Calling Addie’s Angels

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My name is Addison Barker and I love swimming, horseback riding, riding my adaptive bike, and swinging at the park. Oh yeah, and I’m smart!! I’m finishing up Kindergarten this year! The only problem….. I have Rett Syndrome, which gives me the symptoms of Parkinson’s, Cerebral Palsy, Epilepsy, and Autism all in one.


I am unable to walk, talk or use my hands, which leaves me unable to do most things my friends and siblings can. Sounds scary, doesn’t it? Well, imagine being me! I’m trapped in a body that doesn’t work. I am constantly at war with my own body! It’s terrifying! I’m sad that I can’t run and play with my siblings, tell secrets to my friends, or even feed myself.


There is a bright side though! Scientist are working on a cure for me! Imagine, with a cure, I’ll be able to walk, talk and use my hands! I would no longer have to worry about seizures, bouts of dystonia, tremors, fear of a feeding tube, not being able to control my breathing, and so much more! Rett Syndrome has taken away my childhood. It has taken enough!


Good news, you can help by donating here to support RSRT (Rett Syndrome Research Trust)! They are hard at work finding a cure for me! Your donation will get us one step closer to a life without Rett Syndrome!! Please help! Rett Syndrome can take my life….but I want to LIVE my life!! Will you be someone who will make a difference in the lives of those of us suffering from Rett Syndrome? Will you help us cure Rett Syndrome…...before it’s too late for some of us?



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


Supporters (57)

  1. Brandy Small 
    3 months ago
    $100
  2. Ron Tate 
    4 months ago
    $50
  3. Larry Singer 
    5 months ago
    $100
  4. Ric Skinner 
    6 months ago
    $100
  5. JoannaRod Jamison 
    10 months ago
    $100
  6. Connie Chevalier 
    11 months ago
    $100
  7. Annette Suesz 
    11 months ago
    $50
  8. Linda and David Walton 
    11 months ago
    $25
  9. Jeff Foglesong 
    11 months ago
    $25
  10. Christina Hallas 
    12 months ago
    $50
  11. Candice Mccammon 
    12 months ago
    $50
  12. Duke Energy (matching gifts) 
    2 weeks ago
    $1,000
  13. James Henshall-Howard 
    3 weeks ago
    $50
  14. Katherine Gibson 
    1 year ago
    $460
  15. Bree Hill 
    1 year ago
    $40
  16. Larry Singer 
    1 year ago
    $100
  17. Susan Laue 
    1 year ago
    $50
  18. Carly Day 
    1 year ago
    $100
  19. Steve and Jeri Menke 
    1 year ago
    $250
  20. Nathan Radwick 
    1 year ago
    $200
  21. Tim Utt 
    1 year ago
    $20
  22. Tim Utt 
    1 year ago
    $50
  23. Rick Hunckler 
    1 year ago
    $50
  24. Michelle Smith 
    1 year ago
    $25
  25. Jacie Clark 
    1 year ago
    $50
  26. Geoff and Rachel Knoll 
    1 year ago
    $100
  27. Katie Mitchell 
    1 year ago
    $25
  28. Danielle Herbert  
    1 year ago
    $25
  29. Beth Lindsey 
    1 year ago
    $25
  30. Jason Sonnenberg 
    1 year ago
    $100
  31. Ryan Waldroup 
    1 year ago
    $100
  32. Ben Troxler 
    1 year ago
    $100
  33. Jenny Brooks 
    1 year ago
    $25
  34. Jane Gray 
    1 year ago
    $25
  35. Joel Reece 
    1 year ago
    $100
  36. Kim Kehl 
    1 year ago
    $200
  37. Kim Snapp 
    1 year ago
    $25
  38. Kathleen Haughan 
    1 year ago
    $200
  39. Suzan Menke 
    1 year ago
    $100
  40. Brenda Burke 
    1 year ago
    $30
  41. Melissa and Steven Sexton 
    1 year ago
    $100
  42. Courtney Shields 
    1 year ago
    $100
  43. Susie Laue 
    1 year ago
    $50
  44. Sandra Bingham 
    1 year ago
    $50
  45. Brad Watson 
    1 year ago
    $20
  46. Brenda Lindsey 
    1 year ago
    $100
  47. Brooke Hooper 
    1 year ago
    $50
  48. Susan Rode 
    1 year ago
    $100
  49. Sandi Kent 
    1 year ago
    $250
  50. Linda L Fredrick 
    1 year ago
    $100
  51. Andrea Koenig 
    1 year ago
    $100
  52. DAVID KIEL 
    1 year ago
    $150
  53. Greg and Jane Hunckker 
    1 year ago
    $500
  54. Kirk Hunckler 
    1 year ago
    $50
  55. Rebecca Eaton 
    1 year ago
    $50
  56. Jana Barker 
    1 year ago
    $30
  57. Amy McClellan 
    1 year ago
    $30

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