Fifi’s Fight to Cure Rett Syndrome

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Fifi is an amazing 7-year old girl who, despite not being able to speak, manages to charm everyone she meets with her infectious giggle and incredibly happy personality. She can light up a room with her smile. We love her so much and are so proud of her for her strength, courage and sweetness in the face of this devastating illness. Fifi is a rock star.

Rett Syndrome has actually been reversed in lab mice, and scientists believe it can be cured in humans. We believe it, too. You can help make that happen by donating to the Rett Syndrome Research Trust, which is funding the research to find the cure for Fifi and the 350,000 girls and women who are suffering from this terrible disease.

Thank you so much for your support!

Liz, Jon & Sammy Easton


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (85)

  1. Don Messina 
    3 weeks ago
    $75
  2. Dana Smith 
    4 weeks ago
    $25
  3. Dana Smith 
    1 month ago
    $11
  4. Dana Smith 
    2 months ago
    $180
  5. Bob Barrow 
    2 months ago
    $50
  6. Dana Smith 
    2 months ago
    $15
  7. Craig Evans 
    3 months ago
    $25
  8. Chris Plummer 
    3 months ago
    $500
  9. Dana Smith 
    5 months ago
    $24
  10. Dana Smith 
    8 months ago
    $15
  11. Dana Smith 
    9 months ago
    $15
  12. Dana Smith 
    9 months ago
    $17
  13. Dana Smith 
    9 months ago
    $46
  14. Dana Smith 
    10 months ago
    $21
  15. Dana Smith 
    11 months ago
    $36
  16. Deborah Patrick 
    12 months ago
    $50
  17. Diane Caplain 
    12 months ago
    $200
  18. Jenny Oliveira 
    12 months ago
    $25
  19. Don Messina 
    12 months ago
    $50
  20. Anonymous 
    12 months ago
    $30
  21. Shelann Coughlan 
    12 months ago
    $25
  22. Susan Corcoran 
    12 months ago
    $30
  23. Avery Andrasek 
    12 months ago
    $50
  24. Kristine Smirh 
    1 year ago
    $50
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    1 year ago
    $50
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    1 year ago
    $500
  27. Don Messina 
    1 year ago
    $50
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    1 year ago
    $150
  29. Michelle Rehse 
    1 year ago
    $350
  30. Anonymous 
    1 year ago
    $50
  31. Nicole Squillante 
    1 year ago
    $500
  32. Karen Noble 
    1 year ago
    $250
  33. Dana Smith 
    1 year ago
    $135
  34. Margie Plummer 
    1 year ago
    $100
  35. Sally Frank 
    1 year ago
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  36. Joshua McHugh 
    1 year ago
    $200
  37. Susan Pope 
    1 year ago
    $250
  38. Dana Smith 
    1 year ago
    $44
  39. Hilary Easton 
    1 year ago
    $200
  40. Anonymous 
    1 year ago
    $1,000
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    1 year ago
    $250
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    1 year ago
    $250
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    1 year ago
    $200
  44. Mary & Richard Barrow 
    1 year ago
    $500
  45. Julie Nixon 
    1 year ago
    $50
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    1 year ago
    $100
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    1 year ago
    $50
  48. Azriel Novogroder 
    1 year ago
    $50
  49. Anonymous 
    1 year ago
    $100
  50. Alexa Fila 
    1 year ago
    $100
  51. Bob Arthurs 
    1 year ago
    $200
  52. Janean Mancini 
    1 year ago
    $50
  53. Jacob Dunphy 
    1 year ago
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  54. Anne Constant 
    1 year ago
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  55. Carla Nelson 
    1 year ago
    $20
  56. Angela Bray 
    1 year ago
    $50
  57. Don and Jean Donahue 
    1 year ago
    $500
  58. Don Messina 
    1 year ago
    $200
  59. joe solomon 
    1 year ago
    $100
  60. Deeni Saltarelli 
    1 year ago
    $100
  61. Emily Hammer 
    1 year ago
    $300
  62. Jean Castello 
    1 year ago
    $50
  63. Robert Fitzgerald 
    1 year ago
    $50
  64. Emily Pope 
    1 year ago
    $25
  65. Boris Pevzner 
    1 year ago
    $100
  66. Elizabeth Hall 
    1 year ago
    $50
  67. Mary Squillante 
    1 year ago
    $25
  68. Charlotte Whitmore 
    1 year ago
    $500
  69. Lisa Bruno 
    1 year ago
    $50
  70. Nicole Squillante 
    1 year ago
    $50
  71. Anonymous 
    1 year ago
    $25
  72. Holly Plummer 
    1 year ago
    $50
  73. Laura Baldwin 
    1 year ago
    $50
  74. Jennie Grube 
    1 year ago
    $25
  75. Joanne Keilty  
    1 year ago
    $25
  76. Jennifer Bruno 
    1 year ago
    $25
  77. Chris Plummer 
    1 year ago
    $250
  78. abraham towbin 
    1 year ago
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  79. Jenny Clancy 
    1 year ago
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  80. Lauren Blaszak 
    1 year ago
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  81. Tamsen Thorpe  
    1 year ago
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  82. Elaine Gallagher 
    1 year ago
    $100
  83. Geraldine Barrow 
    1 year ago
    $300
  84. Dana Smith 
    1 year ago
    $50
  85. Anonymous 
    1 year ago
    $250

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