A Cure for Christmas & a Cure for the New Year

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This is the 4th year & fundraising campaign my wife, Brenna, and I have coordinated since our beautiful daughter Gisele’s diagnosis of Rett Syndrome in September 2014.

First and foremost, we want to extend our most sincere gratitude to everyone that has donated in years past, many of you who have supported the cause each year. Please know that your donations now and from years past ARE making a huge difference in the research to cure and treat this life-changing neurological syndrome.

Secondly, since Rett Syndrome is a “rare disease” that affects only 1 in 10,000 females (approx. 350,000 worldwide), awareness and subsequently funding for research has been underfunded for too long especially given the severity of Rett and the lifelong challenges and costs that women and their families must confront. Making fundraising campaigns like this even more crucial is the "Tax Cuts and Jobs Act" bill just signed by the President cuts in HALF the "Orphan Drug Tax Credit", which helps incentivize for-profit companies to research/create drugs or therapies for rare diseases. Thus, EVERY DOLLAR donated helps.

We're making progress, but we need $$$ to get to the finish line sooner. Help us cure our beautiful daughter Gisele, and over 350,000 girls and women like her.

Thank you!

Mike (MJ) & Brenna Johnson

P.S. For every dollar donated, we will match 25% up to $50,000 (= match of $12,500).

P.P.S. RSRT’s overhead is incredibly low, 95-96% of every dollar raised goes DIRECTLY to fund research


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (193)

  1. Newmark & Company Real Estate 
    1 year ago
    $2,000
  2. CBRE Matching Gifts 
    1 year ago
    $1,250
  3. Ben Heineman 
    1 year ago
    $2,500
  4. Perry Schonfeld  
    2 years ago
    $1,000
  5. Lynn Knox 
    2 years ago
    $100
  6. Mark Raggio 
    2 years ago
    $100
  7. Jim Koenig 
    2 years ago
    $250
  8. Michael Memoly 
    2 years ago
    $500
  9. Thomas Rutherford 
    2 years ago
    $300
  10. Don Shaver 
    2 years ago
    $1,000
  11. Anonymous 
    2 years ago
    $250
  12. Belling Family Foundation 
    2 years ago
    $2,500
  13. Farah F 
    2 years ago
    $50
  14. John Drachman 
    2 years ago
    $250
  15. Bill Plautz 
    2 years ago
    $500
  16. Good Shepherd's Heart Ministry 
    2 years ago
    $1,000
  17. Barbara & Robert Hollmann 
    2 years ago
    $50
  18. Tina & David Thomas 
    2 years ago
    $5,000
  19. Nick Spatafore 
    2 years ago
    $100
  20. Christopher Bourne 
    2 years ago
    $100
  21. Kristine H 
    2 years ago
    $75
  22. Anonymous 
    2 years ago
    $100
  23. milo lipson 
    2 years ago
    $100
  24. Anonymous 
    2 years ago
    $100
  25. Todd Tydlaska 
    2 years ago
    $250
  26. Barbara Perrier 
    2 years ago
    $200
  27. Darla Longo 
    2 years ago
    $500
  28. Sean Ward 
    2 years ago
    $500
  29. cameron merrill 
    2 years ago
    $100
  30. David Wensley 
    2 years ago
    $500
  31. Anonymous 
    2 years ago
    $250
  32. Eloy Covarrubias 
    2 years ago
    $2,500
  33. John B. Neglia 
    2 years ago
    $500
  34. Anonymous 
    2 years ago
    $500
  35. Lyndsay and Roberto Avalos 
    2 years ago
    $50
  36. Susan Johnson 
    2 years ago
    $250
  37. Anonymous 
    2 years ago
    $2,500
  38. Danielle Ballantyne 
    2 years ago
    $50
  39. Susan Borst 
    2 years ago
    $250
  40. Monica Coenraads 
    2 years ago
    $100
  41. Paul & Amy Pedersen 
    2 years ago
    $50
  42. Hilary Isacke 
    2 years ago
    $1,000
  43. James Abbott 
    2 years ago
    $500
  44. Dennis Roy 
    2 years ago
    $250
  45. Timothy Sullivan 
    2 years ago
    $250
  46. Rob Lujan 
    2 years ago
    $100
  47. Chuck Littell 
    2 years ago
    $500
  48. Matt Mexia 
    2 years ago
    $250
  49. William Thormahlen 
    2 years ago
    $2,000
  50. Travis Haining 
    2 years ago
    $1,000
  51. Paul Caputo 
    2 years ago
    $100
  52. Anonymous 
    2 years ago
    $250
  53. Stacy Paek 
    2 years ago
    $500
  54. Mike & Brenna Johnson 
    2 years ago
    $12,500
  55. Jett McCormick 
    2 years ago
    $25
  56. Tim Farahnik 
    2 years ago
    $500
  57. Cristina Johnson 
    2 years ago
    $100
  58. Angela McCabe 
    2 years ago
    $100
  59. Alison Shimizu 
    2 years ago
    $100
  60. Denise Donofrio 
    2 years ago
    $50
  61. Charles Belden 
    2 years ago
    $250
  62. Chris Burns 
    2 years ago
    $100
  63. Jacob Swan 
    2 years ago
    $300
  64. David Prior 
    2 years ago
    $200
  65. Karen Penhall 
    2 years ago
    $100
  66. Reno Jon 
    2 years ago
    $100
  67. K.C. Scheipe  
    2 years ago
    $250
  68. Patrick Schlehuebr 
    2 years ago
    $500
  69. Mark Jerue 
    2 years ago
    $250
  70. Anonymous 
    2 years ago
    $250
  71. Michael Hartel 
    2 years ago
    $100
  72. Jason Hines  
    2 years ago
    $250
  73. John McArtor 
    2 years ago
    $1,000
  74. Eric Brown 
    2 years ago
    $500
  75. Daniel Williams 
    2 years ago
    $100
  76. seth davenport 
    2 years ago
    $300
  77. david dowd 
    2 years ago
    $200
  78. Jeffrey Kernochan 
    2 years ago
    $100
  79. Zachary Niles 
    2 years ago
    $500
  80. Rooney Daschbach 
    2 years ago
    $200
  81. Paul; Sablock 
    2 years ago
    $250
  82. Eric Daschbach 
    2 years ago
    $250
  83. Anonymous 
    2 years ago
    $50
  84. Michael Hefner 
    2 years ago
    $100
  85. Mitch Zehner 
    2 years ago
    $300
  86. Peter McWilliams 
    2 years ago
    $1,000
  87. Taylor Meyer 
    2 years ago
    $1,000
  88. Andrew Lara 
    2 years ago
    $500
  89. Janet Siemsen 
    2 years ago
    $500
  90. Rick John 
    2 years ago
    $500
  91. Martha Anne Woodson 
    2 years ago
    $100
  92. Dan Floriani 
    2 years ago
    $100
  93. Christina Gruneisen 
    2 years ago
    $50
  94. Gage Walter 
    2 years ago
    $50
  95. Harley Smith 
    2 years ago
    $250
  96. Dana and Joseph Cox 
    2 years ago
    $1,000
  97. Anonymous 
    2 years ago
    $250
  98. Anonymous 
    2 years ago
    $200
  99. Perry Schonfeld 
    2 years ago
    $1,000
  100. Ellen and Richard Huberman 
    2 years ago
    $50
  101. Adam Edwards 
    2 years ago
    $500
  102. Donna Shean 
    2 years ago
    $50
  103. beth fisher 
    2 years ago
    $250
  104. Robert Hubbard 
    2 years ago
    $250
  105. Anonymous 
    2 years ago
    $100
  106. Nando Parete 
    2 years ago
    $250
  107. Anonymous 
    2 years ago
    $5,000
  108. Frank Schulz 
    2 years ago
    $200
  109. JOSEPH FINNIGAN 
    2 years ago
    $500
  110. peter castleton 
    2 years ago
    $100
  111. Andrea Leslie 
    2 years ago
    $100
  112. Anonymous 
    2 years ago
    $1,240
  113. scott perry 
    2 years ago
    $100
  114. Melanie Colbert 
    2 years ago
    $250
  115. John Garrigan 
    2 years ago
    $1,000
  116. Garrett & Kirsten Macklin 
    2 years ago
    $50
  117. John Whitlock 
    2 years ago
    $100
  118. Kristin Bendt 
    2 years ago
    $50
  119. Michael Bouma 
    2 years ago
    $250
  120. Kim Cart 
    2 years ago
    $40
  121. Linda Luo 
    2 years ago
    $100
  122. Anonymous 
    2 years ago
    $100
  123. Ian Britton 
    2 years ago
    $100
  124. William Kim 
    2 years ago
    $100
  125. Robin Dodson 
    2 years ago
    $500
  126. Susan Johnson 
    2 years ago
    $1,986
  127. Mark Zorn 
    2 years ago
    $100
  128. Michael Vernick 
    2 years ago
    $100
  129. Anna Hetzner 
    2 years ago
    $50
  130. Zachary Sakowski 
    2 years ago
    $250
  131. David & Shelly Clark 
    2 years ago
    $500
  132. Jonathan Carley 
    2 years ago
    $100
  133. John McMillan 
    2 years ago
    $500
  134. Ryan Velasquez 
    2 years ago
    $50
  135. Claudine Gamboa 
    2 years ago
    $100
  136. Michael Williams 
    2 years ago
    $500
  137. LINDSEY THOMAS 
    2 years ago
    $1,000
  138. michael margileth 
    2 years ago
    $500
  139. viet nguyen 
    2 years ago
    $100
  140. Tim Howard 
    2 years ago
    $1,000
  141. Jeremy Johnson 
    2 years ago
    $250
  142. Mark Campbell 
    2 years ago
    $100
  143. Anonymous 
    2 years ago
    $500
  144. Brian Okrent 
    2 years ago
    $100
  145. Anonymous 
    2 years ago
    $100
  146. Mark Kegans 
    2 years ago
    $200
  147. Richard Mendelson 
    2 years ago
    $3,000
  148. Anonymous 
    2 years ago
    $1,000
  149. Tanya Leung 
    2 years ago
    $50
  150. Jeff Smith 
    2 years ago
    $200
  151. Alice Wilson 
    2 years ago
    $100
  152. Patrick Wood 
    2 years ago
    $250
  153. Stephen Sprenger 
    2 years ago
    $500
  154. Steve and Colleen Bellitti 
    2 years ago
    $200
  155. Jeff Sanita 
    2 years ago
    $250
  156. Ashlee Meese 
    2 years ago
    $1,000
  157. Michelle & Ryan German 
    2 years ago
    $50
  158. Forest Wilkerson 
    2 years ago
    $100
  159. stefan pastor 
    2 years ago
    $250
  160. Cameron Driscoll 
    2 years ago
    $200
  161. Lawrence Null 
    2 years ago
    $250
  162. Wesley Talich 
    2 years ago
    $100
  163. Clyde Stauff 
    2 years ago
    $200
  164. Stephen Wagner 
    2 years ago
    $250
  165. Edward Hernandez 
    2 years ago
    $100
  166. Bob Kubichek 
    2 years ago
    $100
  167. Anonymous 
    2 years ago
    $1,500
  168. Baker Morphy 
    2 years ago
    $100
  169. Michael Coppola 
    2 years ago
    $500
  170.  
    2 years ago
    $250
  171. Jeffrey Butterworth  
    2 years ago
    $15
  172. Jennifer Jones 
    2 years ago
    $100
  173. Anonymous 
    2 years ago
    $50
  174. richard ellison 
    2 years ago
    $250
  175. Tom & Allison Motherway 
    2 years ago
    $1,000
  176. Adam & Tammie Cox 
    2 years ago
    $100
  177. Matthew Johnson 
    2 years ago
    $25
  178. Meghan Nielsen 
    2 years ago
    $50
  179. Anonymous 
    2 years ago
    $30
  180. Alison & Mike Vukovich 
    2 years ago
    $250
  181. Pam Wilson 
    2 years ago
    $100
  182. Anonymous 
    2 years ago
    $100
  183. John Seoane 
    2 years ago
    $1,000
  184. Galina Krivitsky 
    2 years ago
    $250
  185. Miriam Otero 
    2 years ago
    $100
  186. Valerie Biswas 
    2 years ago
    $20
  187. donna clark 
    2 years ago
    $50
  188. Jane Nettleton 
    2 years ago
    $50
  189. Gina Welc 
    2 years ago
    $50
  190. Susan Johnson 
    2 years ago
    $1,056
  191. Anonymous 
    2 years ago
    $100
  192. Deanna and Mel Horst 
    2 years ago
    $1,250
  193. Ryan Gallagher 
    2 years ago
    $250

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