Fifi’s Fight to Cure Rett Syndrome

  • Description
  • FAQ
  • Comments
  • Supporters

Sammy has made another incredible video to help raise money to fund the research needed to cure Rett Syndrome, which is the terrible disease that afflicts his 8-year old sister, Fifi.  Scientific research is progressing rapidly, and we are more hopeful than ever that the cure for Fifi (and the 350,000 girls and women worldwide who suffer from this horrible disease) is right around the corner.  Please help us join the fight against Rett by donating to the Rett Syndrome Research Trust.  Thank you so much for your support!

Liz, Jon & Sammy Easton

p.s.  to see Sammy's video from last year, please click this link: Fifi's Fight to Cure Rett Syndrome 2017


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (95)

  1. Eileen & Winston Barrow 
    3 days ago
    $200
  2. John & Barbara Palmer 
    4 weeks ago
    $200
  3. Richard and Mary Barrow 
    1 month ago
    $500
  4. dana smith 
    1 month ago
    $31
  5. Anissa Kurian 
    1 month ago
    $5
  6. Jennifer Bruno 
    1 month ago
    $20
  7. Hannah Ameen 
    2 months ago
    $100
  8. Cindy Skala  
    2 months ago
    $100
  9. Cassi Gerdsen 
    2 months ago
    $50
  10. Brenda Wilcox 
    2 months ago
    $100
  11. Don Messina 
    3 months ago
    $75
  12. Dana Smith 
    3 months ago
    $25
  13. Dana Smith 
    3 months ago
    $11
  14. Dana Smith 
    4 months ago
    $180
  15. Bob Barrow 
    4 months ago
    $50
  16. Dana Smith 
    4 months ago
    $15
  17. Craig Evans 
    5 months ago
    $25
  18. Chris Plummer 
    5 months ago
    $500
  19. Dana Smith 
    7 months ago
    $24
  20. Dana Smith 
    10 months ago
    $15
  21. Dana Smith 
    11 months ago
    $15
  22. Dana Smith 
    11 months ago
    $17
  23. Dana Smith 
    11 months ago
    $46
  24. Dana Smith 
    1 year ago
    $21
  25. Dana Smith 
    1 year ago
    $36
  26. Deborah Patrick 
    1 year ago
    $50
  27. Diane Caplain 
    1 year ago
    $200
  28. Jenny Oliveira 
    1 year ago
    $25
  29. Don Messina 
    1 year ago
    $50
  30. Anonymous 
    1 year ago
    $30
  31. Shelann Coughlan 
    1 year ago
    $25
  32. Susan Corcoran 
    1 year ago
    $30
  33. Avery Andrasek 
    1 year ago
    $50
  34. Kristine Smirh 
    1 year ago
    $50
  35. Bonnie Diaz 
    1 year ago
    $50
  36. Luis Garza 
    1 year ago
    $500
  37. Don Messina 
    1 year ago
    $50
  38. Alma & David Frank 
    1 year ago
    $150
  39. Michelle Rehse 
    1 year ago
    $350
  40. Anonymous 
    1 year ago
    $50
  41. Nicole Squillante 
    1 year ago
    $500
  42. Karen Noble 
    1 year ago
    $250
  43. Dana Smith 
    1 year ago
    $135
  44. Margie Plummer 
    1 year ago
    $100
  45. Sally Frank 
    1 year ago
    $100
  46. Joshua McHugh 
    1 year ago
    $200
  47. Susan Pope 
    1 year ago
    $250
  48. Dana Smith 
    1 year ago
    $44
  49. Hilary Easton 
    1 year ago
    $200
  50. Anonymous 
    1 year ago
    $1,000
  51. Eileen & Winston Barrow 
    1 year ago
    $250
  52. Barbara & John Palmer 
    1 year ago
    $250
  53. Roger Sherman 
    1 year ago
    $200
  54. Mary & Richard Barrow 
    1 year ago
    $500
  55. Julie Nixon 
    1 year ago
    $50
  56. Rhona Dehnad 
    1 year ago
    $100
  57. Brenda Wilcox 
    1 year ago
    $50
  58. Azriel Novogroder 
    1 year ago
    $50
  59. Anonymous 
    1 year ago
    $100
  60. Alexa Fila 
    1 year ago
    $100
  61. Bob Arthurs 
    1 year ago
    $200
  62. Janean Mancini 
    1 year ago
    $50
  63. Jacob Dunphy 
    1 year ago
    $50
  64. Anne Constant 
    1 year ago
    $100
  65. Carla Nelson 
    1 year ago
    $20
  66. Angela Bray 
    1 year ago
    $50
  67. Don and Jean Donahue 
    1 year ago
    $500
  68. Don Messina 
    1 year ago
    $200
  69. joe solomon 
    1 year ago
    $100
  70. Deeni Saltarelli 
    1 year ago
    $100
  71. Emily Hammer 
    1 year ago
    $300
  72. Jean Castello 
    1 year ago
    $50
  73. Robert Fitzgerald 
    1 year ago
    $50
  74. Emily Pope 
    1 year ago
    $25
  75. Boris Pevzner 
    1 year ago
    $100
  76. Elizabeth Hall 
    1 year ago
    $50
  77. Mary Squillante 
    1 year ago
    $25
  78. Charlotte Whitmore 
    1 year ago
    $500
  79. Lisa Bruno 
    1 year ago
    $50
  80. Nicole Squillante 
    1 year ago
    $50
  81. Anonymous 
    1 year ago
    $25
  82. Holly Plummer 
    1 year ago
    $50
  83. Laura Baldwin 
    1 year ago
    $50
  84. Jennie Grube 
    1 year ago
    $25
  85. Joanne Keilty  
    1 year ago
    $25
  86. Jennifer Bruno 
    1 year ago
    $25
  87. Chris Plummer 
    1 year ago
    $250
  88. abraham towbin 
    1 year ago
    $100
  89. Jenny Clancy 
    1 year ago
    $50
  90. Lauren Blaszak 
    1 year ago
    $100
  91. Tamsen Thorpe  
    1 year ago
    $50
  92. Elaine Gallagher 
    1 year ago
    $100
  93. Geraldine Barrow 
    1 year ago
    $300
  94. Dana Smith 
    1 year ago
    $50
  95. Anonymous 
    1 year ago
    $250

This is a unique website which will require a more modern browser to work!

Please upgrade today!