Fifi’s Fight to Cure Rett Syndrome

  • Description
  • FAQ
  • Comments
  • Supporters

Sammy has made another incredible video to help raise money to fund the research needed to cure Rett Syndrome, which is the terrible disease that afflicts his 8-year old sister, Fifi.  Scientific research is progressing rapidly, and we are more hopeful than ever that the cure for Fifi (and the 350,000 girls and women worldwide who suffer from this horrible disease) is right around the corner.  Please help us join the fight against Rett by donating to the Rett Syndrome Research Trust.  Thank you so much for your support!

Liz, Jon & Sammy Easton

p.s.  to see Sammy's video from last year, please click this link: Fifi's Fight to Cure Rett Syndrome 2017


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (102)

  1. Jill & David Latta 
    2 months ago
    $40
  2. Susan & Paul Pope 
    2 months ago
    $560
  3. Marietta & Michael Marquart 
    2 months ago
    $100
  4. Danette & Mark Fischer 
    2 months ago
    $100
  5. Kim & Robert Wells 
    2 months ago
    $200
  6. Jocelyn & Marc Howard 
    3 months ago
    $200
  7. Dana Smith 
    4 months ago
    $10
  8. Eileen & Winston Barrow 
    4 months ago
    $200
  9. John & Barbara Palmer 
    5 months ago
    $200
  10. Richard and Mary Barrow 
    5 months ago
    $500
  11. dana smith 
    5 months ago
    $31
  12. Anissa Kurian 
    5 months ago
    $5
  13. Jennifer Bruno 
    5 months ago
    $20
  14. Hannah Ameen 
    6 months ago
    $100
  15. Cindy Skala  
    6 months ago
    $100
  16. Cassi Gerdsen 
    6 months ago
    $50
  17. Brenda Wilcox 
    6 months ago
    $100
  18. Don Messina 
    7 months ago
    $75
  19. Dana Smith 
    7 months ago
    $25
  20. Dana Smith 
    7 months ago
    $11
  21. Dana Smith 
    8 months ago
    $180
  22. Bob Barrow 
    8 months ago
    $50
  23. Dana Smith 
    8 months ago
    $15
  24. Craig Evans 
    9 months ago
    $25
  25. Chris Plummer 
    9 months ago
    $500
  26. Dana Smith 
    11 months ago
    $24
  27. Dana Smith 
    1 year ago
    $15
  28. Dana Smith 
    1 year ago
    $15
  29. Dana Smith 
    1 year ago
    $17
  30. Dana Smith 
    1 year ago
    $46
  31. Dana Smith 
    1 year ago
    $21
  32. Dana Smith 
    1 year ago
    $36
  33. Deborah Patrick 
    1 year ago
    $50
  34. Diane Caplain 
    1 year ago
    $200
  35. Jenny Oliveira 
    1 year ago
    $25
  36. Don Messina 
    1 year ago
    $50
  37. Anonymous 
    1 year ago
    $30
  38. Shelann Coughlan 
    1 year ago
    $25
  39. Susan Corcoran 
    1 year ago
    $30
  40. Avery Andrasek 
    1 year ago
    $50
  41. Kristine Smirh 
    2 years ago
    $50
  42. Bonnie Diaz 
    2 years ago
    $50
  43. Luis Garza 
    2 years ago
    $500
  44. Don Messina 
    2 years ago
    $50
  45. Alma & David Frank 
    2 years ago
    $150
  46. Michelle Rehse 
    2 years ago
    $350
  47. Anonymous 
    2 years ago
    $50
  48. Nicole Squillante 
    2 years ago
    $500
  49. Karen Noble 
    2 years ago
    $250
  50. Dana Smith 
    2 years ago
    $135
  51. Margie Plummer 
    2 years ago
    $100
  52. Sally Frank 
    2 years ago
    $100
  53. Joshua McHugh 
    2 years ago
    $200
  54. Susan Pope 
    2 years ago
    $250
  55. Dana Smith 
    2 years ago
    $44
  56. Hilary Easton 
    2 years ago
    $200
  57. Anonymous 
    2 years ago
    $1,000
  58. Eileen & Winston Barrow 
    2 years ago
    $250
  59. Barbara & John Palmer 
    2 years ago
    $250
  60. Roger Sherman 
    2 years ago
    $200
  61. Mary & Richard Barrow 
    2 years ago
    $500
  62. Julie Nixon 
    2 years ago
    $50
  63. Rhona Dehnad 
    2 years ago
    $100
  64. Brenda Wilcox 
    2 years ago
    $50
  65. Azriel Novogroder 
    2 years ago
    $50
  66. Anonymous 
    2 years ago
    $100
  67. Alexa Fila 
    2 years ago
    $100
  68. Bob Arthurs 
    2 years ago
    $200
  69. Janean Mancini 
    2 years ago
    $50
  70. Jacob Dunphy 
    2 years ago
    $50
  71. Anne Constant 
    2 years ago
    $100
  72. Carla Nelson 
    2 years ago
    $20
  73. Angela Bray 
    2 years ago
    $50
  74. Don and Jean Donahue 
    2 years ago
    $500
  75. Don Messina 
    2 years ago
    $200
  76. joe solomon 
    2 years ago
    $100
  77. Deeni Saltarelli 
    2 years ago
    $100
  78. Emily Hammer 
    2 years ago
    $300
  79. Jean Castello 
    2 years ago
    $50
  80. Robert Fitzgerald 
    2 years ago
    $50
  81. Emily Pope 
    2 years ago
    $25
  82. Boris Pevzner 
    2 years ago
    $100
  83. Elizabeth Hall 
    2 years ago
    $50
  84. Mary Squillante 
    2 years ago
    $25
  85. Charlotte Whitmore 
    2 years ago
    $500
  86. Lisa Bruno 
    2 years ago
    $50
  87. Nicole Squillante 
    2 years ago
    $50
  88. Anonymous 
    2 years ago
    $25
  89. Holly Plummer 
    2 years ago
    $50
  90. Laura Baldwin 
    2 years ago
    $50
  91. Jennie Grube 
    2 years ago
    $25
  92. Joanne Keilty  
    2 years ago
    $25
  93. Jennifer Bruno 
    2 years ago
    $25
  94. Chris Plummer 
    2 years ago
    $250
  95. abraham towbin 
    2 years ago
    $100
  96. Jenny Clancy 
    2 years ago
    $50
  97. Lauren Blaszak 
    2 years ago
    $100
  98. Tamsen Thorpe  
    2 years ago
    $50
  99. Elaine Gallagher 
    2 years ago
    $100
  100. Geraldine Barrow 
    2 years ago
    $300
  101. Dana Smith 
    2 years ago
    $50
  102. Anonymous 
    2 years ago
    $250

This is a unique website which will require a more modern browser to work!

Please upgrade today!