End Of Year Push 2018

Double Your Donation Match!

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In the last few days of 2018 we’re all thinking about where our year-end donations can have the biggest impact. At RSRT we can assure you that every dollar matters to our research. Our three-year strategic plan, Roadmap to a Cure, prioritizes four approaches that attack this devastating neurological disorder at its genetic core. Gene therapy, the lead approach, has advanced to an especially exciting stage. The biotech company, AveXis, informed by data generated by RSRT-supported researchers, is on track to launch the first human clinical trial in gene therapy for Rett in 2019. The goal is to profoundly impact the lives of the 350,000 children and adults who struggle with Rett Syndrome every moment of every day. This is urgent and personal for us at RSRT—we’re parents too.


If you haven’t made a gift to RSRT this year, or if you are moved to contribute more, we hope very much that you will. If you give before midnight on December 31, you’ll double your impact! The Tesler family has generously offered to match, dollar for dollar, every donation made by the end of the year up to a total of $50,000.


The research simply can’t happen without funding. This is a special opportunity to make your dollars work even harder for our research and for all our loved ones. Thank you from the bottom of our hearts.



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (203)

  1. Kate Foundation  
    2 weeks ago
    $25,000
  2. Walter Dolphin 
    2 weeks ago
    $100
  3. Angie Keesee 
    2 weeks ago
    $75
  4. Paul Brubaker 
    2 weeks ago
    $100
  5. Lynda Weingarz 
    2 weeks ago
    $800
  6. Amy Moore 
    2 weeks ago
    $50
  7. Carole Friedman 
    2 weeks ago
    $75
  8. William Schmidt 
    2 weeks ago
    $500
  9. Amber Marceau 
    2 weeks ago
    $50
  10. Valerie Adair 
    2 weeks ago
    $100
  11. Judith Wootton 
    2 weeks ago
    $100
  12. Lynne Winters 
    2 weeks ago
    $100
  13. William Lehnert 
    2 weeks ago
    $500
  14. Laura McMorrow 
    2 weeks ago
    $100
  15. J Daniel OBrien 
    2 weeks ago
    $25
  16. Marjie queler 
    2 weeks ago
    $25
  17. Marjie queler 
    2 weeks ago
    $25
  18. Savannah Kadri 
    2 weeks ago
    $100
  19. Greg Gershuny 
    2 weeks ago
    $100
  20. Sarah Chang 
    2 weeks ago
    $50
  21. Justin Endres 
    2 weeks ago
    $250
  22. Cecilia GO Pizii 
    2 weeks ago
    $50
  23. Bonnie Keck 
    2 weeks ago
    $100
  24. Hadas and Zvi Bar-On 
    2 weeks ago
    $1,000
  25. Minati Das 
    2 weeks ago
    $25
  26. Jodi Rosati 
    2 weeks ago
    $50
  27. Dru Collins 
    2 weeks ago
    $25
  28. Kati Gray 
    2 weeks ago
    $300
  29. Karen Ruddon 
    2 weeks ago
    $40
  30. Lise Lacroix 
    2 weeks ago
    $25
  31. Wayne Gershberg 
    2 weeks ago
    $50
  32. Carly Truitt 
    2 weeks ago
    $25
  33. Dan Strach 
    2 weeks ago
    $100
  34. Carl Sweeney 
    2 weeks ago
    $100
  35. Christina Gaylor 
    2 weeks ago
    $500
  36. Tracy Duffey 
    2 weeks ago
    $100
  37. Donna and Earl Bookman 
    2 weeks ago
    $100
  38. Dale Mize  
    2 weeks ago
    $100
  39. Shelly Manley 
    2 weeks ago
    $50
  40. Robin Willig 
    2 weeks ago
    $100
  41. Ozgur Huseyin 
    2 weeks ago
    $250
  42. Julia Robinson 
    2 weeks ago
    $250
  43. lynn Bossetti 
    2 weeks ago
    $100
  44. James Freeman 
    2 weeks ago
    $500
  45. James Allen 
    2 weeks ago
    $300
  46. Anonymous 
    2 weeks ago
    $100
  47. Morry Brown 
    2 weeks ago
    $500
  48. Michael Zdrodowski 
    2 weeks ago
    $50
  49. Michael Ramirez 
    2 weeks ago
    $100
  50. Kevin Baker 
    2 weeks ago
    $250
  51. Joaquin Bouzas 
    2 weeks ago
    $3,500
  52. Milena Djuric Nedeljkovic 
    2 weeks ago
    $500
  53. Debra Gilbert 
    2 weeks ago
    $100
  54. Anonymous 
    2 weeks ago
    $5,000
  55. Gohar Behdadnia 
    2 weeks ago
    $100
  56. Carole Benjamin 
    2 weeks ago
    $500
  57. Agnieszka Matusik 
    2 weeks ago
    $100
  58. Carol Varner 
    2 weeks ago
    $25
  59. Siegfried Öhrlein 
    2 weeks ago
    $50
  60. Agnese Regoli 
    2 weeks ago
    $50
  61. Jeffrey & Mary Lynn Miller 
    3 weeks ago
    $100
  62. John & Catherine Romano 
    3 weeks ago
    $100
  63. James & Ginele Grabowski 
    3 weeks ago
    $1,000
  64. Mariagrazia Alabrese 
    3 weeks ago
    $1,100
  65. Jonathan Woods 
    3 weeks ago
    $100
  66. Charles Hanrahan 
    3 weeks ago
    $500
  67. Anonymous 
    2 weeks ago
    $30
  68. Leah Sills 
    2 weeks ago
    $100
  69. michael/nora gray 
    2 weeks ago
    $1,000
  70. Julie Hunady 
    3 weeks ago
    $50
  71. Alissa Segal 
    2 weeks ago
    $250
  72. Gilda & David Press 
    2 weeks ago
    $100
  73. Josef Winiger 
    3 weeks ago
    $100
  74. Victor Rivera 
    3 weeks ago
    $250
  75. Richard Haines 
    3 weeks ago
    $250
  76. Cameron Driscoll 
    3 weeks ago
    $100
  77. Martha Bullock 
    3 weeks ago
    $25
  78. Lorre & Joshua Goldberg 
    3 weeks ago
    $500
  79. Danielle Ballantyne 
    3 weeks ago
    $50
  80. Heather & Peter Curry 
    3 weeks ago
    $100
  81. Arturo & Vicky Casillas 
    3 weeks ago
    $300
  82. Kenneth Lohsen 
    2 weeks ago
    $500
  83. Michele Kochoff Platt 
    2 weeks ago
    $50
  84. El Dia de Los Enduros  
    3 weeks ago
    $4,160
  85. Anonymous 
    2 weeks ago
    $50
  86. Shaine Gaspard 
    2 weeks ago
    $1,000
  87. G3Foundation  
    3 weeks ago
    $500
  88. Henrik Strandberg 
    2 weeks ago
    $100
  89. Miriam Burrows 
    2 weeks ago
    $25
  90. Gregory Hansen 
    2 weeks ago
    $500
  91. Anonymous 
    2 weeks ago
    $250
  92. Anonymous 
    2 weeks ago
    $25
  93. Christy Garner 
    2 weeks ago
    $100
  94. Suzie Branda 
    2 weeks ago
    $50
  95. Anonymous 
    2 weeks ago
    $100
  96. Joe & Josie Trippodo 
    2 weeks ago
    $350
  97. Melissa Metzfield 
    2 weeks ago
    $200
  98. Ilene Brotman 
    2 weeks ago
    $50
  99. John Kuwik 
    2 weeks ago
    $500
  100. Jennifer Facchinelli  
    2 weeks ago
    $500
  101. Gregory Edwards 
    3 weeks ago
    $50
  102. Nancy Bloch 
    3 weeks ago
    $25
  103. Sharon Lindow 
    3 weeks ago
    $50
  104. Eleni Demetriou 
    3 weeks ago
    $750
  105. Greg Edwards 
    3 weeks ago
    $100
  106. Shannon Karski 
    3 weeks ago
    $50
  107. Edrian Colina 
    3 weeks ago
    $25
  108. Joanne Ralston 
    3 weeks ago
    $100
  109. Michael McNamara 
    3 weeks ago
    $10
  110. Roberto Cerza 
    3 weeks ago
    $100
  111. Roberto Cerza 
    3 weeks ago
    $100
  112. Urs Winiger 
    3 weeks ago
    $25
  113. Barbara Vilar 
    3 weeks ago
    $500
  114. Laurence Hyman  
    3 weeks ago
    $250
  115. Mariela Eva Giampaoletti 
    3 weeks ago
    $250
  116. Dawn Reckinger 
    3 weeks ago
    $2,500
  117. michael teitelbaum 
    3 weeks ago
    $25
  118. Rafael and Malgorzata Severyn 
    3 weeks ago
    $500
  119. Heather Sweeney 
    3 weeks ago
    $50
  120. Nicole Gress 
    3 weeks ago
    $500
  121. Katrin Winiger 
    3 weeks ago
    $77
  122. Deborah Hallsey 
    3 weeks ago
    $2,500
  123. Anonymous 
    3 weeks ago
    $200
  124. Leigh Ann O\'Donnell 
    3 weeks ago
    $1,000
  125. Rosemarie Rosengarten 
    3 weeks ago
    $100
  126. Anonymous 
    3 weeks ago
    $25
  127. Savannah Kadri 
    3 weeks ago
    $400
  128. Lars Andreasson 
    3 weeks ago
    $250
  129. Hsien-Tse Tung 
    3 weeks ago
    $500
  130. Mikhail Sivozhelezov 
    3 weeks ago
    $50
  131. Robert Desoe 
    3 weeks ago
    $100
  132. Deborah Smith 
    3 weeks ago
    $25
  133. Julia & Frederic Weigl 
    3 weeks ago
    $100
  134. Joanne Holden 
    3 weeks ago
    $250
  135. Dejan Trbojevic 
    3 weeks ago
    $100
  136. Genevieve Laforet 
    3 weeks ago
    $500
  137. Linda Hearn 
    3 weeks ago
    $100
  138. Pierangela Aureggi 
    3 weeks ago
    $250
  139. Edoardo Uggeri 
    3 weeks ago
    $250
  140. Fulvio Uggeri 
    3 weeks ago
    $250
  141. Bruce Gordon 
    3 weeks ago
    $50
  142. Angela Tabat 
    3 weeks ago
    $100
  143. Martina Uggeri 
    3 weeks ago
    $250
  144. Gianna Del Col 
    3 weeks ago
    $23
  145. Donatella Marangon 
    3 weeks ago
    $56
  146. Lawrence Hsieh 
    3 weeks ago
    $125
  147. Patty Nocco Marceante 
    3 weeks ago
    $20
  148. Mike Stewart 
    3 weeks ago
    $50
  149. Michael Polizzotto 
    3 weeks ago
    $25
  150. Sandy Moberger 
    3 weeks ago
    $20
  151. Josh & Lauren Kearney 
    3 weeks ago
    $100
  152. Jonathan Lerro 
    3 weeks ago
    $10
  153. Vickie Gundrum 
    3 weeks ago
    $10
  154. Mary Case 
    3 weeks ago
    $50
  155. Diane Fulton 
    3 weeks ago
    $50
  156. Josh Kearney  
    3 weeks ago
    $50
  157. Greg Thomas 
    3 weeks ago
    $2,500
  158. Rebecca Zaja  
    3 weeks ago
    $500
  159. William Hartman 
    3 weeks ago
    $200
  160. Lawrence Marshall 
    3 weeks ago
    $500
  161. Jason Moore 
    3 weeks ago
    $100
  162. Dennis and Bonnie Adair 
    3 weeks ago
    $100
  163. Anonymous 
    3 weeks ago
    $25
  164. Bron and Debbie Milczewski 
    3 weeks ago
    $500
  165. Anonymous 
    3 weeks ago
    $500
  166. Anonymous 
    3 weeks ago
    $1
  167. Anonymous 
    3 weeks ago
    $1
  168. Anonymous 
    3 weeks ago
    $1
  169. Anonymous 
    3 weeks ago
    $1
  170. hugh hughson 
    3 weeks ago
    $50
  171. Mario Eleno 
    3 weeks ago
    $500
  172. Kathy Sheehan 
    3 weeks ago
    $100
  173. Barbara Streifel 
    3 weeks ago
    $50
  174. Anonymous 
    3 weeks ago
    $750
  175. Emily Michael 
    3 weeks ago
    $25
  176. Ricki Davis 
    3 weeks ago
    $100
  177. Jonathan and Naomi Rosenblatt 
    3 weeks ago
    $250
  178. Margaret Ashley Love 
    3 weeks ago
    $150
  179. Katherine Higgs 
    3 weeks ago
    $50
  180. Liz & Jon Easton 
    3 weeks ago
    $400
  181. Robert Arthurs 
    3 weeks ago
    $100
  182. Anonymous 
    3 weeks ago
    $50
  183. Diane Stevens 
    3 weeks ago
    $100
  184. Stephen Ozen 
    3 weeks ago
    $50
  185. Anonymous 
    3 weeks ago
    $100
  186. Allycia Sindorf  
    3 weeks ago
    $200
  187. Ruth Aubin 
    3 weeks ago
    $100
  188. karen medlin 
    3 weeks ago
    $25
  189. JoAnn Meaux 
    3 weeks ago
    $100
  190. Elizabeth Clarke 
    3 weeks ago
    $500
  191. Donald Coates 
    3 weeks ago
    $500
  192. Susan Foster 
    3 weeks ago
    $100
  193. Anonymous 
    3 weeks ago
    $100
  194. Donna Boothman 
    3 weeks ago
    $1,000
  195. Jennifer Nichol 
    3 weeks ago
    $250
  196. Anonymous 
    3 weeks ago
    $100
  197. Anonymous 
    3 weeks ago
    $50
  198. Omar Serra 
    3 weeks ago
    $36
  199. Nadia Ghazzawieh 
    3 weeks ago
    $50
  200. Stefanie Niermann 
    3 weeks ago
    $50
  201. Shannon Albanese 
    3 weeks ago
    $500
  202. Monica Coenraads 
    3 weeks ago
    $100
  203. Tim Freeman 
    3 weeks ago
    $100

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