Calling Addie’s Angels

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My name is Addison Barker and I love swimming, horseback riding, riding my adaptive bike, and swinging at the park. Oh yeah, and I’m smart!! I’m finishing up Kindergarten this year! The only problem….. I have Rett Syndrome, which gives me the symptoms of Parkinson’s, Cerebral Palsy, Epilepsy, and Autism all in one.


I am unable to walk, talk or use my hands, which leaves me unable to do most things my friends and siblings can. Sounds scary, doesn’t it? Well, imagine being me! I’m trapped in a body that doesn’t work. I am constantly at war with my own body! It’s terrifying! I’m sad that I can’t run and play with my siblings, tell secrets to my friends, or even feed myself.


There is a bright side though! Scientist are working on a cure for me! Imagine, with a cure, I’ll be able to walk, talk and use my hands! I would no longer have to worry about seizures, bouts of dystonia, tremors, fear of a feeding tube, not being able to control my breathing, and so much more! Rett Syndrome has taken away my childhood. It has taken enough!


Good news, you can help by donating here to support RSRT (Rett Syndrome Research Trust)! They are hard at work finding a cure for me! Your donation will get us one step closer to a life without Rett Syndrome!! Please help! Rett Syndrome can take my life….but I want to LIVE my life!! Will you be someone who will make a difference in the lives of those of us suffering from Rett Syndrome? Will you help us cure Rett Syndrome…...before it’s too late for some of us?



What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.


Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.


Supporters (58)

  1. Amy McClellan 
    8 months ago
    $40
  2. Brandy Small 
    12 months ago
    $100
  3. Ron Tate 
    1 year ago
    $50
  4. Larry Singer 
    1 year ago
    $100
  5. Ric Skinner 
    1 year ago
    $100
  6. JoannaRod Jamison 
    2 years ago
    $100
  7. Connie Chevalier 
    2 years ago
    $100
  8. Annette Suesz 
    2 years ago
    $50
  9. Linda and David Walton 
    2 years ago
    $25
  10. Jeff Foglesong 
    2 years ago
    $25
  11. Christina Hallas 
    2 years ago
    $50
  12. Candice Mccammon 
    2 years ago
    $50
  13. Duke Energy (matching gifts) 
    9 months ago
    $1,000
  14. James Henshall-Howard 
    10 months ago
    $50
  15. Katherine Gibson 
    2 years ago
    $460
  16. Bree Hill 
    2 years ago
    $40
  17. Larry Singer 
    2 years ago
    $100
  18. Susan Laue 
    2 years ago
    $50
  19. Carly Day 
    2 years ago
    $100
  20. Steve and Jeri Menke 
    2 years ago
    $250
  21. Nathan Radwick 
    2 years ago
    $200
  22. Tim Utt 
    2 years ago
    $20
  23. Tim Utt 
    2 years ago
    $50
  24. Rick Hunckler 
    2 years ago
    $50
  25. Michelle Smith 
    2 years ago
    $25
  26. Jacie Clark 
    2 years ago
    $50
  27. Geoff and Rachel Knoll 
    2 years ago
    $100
  28. Katie Mitchell 
    2 years ago
    $25
  29. Danielle Herbert  
    2 years ago
    $25
  30. Beth Lindsey 
    2 years ago
    $25
  31. Jason Sonnenberg 
    2 years ago
    $100
  32. Ryan Waldroup 
    2 years ago
    $100
  33. Ben Troxler 
    2 years ago
    $100
  34. Jenny Brooks 
    2 years ago
    $25
  35. Jane Gray 
    2 years ago
    $25
  36. Joel Reece 
    2 years ago
    $100
  37. Kim Kehl 
    2 years ago
    $200
  38. Kim Snapp 
    2 years ago
    $25
  39. Kathleen Haughan 
    2 years ago
    $200
  40. Suzan Menke 
    2 years ago
    $100
  41. Brenda Burke 
    2 years ago
    $30
  42. Melissa and Steven Sexton 
    2 years ago
    $100
  43. Courtney Shields 
    2 years ago
    $100
  44. Susie Laue 
    2 years ago
    $50
  45. Sandra Bingham 
    2 years ago
    $50
  46. Brad Watson 
    2 years ago
    $20
  47. Brenda Lindsey 
    2 years ago
    $100
  48. Brooke Hooper 
    2 years ago
    $50
  49. Susan Rode 
    2 years ago
    $100
  50. Sandi Kent 
    2 years ago
    $250
  51. Linda L Fredrick 
    2 years ago
    $100
  52. Andrea Koenig 
    2 years ago
    $100
  53. DAVID KIEL 
    2 years ago
    $150
  54. Greg and Jane Hunckker 
    2 years ago
    $500
  55. Kirk Hunckler 
    2 years ago
    $50
  56. Rebecca Eaton 
    2 years ago
    $50
  57. Jana Barker 
    2 years ago
    $30
  58. Amy McClellan 
    2 years ago
    $30

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