#GivingTuesday 2016

by Rett Syndrome Research Trust

  • Description
  • FAQ
  • Comments
  • Supporters

In the spirit of philanthropy that #GivingTuesday inspires, we hope you will contribute to RSRT to help us speed the research to treatments and a cure. The fact is, money makes our research happen. The more contributions we receive, the more resources we can make available to our funded scientists, and the faster they can push forward with potentially curative approaches such as Gene Therapy, Gene Reactivation, and RNA editing. RSRT doesn’t get support from government agencies or from major foundations. Our support comes entirely from affected families and their networks of friends and colleagues.

Our campaign goal is set to $8,000 to celebrate our 8-year anniversary.

We hope #GivingTuesday inspires you to donate and, even more importantly, to get involved. Start an event for RSRT; or create your very own RettGive campaign. We're here to help you every step along the way and are always available to answer any questions that you may have about fundraising. RSRT can’t do what it does without you. Thank you for doing your part in Making Rett History on this #GivingTuesday!


Don't forget to download this badge after you donate and change your profile picture!


Total Awarded to Research


RSRT funding supports a broad spectrum of projects from basic science to clinical trials. Our efforts are focused on both curative strategies and symptom improvement.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (56)

  1. Nancy Malzahn 
    1 year ago
    $50
  2. Dolores Kiesling 
    1 year ago
    $100
  3. Beverly Sanford 
    1 year ago
    $100
  4. Nancy Dwyer 
    1 year ago
    $25
  5. Nils Gotha 
    1 year ago
    $50
  6. Rose Giordano 
    1 year ago
    $50
  7. Kristin Newman 
    1 year ago
    $100
  8. Cindy Albritton 
    1 year ago
    $50
  9. Jarah Peters  
    1 year ago
    $25
  10. sonya medlin 
    1 year ago
    $25
  11. Dawn DeSantis 
    1 year ago
    $50
  12. Sari Ockner 
    1 year ago
    $25
  13. Emelie Gunnison 
    1 year ago
    $25
  14. Gary, Lynn, Kehaulani, Nanea, & Kelii Miyata 
    1 year ago
    $250
  15. Ann-Marie Kinzler 
    1 year ago
    $250
  16. Janet Wynne 
    1 year ago
    $50
  17. Jennifer Attanasi 
    1 year ago
    $50
  18. Kalinka Thurber 
    1 year ago
    $25
  19. david hartman 
    1 year ago
    $100
  20. Erin Bednoski 
    1 year ago
    $10
  21. Stuart and Lenka Offner 
    1 year ago
    $100
  22. Cassi Cohen 
    1 year ago
    $100
  23. Julie Rakowitz 
    1 year ago
    $25
  24. Julie Hackel 
    1 year ago
    $50
  25. Angela Lam 
    1 year ago
    $25
  26. Molly and Scott Schweiger 
    1 year ago
    $50
  27. Rihanne Hisle 
    1 year ago
    $25
  28. Kelton Peery 
    1 year ago
    $1,000
  29. Marian Kloss 
    1 year ago
    $250
  30. Pat Johnson 
    1 year ago
    $25
  31. Eli Milbaur 
    1 year ago
    $1,000
  32. Beth Whitaker 
    1 year ago
    $1,500
  33. Chad Shaffer 
    1 year ago
    $50
  34. Werner Beck 
    1 year ago
    $50
  35. Andrew Cardinali 
    1 year ago
    $250
  36. Anthony Napoleon 
    1 year ago
    $100
  37. Walter Tatum 
    1 year ago
    $100
  38. James and Dorothy Freeman 
    1 year ago
    $500
  39. Maggie and Cor Coenraads 
    1 year ago
    $50
  40. Curing My Cousin Zoe (Colina Family) 
    1 year ago
    $2,718
  41. Courtney Radosavljevic  
    1 year ago
    $40
  42. Angie Cunningham 
    1 year ago
    $25
  43. Rogers Family 
    1 year ago
    $100
  44. marilynpeter bernstein 
    1 year ago
    $25
  45. Emily and Troy Goldie 
    1 year ago
    $500
  46. KATHY HUNTER 
    1 year ago
    $100
  47. Gerry Nesbitt 
    1 year ago
    $100
  48. Meaghan Grimm 
    1 year ago
    $100
  49. lisa metcalfe 
    1 year ago
    $100
  50. Stuart Cornfeld  
    1 year ago
    $100
  51. Antoinette Marrero 
    1 year ago
    $50
  52. Chris Ann Pappas 
    1 year ago
    $100
  53. Tim Freeman 
    1 year ago
    $100
  54. Elisabeth Cardinali  
    1 year ago
    $100
  55. Tyler Jenkins 
    2 years ago
    $25
  56. Deanna Adair 
    2 years ago
    $100

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