Fight for the Fosters

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The day our daughters were born, May 19, 2015, was the happiest day of our lives. Despite arriving a few weeks early, Charlie and Olivia were perfectly healthy little girls. We were overjoyed to bring them home from the hospital and begin the daunting task of raising twins.

Fast forward two years. A short period of normal development led to several months of delays around their second birthday. After the loss of the few words they could say, and an Autism diagnosis, we received the news that our girls' DNA results came back positive for Rett Syndrome. Diagnosis day, September 15, 2017, was the worst day of our lives.

This news was devastating, but at the same time it lit a fire in us to do everything in our power to raise awareness and funds to aid in the promising research aimed at finding a cure for this terrible disorder.

Despite their limitations, Charlie and Olivia have several abilities, which we celebrate daily. These girls bring joy and laughter to everyone they come across, they love to dance, and they LOVE food (except donuts, which doesn't make any sense at all...). As we continue to attend therapies and challenge our girls to grow, we are witnessing abilities they once had begin to slip away. Their hand use has declined significantly, they have lost all of their language, teeth grinding has set in, and their energy levels are decreasing more and more.

It is believed that Rett Syndrome may be the first curable neurological disorder, and we won't give up until we have that cure. Science is close, and 100% of donations made on behalf of our daughters go straight to funding these endeavors.

We want to extend a sincere thank you to friends and family for supporting this cause and helping us give our girls a voice in the fight against Rett Syndrome.

Cora and Trey Foster


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (68)

  1. Joe Casavecchia 
    3 weeks ago
    $25
  2. Stephanie Garrison 
    1 month ago
    $50
  3. Mark Cain 
    1 month ago
    $100
  4. Senthil Kumar Subramanian 
    1 month ago
    $100
  5. Robbie Sommerville 
    1 month ago
    $100
  6. Grace Adams 
    1 month ago
    $100
  7. Erin Rutledge 
    1 month ago
    $50
  8. Jeremy Viers 
    1 month ago
    $100
  9. Anonymous 
    1 month ago
    $250
  10. Janae Pranschke 
    2 months ago
    $25
  11. Katherine Hudson 
    2 months ago
    $100
  12. Amanda Hartwell 
    4 months ago
    $50
  13. Kris Miller 
    8 months ago
    $500
  14. Kris Miller 
    8 months ago
    $250
  15. Anonymous 
    10 months ago
    $50
  16. Heather Fox 
    11 months ago
    $100
  17. Jonathan Wilcox 
    1 year ago
    $1,000
  18. Lee Woodward 
    1 year ago
    $200
  19. Kara Rogers 
    1 year ago
    $100
  20. Martha Dunn 
    1 year ago
    $50
  21. Cora Foster  
    1 year ago
    $1,500
  22. Meggan Rasmussen  
    1 year ago
    $100
  23. Dustin Hampton 
    1 year ago
    $100
  24. Jason Mefford 
    1 year ago
    $250
  25. Jonathan Wilcox 
    1 year ago
    $1,000
  26. Julie Downing 
    1 year ago
    $100
  27. Sally Rice 
    1 year ago
    $250
  28. Howard Worzel 
    1 year ago
    $100
  29. Larry Woodward 
    1 year ago
    $100
  30. Andrea Dennis 
    1 year ago
    $100
  31. Anita Rosemann 
    1 year ago
    $100
  32. Barbara Steffenhagen  
    1 year ago
    $100
  33. Cathy Ellis  
    1 year ago
    $50
  34. Charlotte Cloud 
    1 year ago
    $1,000
  35. Anonymous 
    1 year ago
    $25
  36. Caroline Cloud 
    1 year ago
    $250
  37. georgia brooks 
    1 year ago
    $1,515
  38. Jeremiah House 
    1 year ago
    $150
  39. Ashley Ranguelov 
    1 year ago
    $50
  40. Meghan Johnston 
    1 year ago
    $100
  41. Anonymous 
    1 year ago
    $50
  42. Brittany & John Badalamenti 
    1 year ago
    $100
  43. Veronica Lambert  
    1 year ago
    $50
  44. Dean and Angela Huffman 
    1 year ago
    $30
  45. Anonymous 
    1 year ago
    $50
  46. Anonymous 
    1 year ago
    $50
  47. Jean Badalamenti  
    1 year ago
    $1,000
  48. Jenna Allen 
    1 year ago
    $30
  49. Catherine Badalamenti 
    1 year ago
    $100
  50. Laura Vaughn  
    1 year ago
    $100
  51. Anonymous 
    1 year ago
    $250
  52. Carmen Puckett 
    1 year ago
    $1,000
  53. Stacey McSweeney 
    1 year ago
    $50
  54. Jonathan Wilcox 
    1 year ago
    $2,500
  55. Rachel Knight 
    1 year ago
    $25
  56. Chelsea Finklea 
    1 year ago
    $50
  57. Suzanne Henson 
    1 year ago
    $20
  58. Jonathan Wilcox 
    1 year ago
    $1,000
  59. Anonymous 
    1 year ago
    $2,000
  60. Katie Rowe 
    1 year ago
    $50
  61. Linda Haines 
    1 year ago
    $100
  62. Anonymous 
    1 year ago
    $50
  63. Max Rios 
    1 year ago
    $5
  64. Anonymous 
    1 year ago
    $50
  65. Kate Halper 
    1 year ago
    $25
  66. Lacey Dudley 
    1 year ago
    $250
  67. Michael Arsenault 
    1 year ago
    $100
  68. Sarah Young 
    1 year ago
    $100

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