 
    4 months ago
    $30
  29. Tim Freeman 
    4 months ago
    $200
  30. Janis Gurnick 
    4 months ago
    $200
  31. Heidi Paradise 
    4 months ago
    $250
  32. Steven Epstein 
    4 months ago
    $100
  33. Charles Black 
    4 months ago
    $100
  34. Mary Conlin 
    4 months ago
    $270
  35. Sam Firestone 
    4 months ago
    $180
  36. Elizabeth Garcia 
    4 months ago
    $27
  37. Ilene Simon Solomon 
    4 months ago
    $27
  38. Marjorie Francis 
    4 months ago
    $50
  39. beth Whitaker 
    4 months ago
    $100
  40. Steven Regenstein 
    5 months ago
    $236
  41. Brian Mendelsohn 
    5 months ago
    $77
  42. Frances Berman 
    5 months ago
    $135
  43. Peter Gati 
    5 months ago
    $50
  44. Marci Valner 
    5 months ago
    $118
  45. Linda Collins 
    5 months ago
    $100
  46. Ellen Rose 
    5 months ago
    $54
  47. Monica Coenraads 
    6 months ago
    $50
  48. Michael Amato 
    6 months ago
    $500
  49. Teree Bergman 
    6 months ago
    $30
  50. Joan Sivalon 
    6 months ago
    $50
  51. Brooke Vanzuiden 
    6 months ago
    $100
  52. Michael Bergman 
    6 months ago
    $127
  53. Mady Bergman 
    6 months ago
    $100
  54. michael francis 
    6 months ago
    $250
  55. Marcia Lederman 
    6 months ago
    $25
  56. Anonymous 
    7 months ago
    $54

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