A Cure for Christmas & a Cure for the New Year

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This is the 4th year & fundraising campaign my wife, Brenna, and I have coordinated since our beautiful daughter Gisele’s diagnosis of Rett Syndrome in September 2014.

First and foremost, we want to extend our most sincere gratitude to everyone that has donated in years past, many of you who have supported the cause each year. Please know that your donations now and from years past ARE making a huge difference in the research to cure and treat this life-changing neurological syndrome.

Secondly, since Rett Syndrome is a “rare disease” that affects only 1 in 10,000 females (approx. 350,000 worldwide), awareness and subsequently funding for research has been underfunded for too long especially given the severity of Rett and the lifelong challenges and costs that women and their families must confront. Making fundraising campaigns like this even more crucial is the "Tax Cuts and Jobs Act" bill just signed by the President cuts in HALF the "Orphan Drug Tax Credit", which helps incentivize for-profit companies to research/create drugs or therapies for rare diseases. Thus, EVERY DOLLAR donated helps.

We're making progress, but we need $$$ to get to the finish line sooner. Help us cure our beautiful daughter Gisele, and over 350,000 girls and women like her.

Thank you!

Mike (MJ) & Brenna Johnson

P.S. For every dollar donated, we will match 25% up to $50,000 (= match of $12,500).

P.P.S. RSRT’s overhead is incredibly low, 95-96% of every dollar raised goes DIRECTLY to fund research


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (193)

  1. Newmark & Company Real Estate 
    7 months ago
    $2,000
  2. CBRE Matching Gifts 
    8 months ago
    $1,250
  3. Ben Heineman 
    10 months ago
    $2,500
  4. Perry Schonfeld  
    10 months ago
    $1,000
  5. Lynn Knox 
    10 months ago
    $100
  6. Mark Raggio 
    11 months ago
    $100
  7. Jim Koenig 
    11 months ago
    $250
  8. Michael Memoly 
    11 months ago
    $500
  9. Thomas Rutherford 
    11 months ago
    $300
  10. Don Shaver 
    12 months ago
    $1,000
  11. Anonymous 
    12 months ago
    $250
  12. Belling Family Foundation 
    12 months ago
    $2,500
  13. Farah F 
    12 months ago
    $50
  14. John Drachman 
    12 months ago
    $250
  15. Bill Plautz 
    12 months ago
    $500
  16. Good Shepherd's Heart Ministry 
    12 months ago
    $1,000
  17. Barbara & Robert Hollmann 
    12 months ago
    $50
  18. Tina & David Thomas 
    1 year ago
    $5,000
  19. Nick Spatafore 
    1 year ago
    $100
  20. Christopher Bourne 
    1 year ago
    $100
  21. Kristine H 
    1 year ago
    $75
  22. Anonymous 
    1 year ago
    $100
  23. milo lipson 
    1 year ago
    $100
  24. Anonymous 
    1 year ago
    $100
  25. Todd Tydlaska 
    1 year ago
    $250
  26. Barbara Perrier 
    1 year ago
    $200
  27. Darla Longo 
    1 year ago
    $500
  28. Sean Ward 
    1 year ago
    $500
  29. cameron merrill 
    1 year ago
    $100
  30. David Wensley 
    1 year ago
    $500
  31. Anonymous 
    1 year ago
    $250
  32. Eloy Covarrubias 
    1 year ago
    $2,500
  33. John B. Neglia 
    1 year ago
    $500
  34. Anonymous 
    1 year ago
    $500
  35. Lyndsay and Roberto Avalos 
    1 year ago
    $50
  36. Susan Johnson 
    1 year ago
    $250
  37. Anonymous 
    1 year ago
    $2,500
  38. Danielle Ballantyne 
    1 year ago
    $50
  39. Susan Borst 
    1 year ago
    $250
  40. Monica Coenraads 
    1 year ago
    $100
  41. Paul & Amy Pedersen 
    1 year ago
    $50
  42. Hilary Isacke 
    1 year ago
    $1,000
  43. James Abbott 
    1 year ago
    $500
  44. Dennis Roy 
    1 year ago
    $250
  45. Timothy Sullivan 
    1 year ago
    $250
  46. Rob Lujan 
    1 year ago
    $100
  47. Chuck Littell 
    1 year ago
    $500
  48. Matt Mexia 
    1 year ago
    $250
  49. William Thormahlen 
    1 year ago
    $2,000
  50. Travis Haining 
    1 year ago
    $1,000
  51. Paul Caputo 
    1 year ago
    $100
  52. Anonymous 
    1 year ago
    $250
  53. Stacy Paek 
    1 year ago
    $500
  54. Mike & Brenna Johnson 
    1 year ago
    $12,500
  55. Jett McCormick 
    1 year ago
    $25
  56. Tim Farahnik 
    1 year ago
    $500
  57. Cristina Johnson 
    1 year ago
    $100
  58. Angela McCabe 
    1 year ago
    $100
  59. Alison Shimizu 
    1 year ago
    $100
  60. Denise Donofrio 
    1 year ago
    $50
  61. Charles Belden 
    1 year ago
    $250
  62. Chris Burns 
    1 year ago
    $100
  63. Jacob Swan 
    1 year ago
    $300
  64. David Prior 
    1 year ago
    $200
  65. Karen Penhall 
    1 year ago
    $100
  66. Reno Jon 
    1 year ago
    $100
  67. K.C. Scheipe  
    1 year ago
    $250
  68. Patrick Schlehuebr 
    1 year ago
    $500
  69. Mark Jerue 
    1 year ago
    $250
  70. Anonymous 
    1 year ago
    $250
  71. Michael Hartel 
    1 year ago
    $100
  72. Jason Hines  
    1 year ago
    $250
  73. John McArtor 
    1 year ago
    $1,000
  74. Eric Brown 
    1 year ago
    $500
  75. Daniel Williams 
    1 year ago
    $100
  76. seth davenport 
    1 year ago
    $300
  77. david dowd 
    1 year ago
    $200
  78. Jeffrey Kernochan 
    1 year ago
    $100
  79. Zachary Niles 
    1 year ago
    $500
  80. Rooney Daschbach 
    1 year ago
    $200
  81. Paul; Sablock 
    1 year ago
    $250
  82. Eric Daschbach 
    1 year ago
    $250
  83. Anonymous 
    1 year ago
    $50
  84. Michael Hefner 
    1 year ago
    $100
  85. Mitch Zehner 
    1 year ago
    $300
  86. Peter McWilliams 
    1 year ago
    $1,000
  87. Taylor Meyer 
    1 year ago
    $1,000
  88. Andrew Lara 
    1 year ago
    $500
  89. Janet Siemsen 
    1 year ago
    $500
  90. Rick John 
    1 year ago
    $500
  91. Martha Anne Woodson 
    1 year ago
    $100
  92. Dan Floriani 
    1 year ago
    $100
  93. Christina Gruneisen 
    1 year ago
    $50
  94. Gage Walter 
    1 year ago
    $50
  95. Harley Smith 
    1 year ago
    $250
  96. Dana and Joseph Cox 
    1 year ago
    $1,000
  97. Anonymous 
    1 year ago
    $250
  98. Anonymous 
    1 year ago
    $200
  99. Perry Schonfeld 
    1 year ago
    $1,000
  100. Ellen and Richard Huberman 
    1 year ago
    $50
  101. Adam Edwards 
    1 year ago
    $500
  102. Donna Shean 
    1 year ago
    $50
  103. beth fisher 
    1 year ago
    $250
  104. Robert Hubbard 
    1 year ago
    $250
  105. Anonymous 
    1 year ago
    $100
  106. Nando Parete 
    1 year ago
    $250
  107. Anonymous 
    1 year ago
    $5,000
  108. Frank Schulz 
    1 year ago
    $200
  109. JOSEPH FINNIGAN 
    1 year ago
    $500
  110. peter castleton 
    1 year ago
    $100
  111. Andrea Leslie 
    1 year ago
    $100
  112. Anonymous 
    1 year ago
    $1,240
  113. scott perry 
    1 year ago
    $100
  114. Melanie Colbert 
    1 year ago
    $250
  115. John Garrigan 
    1 year ago
    $1,000
  116. Garrett & Kirsten Macklin 
    1 year ago
    $50
  117. John Whitlock 
    1 year ago
    $100
  118. Kristin Bendt 
    1 year ago
    $50
  119. Michael Bouma 
    1 year ago
    $250
  120. Kim Cart 
    1 year ago
    $40
  121. Linda Luo 
    1 year ago
    $100
  122. Anonymous 
    1 year ago
    $100
  123. Ian Britton 
    1 year ago
    $100
  124. William Kim 
    1 year ago
    $100
  125. Robin Dodson 
    1 year ago
    $500
  126. Susan Johnson 
    1 year ago
    $1,986
  127. Mark Zorn 
    1 year ago
    $100
  128. Michael Vernick 
    1 year ago
    $100
  129. Anna Hetzner 
    1 year ago
    $50
  130. Zachary Sakowski 
    1 year ago
    $250
  131. David & Shelly Clark 
    1 year ago
    $500
  132. Jonathan Carley 
    1 year ago
    $100
  133. John McMillan 
    1 year ago
    $500
  134. Ryan Velasquez 
    1 year ago
    $50
  135. Claudine Gamboa 
    1 year ago
    $100
  136. Michael Williams 
    1 year ago
    $500
  137. LINDSEY THOMAS 
    1 year ago
    $1,000
  138. michael margileth 
    1 year ago
    $500
  139. viet nguyen 
    1 year ago
    $100
  140. Tim Howard 
    1 year ago
    $1,000
  141. Jeremy Johnson 
    1 year ago
    $250
  142. Mark Campbell 
    1 year ago
    $100
  143. Anonymous 
    1 year ago
    $500
  144. Brian Okrent 
    1 year ago
    $100
  145. Anonymous 
    1 year ago
    $100
  146. Mark Kegans 
    1 year ago
    $200
  147. Richard Mendelson 
    1 year ago
    $3,000
  148. Anonymous 
    1 year ago
    $1,000
  149. Tanya Leung 
    1 year ago
    $50
  150. Jeff Smith 
    1 year ago
    $200
  151. Alice Wilson 
    1 year ago
    $100
  152. Patrick Wood 
    1 year ago
    $250
  153. Stephen Sprenger 
    1 year ago
    $500
  154. Steve and Colleen Bellitti 
    1 year ago
    $200
  155. Jeff Sanita 
    1 year ago
    $250
  156. Ashlee Meese 
    1 year ago
    $1,000
  157. Michelle & Ryan German 
    1 year ago
    $50
  158. Forest Wilkerson 
    1 year ago
    $100
  159. stefan pastor 
    1 year ago
    $250
  160. Cameron Driscoll 
    1 year ago
    $200
  161. Lawrence Null 
    1 year ago
    $250
  162. Wesley Talich 
    1 year ago
    $100
  163. Clyde Stauff 
    1 year ago
    $200
  164. Stephen Wagner 
    1 year ago
    $250
  165. Edward Hernandez 
    1 year ago
    $100
  166. Bob Kubichek 
    1 year ago
    $100
  167. Anonymous 
    1 year ago
    $1,500
  168. Baker Morphy 
    1 year ago
    $100
  169. Michael Coppola 
    1 year ago
    $500
  170.  
    1 year ago
    $250
  171. Jeffrey Butterworth  
    1 year ago
    $15
  172. Jennifer Jones 
    1 year ago
    $100
  173. Anonymous 
    1 year ago
    $50
  174. richard ellison 
    1 year ago
    $250
  175. Tom & Allison Motherway 
    1 year ago
    $1,000
  176. Adam & Tammie Cox 
    1 year ago
    $100
  177. Matthew Johnson 
    1 year ago
    $25
  178. Meghan Nielsen 
    1 year ago
    $50
  179. Anonymous 
    1 year ago
    $30
  180. Alison & Mike Vukovich 
    1 year ago
    $250
  181. Pam Wilson 
    1 year ago
    $100
  182. Anonymous 
    1 year ago
    $100
  183. John Seoane 
    1 year ago
    $1,000
  184. Galina Krivitsky 
    1 year ago
    $250
  185. Miriam Otero 
    1 year ago
    $100
  186. Valerie Biswas 
    1 year ago
    $20
  187. donna clark 
    1 year ago
    $50
  188. Jane Nettleton 
    1 year ago
    $50
  189. Gina Welc 
    1 year ago
    $50
  190. Susan Johnson 
    1 year ago
    $1,056
  191. Anonymous 
    1 year ago
    $100
  192. Deanna and Mel Horst 
    1 year ago
    $1,250
  193. Ryan Gallagher 
    1 year ago
    $250

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