Beta Theta Pi’s Ducky Races Benefitting Miracle for Molly

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On Saturday April 27th, the Villanova Chapter of Beta Theta Pi will be holding our annual "Ducky Race" event. For this event, rubber ducks are sold on campus. On the day of the event, rubber ducks are raced down a water tower where the winners receive a prize. All proceeds go towards benefitting the Miracle for Molly Campaign in support of the daughter of one of our alumni. We hope with your help we can develop a cure.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (40)

  1. Timothy Delaney 
    6 days ago
    $50
  2. Joyce Molter 
    7 days ago
    $50
  3. Lauren Suskavcevic 
    1 week ago
    $25
  4. Dan Amabile 
    1 week ago
    $25
  5. Elizabeth Langa 
    1 week ago
    $500
  6. Lori Knox  
    1 week ago
    $50
  7. Margaret Rashti 
    1 week ago
    $100
  8. GREGG NEVOLA 
    1 week ago
    $100
  9. Mary Liquori 
    1 week ago
    $25
  10. Kimberly Santulli 
    2 weeks ago
    $25
  11. Sean Parisi 
    2 weeks ago
    $25
  12. Kimberly Nevin 
    2 weeks ago
    $200
  13. Amelia Galvin 
    2 weeks ago
    $25
  14. Kathryn Campagna 
    2 weeks ago
    $50
  15. Frank Capella 
    2 weeks ago
    $100
  16. Matthew Liquori  
    2 weeks ago
    $10
  17. Maria Seager 
    2 weeks ago
    $50
  18. John Moschella  
    2 weeks ago
    $25
  19. Giselle Torres 
    2 weeks ago
    $25
  20. Susan Dibbini 
    2 weeks ago
    $100
  21. Jacqueline Knoepffler 
    2 weeks ago
    $50
  22. Barbara Hanson 
    2 weeks ago
    $25
  23. Barbara McGould 
    2 weeks ago
    $100
  24. George and Martha Quinn 
    2 weeks ago
    $100
  25. Ken Radford 
    2 weeks ago
    $40
  26. Eileen Zimmerman 
    2 weeks ago
    $25
  27. Chris DiLeva 
    2 weeks ago
    $25
  28. Kimberly LeMond 
    2 weeks ago
    $50
  29. Edward DelleDonne 
    2 weeks ago
    $100
  30. Patricia Mifsud 
    2 weeks ago
    $25
  31. ceil langa 
    2 weeks ago
    $25
  32. Noel Dolan 
    2 weeks ago
    $25
  33. John Holstein 
    2 weeks ago
    $50
  34. Jeffrey Langa 
    3 weeks ago
    $50
  35. Anonymous 
    3 weeks ago
    $100
  36. William McCawley 
    3 weeks ago
    $100
  37. Michael and Kathy DiLeva 
    3 weeks ago
    $100
  38. Anonymous 
    3 weeks ago
    $250
  39. Katie and Doug Harter 
    3 weeks ago
    $100
  40. Richard Sperry  
    3 weeks ago
    $100

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