A Cure for Christmas & a Cure for the New Year

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This is the 4th year & fundraising campaign my wife, Brenna, and I have coordinated since our beautiful daughter Gisele’s diagnosis of Rett Syndrome in September 2014.

First and foremost, we want to extend our most sincere gratitude to everyone that has donated in years past, many of you who have supported the cause each year. Please know that your donations now and from years past ARE making a huge difference in the research to cure and treat this life-changing neurological syndrome.

Secondly, since Rett Syndrome is a “rare disease” that affects only 1 in 10,000 females (approx. 350,000 worldwide), awareness and subsequently funding for research has been underfunded for too long especially given the severity of Rett and the lifelong challenges and costs that women and their families must confront. Making fundraising campaigns like this even more crucial is the "Tax Cuts and Jobs Act" bill just signed by the President cuts in HALF the "Orphan Drug Tax Credit", which helps incentivize for-profit companies to research/create drugs or therapies for rare diseases. Thus, EVERY DOLLAR donated helps.

We're making progress, but we need $$$ to get to the finish line sooner. Help us cure our beautiful daughter Gisele, and over 350,000 girls and women like her.

Thank you!

Mike (MJ) & Brenna Johnson

P.S. For every dollar donated, we will match 25% up to $50,000 (= match of $12,500).

P.P.S. RSRT’s overhead is incredibly low, 95-96% of every dollar raised goes DIRECTLY to fund research


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (193)

  1. Newmark & Company Real Estate 
    5 months ago
    $2,000
  2. CBRE Matching Gifts 
    6 months ago
    $1,250
  3. Ben Heineman 
    8 months ago
    $2,500
  4. Perry Schonfeld  
    8 months ago
    $1,000
  5. Lynn Knox 
    8 months ago
    $100
  6. Mark Raggio 
    9 months ago
    $100
  7. Jim Koenig 
    9 months ago
    $250
  8. Michael Memoly 
    9 months ago
    $500
  9. Thomas Rutherford 
    9 months ago
    $300
  10. Don Shaver 
    9 months ago
    $1,000
  11. Anonymous 
    9 months ago
    $250
  12. Belling Family Foundation 
    10 months ago
    $2,500
  13. Farah F 
    10 months ago
    $50
  14. John Drachman 
    10 months ago
    $250
  15. Bill Plautz 
    10 months ago
    $500
  16. Good Shepherd's Heart Ministry 
    10 months ago
    $1,000
  17. Barbara & Robert Hollmann 
    10 months ago
    $50
  18. Tina & David Thomas 
    10 months ago
    $5,000
  19. Nick Spatafore 
    10 months ago
    $100
  20. Christopher Bourne 
    10 months ago
    $100
  21. Kristine H 
    10 months ago
    $75
  22. Anonymous 
    10 months ago
    $100
  23. milo lipson 
    10 months ago
    $100
  24. Anonymous 
    10 months ago
    $100
  25. Todd Tydlaska 
    10 months ago
    $250
  26. Barbara Perrier 
    10 months ago
    $200
  27. Darla Longo 
    10 months ago
    $500
  28. Sean Ward 
    10 months ago
    $500
  29. cameron merrill 
    10 months ago
    $100
  30. David Wensley 
    10 months ago
    $500
  31. Anonymous 
    10 months ago
    $250
  32. Eloy Covarrubias 
    10 months ago
    $2,500
  33. John B. Neglia 
    10 months ago
    $500
  34. Anonymous 
    10 months ago
    $500
  35. Lyndsay and Roberto Avalos 
    10 months ago
    $50
  36. Susan Johnson 
    10 months ago
    $250
  37. Anonymous 
    11 months ago
    $2,500
  38. Danielle Ballantyne 
    11 months ago
    $50
  39. Susan Borst 
    11 months ago
    $250
  40. Monica Coenraads 
    11 months ago
    $100
  41. Paul & Amy Pedersen 
    11 months ago
    $50
  42. Hilary Isacke 
    11 months ago
    $1,000
  43. James Abbott 
    11 months ago
    $500
  44. Dennis Roy 
    11 months ago
    $250
  45. Timothy Sullivan 
    11 months ago
    $250
  46. Rob Lujan 
    11 months ago
    $100
  47. Chuck Littell 
    11 months ago
    $500
  48. Matt Mexia 
    11 months ago
    $250
  49. William Thormahlen 
    11 months ago
    $2,000
  50. Travis Haining 
    11 months ago
    $1,000
  51. Paul Caputo 
    11 months ago
    $100
  52. Anonymous 
    11 months ago
    $250
  53. Stacy Paek 
    11 months ago
    $500
  54. Mike & Brenna Johnson 
    11 months ago
    $12,500
  55. Jett McCormick 
    11 months ago
    $25
  56. Tim Farahnik 
    11 months ago
    $500
  57. Cristina Johnson 
    11 months ago
    $100
  58. Angela McCabe 
    11 months ago
    $100
  59. Alison Shimizu 
    11 months ago
    $100
  60. Denise Donofrio 
    11 months ago
    $50
  61. Charles Belden 
    11 months ago
    $250
  62. Chris Burns 
    11 months ago
    $100
  63. Jacob Swan 
    11 months ago
    $300
  64. David Prior 
    11 months ago
    $200
  65. Karen Penhall 
    11 months ago
    $100
  66. Reno Jon 
    11 months ago
    $100
  67. K.C. Scheipe  
    11 months ago
    $250
  68. Patrick Schlehuebr 
    11 months ago
    $500
  69. Mark Jerue 
    11 months ago
    $250
  70. Anonymous 
    11 months ago
    $250
  71. Michael Hartel 
    11 months ago
    $100
  72. Jason Hines  
    11 months ago
    $250
  73. John McArtor 
    11 months ago
    $1,000
  74. Eric Brown 
    11 months ago
    $500
  75. Daniel Williams 
    11 months ago
    $100
  76. seth davenport 
    11 months ago
    $300
  77. david dowd 
    11 months ago
    $200
  78. Jeffrey Kernochan 
    11 months ago
    $100
  79. Zachary Niles 
    11 months ago
    $500
  80. Rooney Daschbach 
    11 months ago
    $200
  81. Paul; Sablock 
    11 months ago
    $250
  82. Eric Daschbach 
    11 months ago
    $250
  83. Anonymous 
    11 months ago
    $50
  84. Michael Hefner 
    11 months ago
    $100
  85. Mitch Zehner 
    11 months ago
    $300
  86. Peter McWilliams 
    11 months ago
    $1,000
  87. Taylor Meyer 
    11 months ago
    $1,000
  88. Andrew Lara 
    11 months ago
    $500
  89. Janet Siemsen 
    11 months ago
    $500
  90. Rick John 
    11 months ago
    $500
  91. Martha Anne Woodson 
    11 months ago
    $100
  92. Dan Floriani 
    11 months ago
    $100
  93. Christina Gruneisen 
    11 months ago
    $50
  94. Gage Walter 
    11 months ago
    $50
  95. Harley Smith 
    11 months ago
    $250
  96. Dana and Joseph Cox 
    11 months ago
    $1,000
  97. Anonymous 
    11 months ago
    $250
  98. Anonymous 
    11 months ago
    $200
  99. Perry Schonfeld 
    11 months ago
    $1,000
  100. Ellen and Richard Huberman 
    11 months ago
    $50
  101. Adam Edwards 
    11 months ago
    $500
  102. Donna Shean 
    11 months ago
    $50
  103. beth fisher 
    11 months ago
    $250
  104. Robert Hubbard 
    11 months ago
    $250
  105. Anonymous 
    11 months ago
    $100
  106. Nando Parete 
    11 months ago
    $250
  107. Anonymous 
    11 months ago
    $5,000
  108. Frank Schulz 
    11 months ago
    $200
  109. JOSEPH FINNIGAN 
    11 months ago
    $500
  110. peter castleton 
    11 months ago
    $100
  111. Andrea Leslie 
    11 months ago
    $100
  112. Anonymous 
    11 months ago
    $1,240
  113. scott perry 
    11 months ago
    $100
  114. Melanie Colbert 
    11 months ago
    $250
  115. John Garrigan 
    11 months ago
    $1,000
  116. Garrett & Kirsten Macklin 
    11 months ago
    $50
  117. John Whitlock 
    11 months ago
    $100
  118. Kristin Bendt 
    11 months ago
    $50
  119. Michael Bouma 
    11 months ago
    $250
  120. Kim Cart 
    11 months ago
    $40
  121. Linda Luo 
    11 months ago
    $100
  122. Anonymous 
    11 months ago
    $100
  123. Ian Britton 
    11 months ago
    $100
  124. William Kim 
    11 months ago
    $100
  125. Robin Dodson 
    11 months ago
    $500
  126. Susan Johnson 
    11 months ago
    $1,986
  127. Mark Zorn 
    11 months ago
    $100
  128. Michael Vernick 
    11 months ago
    $100
  129. Anna Hetzner 
    11 months ago
    $50
  130. Zachary Sakowski 
    11 months ago
    $250
  131. David & Shelly Clark 
    11 months ago
    $500
  132. Jonathan Carley 
    11 months ago
    $100
  133. John McMillan 
    11 months ago
    $500
  134. Ryan Velasquez 
    11 months ago
    $50
  135. Claudine Gamboa 
    11 months ago
    $100
  136. Michael Williams 
    11 months ago
    $500
  137. LINDSEY THOMAS 
    11 months ago
    $1,000
  138. michael margileth 
    11 months ago
    $500
  139. viet nguyen 
    11 months ago
    $100
  140. Tim Howard 
    11 months ago
    $1,000
  141. Jeremy Johnson 
    11 months ago
    $250
  142. Mark Campbell 
    11 months ago
    $100
  143. Anonymous 
    11 months ago
    $500
  144. Brian Okrent 
    11 months ago
    $100
  145. Anonymous 
    11 months ago
    $100
  146. Mark Kegans 
    11 months ago
    $200
  147. Richard Mendelson 
    11 months ago
    $3,000
  148. Anonymous 
    11 months ago
    $1,000
  149. Tanya Leung 
    11 months ago
    $50
  150. Jeff Smith 
    11 months ago
    $200
  151. Alice Wilson 
    11 months ago
    $100
  152. Patrick Wood 
    11 months ago
    $250
  153. Stephen Sprenger 
    11 months ago
    $500
  154. Steve and Colleen Bellitti 
    11 months ago
    $200
  155. Jeff Sanita 
    11 months ago
    $250
  156. Ashlee Meese 
    11 months ago
    $1,000
  157. Michelle & Ryan German 
    11 months ago
    $50
  158. Forest Wilkerson 
    11 months ago
    $100
  159. stefan pastor 
    11 months ago
    $250
  160. Cameron Driscoll 
    11 months ago
    $200
  161. Lawrence Null 
    11 months ago
    $250
  162. Wesley Talich 
    11 months ago
    $100
  163. Clyde Stauff 
    11 months ago
    $200
  164. Stephen Wagner 
    11 months ago
    $250
  165. Edward Hernandez 
    11 months ago
    $100
  166. Bob Kubichek 
    11 months ago
    $100
  167. Anonymous 
    11 months ago
    $1,500
  168. Baker Morphy 
    11 months ago
    $100
  169. Michael Coppola 
    11 months ago
    $500
  170.  
    11 months ago
    $250
  171. Jeffrey Butterworth  
    11 months ago
    $15
  172. Jennifer Jones 
    11 months ago
    $100
  173. Anonymous 
    11 months ago
    $50
  174. richard ellison 
    11 months ago
    $250
  175. Tom & Allison Motherway 
    12 months ago
    $1,000
  176. Adam & Tammie Cox 
    12 months ago
    $100
  177. Matthew Johnson 
    12 months ago
    $25
  178. Meghan Nielsen 
    12 months ago
    $50
  179. Anonymous 
    12 months ago
    $30
  180. Alison & Mike Vukovich 
    12 months ago
    $250
  181. Pam Wilson 
    12 months ago
    $100
  182. Anonymous 
    12 months ago
    $100
  183. John Seoane 
    12 months ago
    $1,000
  184. Galina Krivitsky 
    12 months ago
    $250
  185. Miriam Otero 
    12 months ago
    $100
  186. Valerie Biswas 
    12 months ago
    $20
  187. donna clark 
    12 months ago
    $50
  188. Jane Nettleton 
    12 months ago
    $50
  189. Gina Welc 
    12 months ago
    $50
  190. Susan Johnson 
    12 months ago
    $1,056
  191. Anonymous 
    12 months ago
    $100
  192. Deanna and Mel Horst 
    12 months ago
    $1,250
  193. Ryan Gallagher 
    11 months ago
    $250

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