Fight for the Fosters

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The day our daughters were born, May 19, 2015, was the happiest day of our lives. Despite arriving a few weeks early, Charlie and Olivia were perfectly healthy little girls. We were overjoyed to bring them home from the hospital and begin the daunting task of raising twins.

Fast forward two years. A short period of normal development led to several months of delays around their second birthday. After the loss of the few words they could say, and an Autism diagnosis, we received the news that our girls' DNA results came back positive for Rett Syndrome. Diagnosis day, September 15, 2017, was the worst day of our lives.

This news was devastating, but at the same time it lit a fire in us to do everything in our power to raise awareness and funds to aid in the promising research aimed at finding a cure for this terrible disorder.

Despite their limitations, Charlie and Olivia have several abilities, which we celebrate daily. These girls bring joy and laughter to everyone they come across, they love to dance, and they LOVE food (except donuts, which doesn't make any sense at all...). As we continue to attend therapies and challenge our girls to grow, we are witnessing abilities they once had begin to slip away. Their hand use has declined significantly, they have lost all of their language, teeth grinding has set in, and their energy levels are decreasing more and more.

It is believed that Rett Syndrome may be the first curable neurological disorder, and we won't give up until we have that cure. Science is close, and 100% of donations made on behalf of our daughters go straight to funding these endeavors.

We want to extend a sincere thank you to friends and family for supporting this cause and helping us give our girls a voice in the fight against Rett Syndrome.

Cora and Trey Foster


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (69)

  1. Jean Badalamenti 
    5 months ago
    $5,000
  2. Joe Casavecchia 
    7 months ago
    $25
  3. Stephanie Garrison 
    7 months ago
    $50
  4. Mark Cain 
    8 months ago
    $100
  5. Senthil Kumar Subramanian 
    8 months ago
    $100
  6. Robbie Sommerville 
    8 months ago
    $100
  7. Grace Adams 
    8 months ago
    $100
  8. Erin Rutledge 
    8 months ago
    $50
  9. Jeremy Viers 
    8 months ago
    $100
  10. Anonymous 
    8 months ago
    $250
  11. Janae Pranschke 
    8 months ago
    $25
  12. Katherine Hudson 
    8 months ago
    $100
  13. Amanda Hartwell 
    10 months ago
    $50
  14. Kris Miller 
    1 year ago
    $500
  15. Kris Miller 
    1 year ago
    $250
  16. Anonymous 
    1 year ago
    $50
  17. Heather Fox 
    1 year ago
    $100
  18. Jonathan Wilcox 
    2 years ago
    $1,000
  19. Lee Woodward 
    2 years ago
    $200
  20. Kara Rogers 
    2 years ago
    $100
  21. Martha Dunn 
    2 years ago
    $50
  22. Cora Foster  
    2 years ago
    $1,500
  23. Meggan Rasmussen  
    2 years ago
    $100
  24. Dustin Hampton 
    2 years ago
    $100
  25. Jason Mefford 
    2 years ago
    $250
  26. Jonathan Wilcox 
    2 years ago
    $1,000
  27. Julie Downing 
    2 years ago
    $100
  28. Sally Rice 
    2 years ago
    $250
  29. Howard Worzel 
    2 years ago
    $100
  30. Larry Woodward 
    2 years ago
    $100
  31. Andrea Dennis 
    2 years ago
    $100
  32. Anita Rosemann 
    2 years ago
    $100
  33. Barbara Steffenhagen  
    2 years ago
    $100
  34. Cathy Ellis  
    2 years ago
    $50
  35. Charlotte Cloud 
    2 years ago
    $1,000
  36. Anonymous 
    2 years ago
    $25
  37. Caroline Cloud 
    2 years ago
    $250
  38. georgia brooks 
    2 years ago
    $1,515
  39. Jeremiah House 
    2 years ago
    $150
  40. Ashley Ranguelov 
    2 years ago
    $50
  41. Meghan Johnston 
    2 years ago
    $100
  42. Anonymous 
    2 years ago
    $50
  43. Brittany & John Badalamenti 
    2 years ago
    $100
  44. Veronica Lambert  
    2 years ago
    $50
  45. Dean and Angela Huffman 
    2 years ago
    $30
  46. Anonymous 
    2 years ago
    $50
  47. Anonymous 
    2 years ago
    $50
  48. Jean Badalamenti  
    2 years ago
    $1,000
  49. Jenna Allen 
    2 years ago
    $30
  50. Catherine Badalamenti 
    2 years ago
    $100
  51. Laura Vaughn  
    2 years ago
    $100
  52. Anonymous 
    2 years ago
    $250
  53. Carmen Puckett 
    2 years ago
    $1,000
  54. Stacey McSweeney 
    2 years ago
    $50
  55. Jonathan Wilcox 
    2 years ago
    $2,500
  56. Rachel Knight 
    2 years ago
    $25
  57. Chelsea Finklea 
    2 years ago
    $50
  58. Suzanne Henson 
    2 years ago
    $20
  59. Jonathan Wilcox 
    2 years ago
    $1,000
  60. Anonymous 
    2 years ago
    $2,000
  61. Katie Rowe 
    2 years ago
    $50
  62. Linda Haines 
    2 years ago
    $100
  63. Anonymous 
    2 years ago
    $50
  64. Max Rios 
    2 years ago
    $5
  65. Anonymous 
    2 years ago
    $50
  66. Kate Halper 
    2 years ago
    $25
  67. Lacey Dudley 
    2 years ago
    $250
  68. Michael Arsenault 
    2 years ago
    $100
  69. Sarah Young 
    2 years ago
    $100

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