A Cure for Christmas & a Cure for the New Year

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This is the 4th year & fundraising campaign my wife, Brenna, and I have coordinated since our beautiful daughter Gisele’s diagnosis of Rett Syndrome in September 2014.

First and foremost, we want to extend our most sincere gratitude to everyone that has donated in years past, many of you who have supported the cause each year. Please know that your donations now and from years past ARE making a huge difference in the research to cure and treat this life-changing neurological syndrome.

Secondly, since Rett Syndrome is a “rare disease” that affects only 1 in 10,000 females (approx. 350,000 worldwide), awareness and subsequently funding for research has been underfunded for too long especially given the severity of Rett and the lifelong challenges and costs that women and their families must confront. Making fundraising campaigns like this even more crucial is the "Tax Cuts and Jobs Act" bill just signed by the President cuts in HALF the "Orphan Drug Tax Credit", which helps incentivize for-profit companies to research/create drugs or therapies for rare diseases. Thus, EVERY DOLLAR donated helps.

We're making progress, but we need $$$ to get to the finish line sooner. Help us cure our beautiful daughter Gisele, and over 350,000 girls and women like her.

Thank you!

Mike (MJ) & Brenna Johnson

P.S. For every dollar donated, we will match 25% up to $50,000 (= match of $12,500).

P.P.S. RSRT’s overhead is incredibly low, 95-96% of every dollar raised goes DIRECTLY to fund research


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (193)

  1. Newmark & Company Real Estate 
    1 month ago
    $2,000
  2. CBRE Matching Gifts 
    2 months ago
    $1,250
  3. Ben Heineman 
    4 months ago
    $2,500
  4. Perry Schonfeld  
    4 months ago
    $1,000
  5. Lynn Knox 
    4 months ago
    $100
  6. Mark Raggio 
    5 months ago
    $100
  7. Jim Koenig 
    5 months ago
    $250
  8. Michael Memoly 
    6 months ago
    $500
  9. Thomas Rutherford 
    6 months ago
    $300
  10. Don Shaver 
    6 months ago
    $1,000
  11. Anonymous 
    6 months ago
    $250
  12. Belling Family Foundation 
    6 months ago
    $2,500
  13. Farah F 
    6 months ago
    $50
  14. John Drachman 
    6 months ago
    $250
  15. Bill Plautz 
    6 months ago
    $500
  16. Good Shepherd's Heart Ministry 
    6 months ago
    $1,000
  17. Barbara & Robert Hollmann 
    6 months ago
    $50
  18. Tina & David Thomas 
    6 months ago
    $5,000
  19. Nick Spatafore 
    6 months ago
    $100
  20. Christopher Bourne 
    6 months ago
    $100
  21. Kristine H 
    6 months ago
    $75
  22. Anonymous 
    6 months ago
    $100
  23. milo lipson 
    6 months ago
    $100
  24. Anonymous 
    6 months ago
    $100
  25. Todd Tydlaska 
    6 months ago
    $250
  26. Barbara Perrier 
    6 months ago
    $200
  27. Darla Longo 
    6 months ago
    $500
  28. Sean Ward 
    6 months ago
    $500
  29. cameron merrill 
    6 months ago
    $100
  30. David Wensley 
    6 months ago
    $500
  31. Anonymous 
    7 months ago
    $250
  32. Eloy Covarrubias 
    7 months ago
    $2,500
  33. John B. Neglia 
    7 months ago
    $500
  34. Anonymous 
    7 months ago
    $500
  35. Lyndsay and Roberto Avalos 
    7 months ago
    $50
  36. Susan Johnson 
    7 months ago
    $250
  37. Anonymous 
    7 months ago
    $2,500
  38. Danielle Ballantyne 
    7 months ago
    $50
  39. Susan Borst 
    7 months ago
    $250
  40. Monica Coenraads 
    7 months ago
    $100
  41. Paul & Amy Pedersen 
    7 months ago
    $50
  42. Hilary Isacke 
    7 months ago
    $1,000
  43. James Abbott 
    7 months ago
    $500
  44. Dennis Roy 
    7 months ago
    $250
  45. Timothy Sullivan 
    7 months ago
    $250
  46. Rob Lujan 
    7 months ago
    $100
  47. Chuck Littell 
    7 months ago
    $500
  48. Matt Mexia 
    7 months ago
    $250
  49. William Thormahlen 
    7 months ago
    $2,000
  50. Travis Haining 
    7 months ago
    $1,000
  51. Paul Caputo 
    7 months ago
    $100
  52. Anonymous 
    7 months ago
    $250
  53. Stacy Paek 
    7 months ago
    $500
  54. Mike & Brenna Johnson 
    7 months ago
    $12,500
  55. Jett McCormick 
    7 months ago
    $25
  56. Tim Farahnik 
    7 months ago
    $500
  57. Cristina Johnson 
    7 months ago
    $100
  58. Angela McCabe 
    7 months ago
    $100
  59. Alison Shimizu 
    7 months ago
    $100
  60. Denise Donofrio 
    7 months ago
    $50
  61. Charles Belden 
    7 months ago
    $250
  62. Chris Burns 
    7 months ago
    $100
  63. Jacob Swan 
    7 months ago
    $300
  64. David Prior 
    7 months ago
    $200
  65. Karen Penhall 
    7 months ago
    $100
  66. Reno Jon 
    7 months ago
    $100
  67. K.C. Scheipe  
    7 months ago
    $250
  68. Patrick Schlehuebr 
    7 months ago
    $500
  69. Mark Jerue 
    7 months ago
    $250
  70. Anonymous 
    7 months ago
    $250
  71. Michael Hartel 
    7 months ago
    $100
  72. Jason Hines  
    7 months ago
    $250
  73. John McArtor 
    7 months ago
    $1,000
  74. Eric Brown 
    7 months ago
    $500
  75. Daniel Williams 
    7 months ago
    $100
  76. seth davenport 
    7 months ago
    $300
  77. david dowd 
    7 months ago
    $200
  78. Jeffrey Kernochan 
    7 months ago
    $100
  79. Zachary Niles 
    7 months ago
    $500
  80. Rooney Daschbach 
    7 months ago
    $200
  81. Paul; Sablock 
    7 months ago
    $250
  82. Eric Daschbach 
    7 months ago
    $250
  83. Anonymous 
    7 months ago
    $50
  84. Michael Hefner 
    7 months ago
    $100
  85. Mitch Zehner 
    7 months ago
    $300
  86. Peter McWilliams 
    7 months ago
    $1,000
  87. Taylor Meyer 
    7 months ago
    $1,000
  88. Andrew Lara 
    7 months ago
    $500
  89. Janet Siemsen 
    7 months ago
    $500
  90. Rick John 
    7 months ago
    $500
  91. Martha Anne Woodson 
    7 months ago
    $100
  92. Dan Floriani 
    7 months ago
    $100
  93. Christina Gruneisen 
    7 months ago
    $50
  94. Gage Walter 
    7 months ago
    $50
  95. Harley Smith 
    7 months ago
    $250
  96. Dana and Joseph Cox 
    7 months ago
    $1,000
  97. Anonymous 
    7 months ago
    $250
  98. Anonymous 
    7 months ago
    $200
  99. Perry Schonfeld 
    7 months ago
    $1,000
  100. Ellen and Richard Huberman 
    7 months ago
    $50
  101. Adam Edwards 
    7 months ago
    $500
  102. Donna Shean 
    7 months ago
    $50
  103. beth fisher 
    7 months ago
    $250
  104. Robert Hubbard 
    7 months ago
    $250
  105. Anonymous 
    7 months ago
    $100
  106. Nando Parete 
    7 months ago
    $250
  107. Anonymous 
    7 months ago
    $5,000
  108. Frank Schulz 
    7 months ago
    $200
  109. JOSEPH FINNIGAN 
    7 months ago
    $500
  110. peter castleton 
    7 months ago
    $100
  111. Andrea Leslie 
    7 months ago
    $100
  112. Anonymous 
    7 months ago
    $1,240
  113. scott perry 
    7 months ago
    $100
  114. Melanie Colbert 
    7 months ago
    $250
  115. John Garrigan 
    7 months ago
    $1,000
  116. Garrett & Kirsten Macklin 
    7 months ago
    $50
  117. John Whitlock 
    7 months ago
    $100
  118. Kristin Bendt 
    7 months ago
    $50
  119. Michael Bouma 
    7 months ago
    $250
  120. Kim Cart 
    7 months ago
    $40
  121. Linda Luo 
    7 months ago
    $100
  122. Anonymous 
    7 months ago
    $100
  123. Ian Britton 
    7 months ago
    $100
  124. William Kim 
    7 months ago
    $100
  125. Robin Dodson 
    7 months ago
    $500
  126. Susan Johnson 
    7 months ago
    $1,986
  127. Mark Zorn 
    7 months ago
    $100
  128. Michael Vernick 
    7 months ago
    $100
  129. Anna Hetzner 
    7 months ago
    $50
  130. Zachary Sakowski 
    7 months ago
    $250
  131. David & Shelly Clark 
    7 months ago
    $500
  132. Jonathan Carley 
    7 months ago
    $100
  133. John McMillan 
    7 months ago
    $500
  134. Ryan Velasquez 
    7 months ago
    $50
  135. Claudine Gamboa 
    7 months ago
    $100
  136. Michael Williams 
    7 months ago
    $500
  137. LINDSEY THOMAS 
    7 months ago
    $1,000
  138. michael margileth 
    7 months ago
    $500
  139. viet nguyen 
    7 months ago
    $100
  140. Tim Howard 
    7 months ago
    $1,000
  141. Jeremy Johnson 
    7 months ago
    $250
  142. Mark Campbell 
    7 months ago
    $100
  143. Anonymous 
    7 months ago
    $500
  144. Brian Okrent 
    7 months ago
    $100
  145. Anonymous 
    7 months ago
    $100
  146. Mark Kegans 
    7 months ago
    $200
  147. Richard Mendelson 
    7 months ago
    $3,000
  148. Anonymous 
    7 months ago
    $1,000
  149. Tanya Leung 
    7 months ago
    $50
  150. Jeff Smith 
    7 months ago
    $200
  151. Alice Wilson 
    7 months ago
    $100
  152. Patrick Wood 
    7 months ago
    $250
  153. Stephen Sprenger 
    7 months ago
    $500
  154. Steve and Colleen Bellitti 
    8 months ago
    $200
  155. Jeff Sanita 
    8 months ago
    $250
  156. Ashlee Meese 
    8 months ago
    $1,000
  157. Michelle & Ryan German 
    8 months ago
    $50
  158. Forest Wilkerson 
    8 months ago
    $100
  159. stefan pastor 
    8 months ago
    $250
  160. Cameron Driscoll 
    8 months ago
    $200
  161. Lawrence Null 
    8 months ago
    $250
  162. Wesley Talich 
    8 months ago
    $100
  163. Clyde Stauff 
    8 months ago
    $200
  164. Stephen Wagner 
    8 months ago
    $250
  165. Edward Hernandez 
    8 months ago
    $100
  166. Bob Kubichek 
    8 months ago
    $100
  167. Anonymous 
    8 months ago
    $1,500
  168. Baker Morphy 
    8 months ago
    $100
  169. Michael Coppola 
    8 months ago
    $500
  170.  
    8 months ago
    $250
  171. Jeffrey Butterworth  
    8 months ago
    $15
  172. Jennifer Jones 
    8 months ago
    $100
  173. Anonymous 
    8 months ago
    $50
  174. richard ellison 
    8 months ago
    $250
  175. Tom & Allison Motherway 
    8 months ago
    $1,000
  176. Adam & Tammie Cox 
    8 months ago
    $100
  177. Matthew Johnson 
    8 months ago
    $25
  178. Meghan Nielsen 
    8 months ago
    $50
  179. Anonymous 
    8 months ago
    $30
  180. Alison & Mike Vukovich 
    8 months ago
    $250
  181. Pam Wilson 
    8 months ago
    $100
  182. Anonymous 
    8 months ago
    $100
  183. John Seoane 
    8 months ago
    $1,000
  184. Galina Krivitsky 
    8 months ago
    $250
  185. Miriam Otero 
    8 months ago
    $100
  186. Valerie Biswas 
    8 months ago
    $20
  187. donna clark 
    8 months ago
    $50
  188. Jane Nettleton 
    8 months ago
    $50
  189. Gina Welc 
    8 months ago
    $50
  190. Susan Johnson 
    8 months ago
    $1,056
  191. Anonymous 
    8 months ago
    $100
  192. Deanna and Mel Horst 
    8 months ago
    $1,250
  193. Ryan Gallagher 
    7 months ago
    $250

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