Fight for the Fosters

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  • FAQ
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The day our daughters were born, May 19, 2015, was the happiest day of our lives. Despite arriving a few weeks early, Charlie and Olivia were perfectly healthy little girls. We were overjoyed to bring them home from the hospital and begin the daunting task of raising twins.

Fast forward two years. A short period of normal development led to several months of delays around their second birthday. After the loss of the few words they could say, and an Autism diagnosis, we received the news that our girls' DNA results came back positive for Rett Syndrome. Diagnosis day, September 15, 2017, was the worst day of our lives.

This news was devastating, but at the same time it lit a fire in us to do everything in our power to raise awareness and funds to aid in the promising research aimed at finding a cure for this terrible disorder.

Despite their limitations, Charlie and Olivia have several abilities, which we celebrate daily. These girls bring joy and laughter to everyone they come across, they love to dance, and they LOVE food (except donuts, which doesn't make any sense at all...). As we continue to attend therapies and challenge our girls to grow, we are witnessing abilities they once had begin to slip away. Their hand use has declined significantly, they have lost all of their language, teeth grinding has set in, and their energy levels are decreasing more and more.

It is believed that Rett Syndrome may be the first curable neurological disorder, and we won't give up until we have that cure. Science is close, and 100% of donations made on behalf of our daughters go straight to funding these endeavors.

We want to extend a sincere thank you to friends and family for supporting this cause and helping us give our girls a voice in the fight against Rett Syndrome.

Cora and Trey Foster


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (56)

  1. Kris Miller 
    4 months ago
    $500
  2. Kris Miller 
    4 months ago
    $250
  3. Anonymous 
    6 months ago
    $50
  4. Heather Fox 
    7 months ago
    $100
  5. Jonathan Wilcox 
    8 months ago
    $1,000
  6. Lee Woodward 
    9 months ago
    $200
  7. Kara Rogers 
    9 months ago
    $100
  8. Martha Dunn 
    9 months ago
    $50
  9. Cora Foster  
    9 months ago
    $1,500
  10. Meggan Rasmussen  
    9 months ago
    $100
  11. Dustin Hampton 
    9 months ago
    $100
  12. Jason Mefford 
    9 months ago
    $250
  13. Jonathan Wilcox 
    10 months ago
    $1,000
  14. Julie Downing 
    10 months ago
    $100
  15. Sally Rice 
    10 months ago
    $250
  16. Howard Worzel 
    10 months ago
    $100
  17. Larry Woodward 
    10 months ago
    $100
  18. Andrea Dennis 
    10 months ago
    $100
  19. Anita Rosemann 
    10 months ago
    $100
  20. Barbara Steffenhagen  
    10 months ago
    $100
  21. Cathy Ellis  
    10 months ago
    $50
  22. Charlotte Cloud 
    10 months ago
    $1,000
  23. Anonymous 
    10 months ago
    $25
  24. Caroline Cloud 
    10 months ago
    $250
  25. georgia brooks 
    10 months ago
    $1,515
  26. Jeremiah House 
    10 months ago
    $150
  27. Ashley Ranguelov 
    10 months ago
    $50
  28. Meghan Johnston 
    10 months ago
    $100
  29. Anonymous 
    10 months ago
    $50
  30. Brittany & John Badalamenti 
    10 months ago
    $100
  31. Veronica Lambert  
    10 months ago
    $50
  32. Dean and Angela Huffman 
    10 months ago
    $30
  33. Anonymous 
    10 months ago
    $50
  34. Anonymous 
    10 months ago
    $50
  35. Jean Badalamenti  
    10 months ago
    $1,000
  36. Jenna Allen 
    10 months ago
    $30
  37. Catherine Badalamenti 
    10 months ago
    $100
  38. Laura Vaughn  
    10 months ago
    $100
  39. Anonymous 
    10 months ago
    $250
  40. Carmen Puckett 
    10 months ago
    $1,000
  41. Stacey McSweeney 
    10 months ago
    $50
  42. Jonathan Wilcox 
    10 months ago
    $2,500
  43. Rachel Knight 
    10 months ago
    $25
  44. Chelsea Finklea 
    10 months ago
    $50
  45. Suzanne Henson 
    10 months ago
    $20
  46. Jonathan Wilcox 
    10 months ago
    $1,000
  47. Anonymous 
    10 months ago
    $2,000
  48. Katie Rowe 
    10 months ago
    $50
  49. Linda Haines 
    10 months ago
    $100
  50. Anonymous 
    10 months ago
    $50
  51. Max Rios 
    10 months ago
    $5
  52. Anonymous 
    10 months ago
    $50
  53. Kate Halper 
    10 months ago
    $25
  54. Lacey Dudley 
    10 months ago
    $250
  55. Michael Arsenault 
    10 months ago
    $100
  56. Sarah Young 
    10 months ago
    $100

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