End Of Year Push 2018

Double Your Donation Match!

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  • Supporters

In the last few days of 2018 we’re all thinking about where our year-end donations can have the biggest impact. At RSRT we can assure you that every dollar matters to our research. Our three-year strategic plan, Roadmap to a Cure, prioritizes four approaches that attack this devastating neurological disorder at its genetic core. Gene therapy, the lead approach, has advanced to an especially exciting stage. The biotech company, AveXis, informed by data generated by RSRT-supported researchers, is on track to launch the first human clinical trial in gene therapy for Rett in 2019. The goal is to profoundly impact the lives of the 350,000 children and adults who struggle with Rett Syndrome every moment of every day. This is urgent and personal for us at RSRT—we’re parents too.


If you haven’t made a gift to RSRT this year, or if you are moved to contribute more, we hope very much that you will. If you give before midnight on December 31, you’ll double your impact! The Tesler family has generously offered to match, dollar for dollar, every donation made by the end of the year up to a total of $50,000.


The research simply can’t happen without funding. This is a special opportunity to make your dollars work even harder for our research and for all our loved ones. Thank you from the bottom of our hearts.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (202)

  1. Kate Foundation  
    6 months ago
    $25,000
  2. Walter Dolphin 
    6 months ago
    $100
  3. Angie Keesee 
    6 months ago
    $75
  4. Paul Brubaker 
    6 months ago
    $100
  5. Lynda Weingarz 
    6 months ago
    $800
  6. Amy Moore 
    6 months ago
    $50
  7. Carole Friedman 
    6 months ago
    $75
  8. William Schmidt 
    6 months ago
    $500
  9. Amber Marceau 
    6 months ago
    $50
  10. Valerie Adair 
    6 months ago
    $100
  11. Judith Wootton 
    6 months ago
    $100
  12. Lynne Winters 
    6 months ago
    $100
  13. William Lehnert 
    6 months ago
    $500
  14. Laura McMorrow 
    6 months ago
    $100
  15. J Daniel OBrien 
    6 months ago
    $25
  16. Marjie queler 
    6 months ago
    $25
  17. Marjie queler 
    6 months ago
    $25
  18. Savannah Kadri 
    6 months ago
    $100
  19. Greg Gershuny 
    6 months ago
    $100
  20. Sarah Chang 
    6 months ago
    $50
  21. Justin Endres 
    6 months ago
    $250
  22. Cecilia GO Pizii 
    6 months ago
    $50
  23. Bonnie Keck 
    6 months ago
    $100
  24. Hadas and Zvi Bar-On 
    6 months ago
    $1,000
  25. Minati Das 
    6 months ago
    $25
  26. Jodi Rosati 
    6 months ago
    $50
  27. Dru Collins 
    6 months ago
    $25
  28. Kati Gray 
    6 months ago
    $300
  29. Karen Ruddon 
    6 months ago
    $40
  30. Lise Lacroix 
    6 months ago
    $25
  31. Wayne Gershberg 
    6 months ago
    $50
  32. Carly Truitt 
    6 months ago
    $25
  33. Dan Strach 
    6 months ago
    $100
  34. Carl Sweeney 
    6 months ago
    $100
  35. Tracy Duffey 
    6 months ago
    $100
  36. Donna and Earl Bookman 
    6 months ago
    $100
  37. Dale Mize  
    6 months ago
    $100
  38. Shelly Manley 
    6 months ago
    $50
  39. Robin Willig 
    6 months ago
    $100
  40. Ozgur Huseyin 
    6 months ago
    $250
  41. Julia Robinson 
    6 months ago
    $250
  42. lynn Bossetti 
    6 months ago
    $100
  43. James Freeman 
    6 months ago
    $500
  44. James Allen 
    6 months ago
    $300
  45. Anonymous 
    6 months ago
    $100
  46. Morry Brown 
    6 months ago
    $500
  47. Michael Zdrodowski 
    6 months ago
    $50
  48. Michael Ramirez 
    6 months ago
    $100
  49. Kevin Baker 
    6 months ago
    $250
  50. Joaquin Bouzas 
    6 months ago
    $3,500
  51. Milena Djuric Nedeljkovic 
    6 months ago
    $500
  52. Debra Gilbert 
    6 months ago
    $100
  53. Anonymous 
    6 months ago
    $5,000
  54. Gohar Behdadnia 
    6 months ago
    $100
  55. Carole Benjamin 
    6 months ago
    $500
  56. Agnieszka Matusik 
    6 months ago
    $100
  57. Carol Varner 
    6 months ago
    $25
  58. Siegfried Öhrlein 
    6 months ago
    $50
  59. Agnese Regoli 
    6 months ago
    $50
  60. Jeffrey & Mary Lynn Miller 
    6 months ago
    $100
  61. John & Catherine Romano 
    6 months ago
    $100
  62. James & Ginele Grabowski 
    6 months ago
    $1,000
  63. Mariagrazia Alabrese 
    6 months ago
    $1,100
  64. Jonathan Woods 
    6 months ago
    $100
  65. Charles Hanrahan 
    6 months ago
    $500
  66. Anonymous 
    6 months ago
    $30
  67. Leah Sills 
    6 months ago
    $100
  68. michael/nora gray 
    6 months ago
    $1,000
  69. Julie Hunady 
    6 months ago
    $50
  70. Alissa Segal 
    6 months ago
    $250
  71. Gilda & David Press 
    6 months ago
    $100
  72. Josef Winiger 
    6 months ago
    $100
  73. Victor Rivera 
    6 months ago
    $250
  74. Richard Haines 
    6 months ago
    $250
  75. Cameron Driscoll 
    6 months ago
    $100
  76. Martha Bullock 
    6 months ago
    $25
  77. Lorre & Joshua Goldberg 
    6 months ago
    $500
  78. Danielle Ballantyne 
    6 months ago
    $50
  79. Heather & Peter Curry 
    6 months ago
    $100
  80. Arturo & Vicky Casillas 
    6 months ago
    $300
  81. Kenneth Lohsen 
    6 months ago
    $500
  82. Michele Kochoff Platt 
    6 months ago
    $50
  83. El Dia de Los Enduros  
    6 months ago
    $4,160
  84. Anonymous 
    6 months ago
    $50
  85. Shaine Gaspard 
    6 months ago
    $1,000
  86. G3Foundation  
    6 months ago
    $500
  87. Henrik Strandberg 
    6 months ago
    $100
  88. Miriam Burrows 
    6 months ago
    $25
  89. Gregory Hansen 
    6 months ago
    $500
  90. Anonymous 
    6 months ago
    $250
  91. Anonymous 
    6 months ago
    $25
  92. Christy Garner 
    6 months ago
    $100
  93. Suzie Branda 
    6 months ago
    $50
  94. Anonymous 
    6 months ago
    $100
  95. Joe & Josie Trippodo 
    6 months ago
    $350
  96. Melissa Metzfield 
    6 months ago
    $200
  97. Ilene Brotman 
    6 months ago
    $50
  98. John Kuwik 
    6 months ago
    $500
  99. Jennifer Facchinelli  
    6 months ago
    $500
  100. Gregory Edwards 
    6 months ago
    $50
  101. Nancy Bloch 
    6 months ago
    $25
  102. Sharon Lindow 
    6 months ago
    $50
  103. Eleni Demetriou 
    6 months ago
    $750
  104. Greg Edwards 
    6 months ago
    $100
  105. Shannon Karski 
    6 months ago
    $50
  106. Edrian Colina 
    6 months ago
    $25
  107. Joanne Ralston 
    6 months ago
    $100
  108. Michael McNamara 
    6 months ago
    $10
  109. Roberto Cerza 
    6 months ago
    $100
  110. Roberto Cerza 
    6 months ago
    $100
  111. Urs Winiger 
    6 months ago
    $25
  112. Barbara Vilar 
    6 months ago
    $500
  113. Laurence Hyman  
    6 months ago
    $250
  114. Mariela Eva Giampaoletti 
    6 months ago
    $250
  115. Dawn Reckinger 
    6 months ago
    $2,500
  116. michael teitelbaum 
    7 months ago
    $25
  117. Rafael and Malgorzata Severyn 
    7 months ago
    $500
  118. Heather Sweeney 
    7 months ago
    $50
  119. Nicole Gress 
    7 months ago
    $500
  120. Katrin Winiger 
    7 months ago
    $77
  121. Deborah Hallsey 
    7 months ago
    $2,500
  122. Anonymous 
    7 months ago
    $200
  123. Leigh Ann O\'Donnell 
    7 months ago
    $1,000
  124. Rosemarie Rosengarten 
    7 months ago
    $100
  125. Anonymous 
    7 months ago
    $25
  126. Savannah Kadri 
    7 months ago
    $400
  127. Lars Andreasson 
    7 months ago
    $250
  128. Hsien-Tse Tung 
    7 months ago
    $500
  129. Mikhail Sivozhelezov 
    7 months ago
    $50
  130. Robert Desoe 
    7 months ago
    $100
  131. Deborah Smith 
    7 months ago
    $25
  132. Julia & Frederic Weigl 
    7 months ago
    $100
  133. Joanne Holden 
    7 months ago
    $250
  134. Dejan Trbojevic 
    7 months ago
    $100
  135. Genevieve Laforet 
    7 months ago
    $500
  136. Linda Hearn 
    7 months ago
    $100
  137. Pierangela Aureggi 
    7 months ago
    $250
  138. Edoardo Uggeri 
    7 months ago
    $250
  139. Fulvio Uggeri 
    7 months ago
    $250
  140. Bruce Gordon 
    7 months ago
    $50
  141. Angela Tabat 
    7 months ago
    $100
  142. Martina Uggeri 
    7 months ago
    $250
  143. Gianna Del Col 
    7 months ago
    $23
  144. Donatella Marangon 
    7 months ago
    $56
  145. Lawrence Hsieh 
    7 months ago
    $125
  146. Patty Nocco Marceante 
    7 months ago
    $20
  147. Mike Stewart 
    7 months ago
    $50
  148. Michael Polizzotto 
    7 months ago
    $25
  149. Sandy Moberger 
    7 months ago
    $20
  150. Josh & Lauren Kearney 
    7 months ago
    $100
  151. Jonathan Lerro 
    7 months ago
    $10
  152. Vickie Gundrum 
    7 months ago
    $10
  153. Mary Case 
    7 months ago
    $50
  154. Diane Fulton 
    7 months ago
    $50
  155. Josh Kearney  
    7 months ago
    $50
  156. Greg Thomas 
    7 months ago
    $2,500
  157. Rebecca Zaja  
    7 months ago
    $500
  158. William Hartman 
    7 months ago
    $200
  159. Lawrence Marshall 
    7 months ago
    $500
  160. Jason Moore 
    7 months ago
    $100
  161. Dennis and Bonnie Adair 
    7 months ago
    $100
  162. Anonymous 
    7 months ago
    $25
  163. Bron and Debbie Milczewski 
    7 months ago
    $500
  164. Anonymous 
    7 months ago
    $500
  165. Anonymous 
    7 months ago
    $1
  166. Anonymous 
    7 months ago
    $1
  167. Anonymous 
    7 months ago
    $1
  168. Anonymous 
    7 months ago
    $1
  169. hugh hughson 
    7 months ago
    $50
  170. Mario Eleno 
    7 months ago
    $500
  171. Kathy Sheehan 
    7 months ago
    $100
  172. Barbara Streifel 
    7 months ago
    $50
  173. Anonymous 
    7 months ago
    $750
  174. Emily Michael 
    7 months ago
    $25
  175. Ricki Davis 
    7 months ago
    $100
  176. Jonathan and Naomi Rosenblatt 
    7 months ago
    $250
  177. Margaret Ashley Love 
    7 months ago
    $150
  178. Katherine Higgs 
    7 months ago
    $50
  179. Liz & Jon Easton 
    7 months ago
    $400
  180. Robert Arthurs 
    7 months ago
    $100
  181. Anonymous 
    7 months ago
    $50
  182. Diane Stevens 
    7 months ago
    $100
  183. Stephen Ozen 
    7 months ago
    $50
  184. Anonymous 
    7 months ago
    $100
  185. Allycia Sindorf  
    7 months ago
    $200
  186. Ruth Aubin 
    7 months ago
    $100
  187. karen medlin 
    7 months ago
    $25
  188. JoAnn Meaux 
    7 months ago
    $100
  189. Elizabeth Clarke 
    7 months ago
    $500
  190. Donald Coates 
    7 months ago
    $500
  191. Susan Foster 
    7 months ago
    $100
  192. Anonymous 
    7 months ago
    $100
  193. Donna Boothman 
    7 months ago
    $1,000
  194. Jennifer Nichol 
    7 months ago
    $250
  195. Anonymous 
    7 months ago
    $100
  196. Anonymous 
    7 months ago
    $50
  197. Omar Serra 
    7 months ago
    $36
  198. Nadia Ghazzawieh 
    7 months ago
    $50
  199. Stefanie Niermann 
    7 months ago
    $50
  200. Shannon Albanese 
    7 months ago
    $500
  201. Monica Coenraads 
    7 months ago
    $100
  202. Tim Freeman 
    7 months ago
    $100

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