Confections for a Cure

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Zeke loves baking and he loves his cousin Maggie. He is offering to sell his confectionary creations to raise money for Rett Syndrome Research Trust (RSRT) and for his younger cousin, Maggie. Maggie was diagnosed with Rett Syndrome in December of 2013, and as of today, she has limited hand function, she is not able to talk without the use of a special computer to communicate, and she has occasional trouble with breathing and with seizures. Using her computer, Maggie told Zeke that she loves cookies and her favorite color is Violet.

Zeke will be baking cookies and other items and wrapping them up in violet and selling them to friends and family. His goal is to raise awareness and to raise $1,000 to help find a cure for all those suffering with Rett. Zeke hopes to bake with Maggie someday soon.

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

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