#GivingTuesday 2016

by Rett Syndrome Research Trust

  • Description
  • FAQ
  • Comments
  • Supporters

In the spirit of philanthropy that #GivingTuesday inspires, we hope you will contribute to RSRT to help us speed the research to treatments and a cure. The fact is, money makes our research happen. The more contributions we receive, the more resources we can make available to our funded scientists, and the faster they can push forward with potentially curative approaches such as Gene Therapy, Gene Reactivation, and RNA editing. RSRT doesn’t get support from government agencies or from major foundations. Our support comes entirely from affected families and their networks of friends and colleagues.

Our campaign goal is set to $8,000 to celebrate our 8-year anniversary.

We hope #GivingTuesday inspires you to donate and, even more importantly, to get involved. Start an event for RSRT; or create your very own RettGive campaign. We're here to help you every step along the way and are always available to answer any questions that you may have about fundraising. RSRT can’t do what it does without you. Thank you for doing your part in Making Rett History on this #GivingTuesday!


Don't forget to download this badge after you donate and change your profile picture!


Total Awarded to Research


RSRT funding supports a broad spectrum of projects from basic science to clinical trials. Our efforts are focused on both curative strategies and symptom improvement.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (56)

  1. Nancy Malzahn 
    1 year ago
    $50
  2. Dolores Kiesling 
    2 years ago
    $100
  3. Beverly Sanford 
    2 years ago
    $100
  4. Nancy Dwyer 
    2 years ago
    $25
  5. Nils Gotha 
    2 years ago
    $50
  6. Rose Giordano 
    2 years ago
    $50
  7. Kristin Newman 
    2 years ago
    $100
  8. Cindy Albritton 
    2 years ago
    $50
  9. Jarah Peters  
    2 years ago
    $25
  10. sonya medlin 
    2 years ago
    $25
  11. Dawn DeSantis 
    2 years ago
    $50
  12. Sari Ockner 
    2 years ago
    $25
  13. Emelie Gunnison 
    2 years ago
    $25
  14. Gary, Lynn, Kehaulani, Nanea, & Kelii Miyata 
    2 years ago
    $250
  15. Ann-Marie Kinzler 
    2 years ago
    $250
  16. Janet Wynne 
    2 years ago
    $50
  17. Jennifer Attanasi 
    2 years ago
    $50
  18. Kalinka Thurber 
    2 years ago
    $25
  19. david hartman 
    2 years ago
    $100
  20. Erin Bednoski 
    2 years ago
    $10
  21. Stuart and Lenka Offner 
    2 years ago
    $100
  22. Cassi Cohen 
    2 years ago
    $100
  23. Julie Rakowitz 
    2 years ago
    $25
  24. Julie Hackel 
    2 years ago
    $50
  25. Angela Lam 
    2 years ago
    $25
  26. Molly and Scott Schweiger 
    2 years ago
    $50
  27. Rihanne Hisle 
    2 years ago
    $25
  28. Kelton Peery 
    2 years ago
    $1,000
  29. Marian Kloss 
    2 years ago
    $250
  30. Pat Johnson 
    2 years ago
    $25
  31. Eli Milbaur 
    2 years ago
    $1,000
  32. Beth Whitaker 
    2 years ago
    $1,500
  33. Chad Shaffer 
    2 years ago
    $50
  34. Werner Beck 
    2 years ago
    $50
  35. Andrew Cardinali 
    2 years ago
    $250
  36. Anthony Napoleon 
    2 years ago
    $100
  37. Walter Tatum 
    2 years ago
    $100
  38. James and Dorothy Freeman 
    2 years ago
    $500
  39. Maggie and Cor Coenraads 
    2 years ago
    $50
  40. Curing My Cousin Zoe (Colina Family) 
    2 years ago
    $2,718
  41. Courtney Radosavljevic  
    2 years ago
    $40
  42. Angie Cunningham 
    2 years ago
    $25
  43. Rogers Family 
    2 years ago
    $100
  44. marilynpeter bernstein 
    2 years ago
    $25
  45. Emily and Troy Goldie 
    2 years ago
    $500
  46. KATHY HUNTER 
    2 years ago
    $100
  47. Gerry Nesbitt 
    2 years ago
    $100
  48. Meaghan Grimm 
    2 years ago
    $100
  49. lisa metcalfe 
    2 years ago
    $100
  50. Stuart Cornfeld  
    2 years ago
    $100
  51. Antoinette Marrero 
    2 years ago
    $50
  52. Chris Ann Pappas 
    2 years ago
    $100
  53. Tim Freeman 
    2 years ago
    $100
  54. Elisabeth Cardinali  
    2 years ago
    $100
  55. Tyler Jenkins 
    2 years ago
    $25
  56. Deanna Adair 
    2 years ago
    $100

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