Beta Theta Pi’s Ducky Races Benefitting Miracle for Molly

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On Saturday April 27th, the Villanova Chapter of Beta Theta Pi will be holding our annual "Ducky Race" event. For this event, rubber ducks are sold on campus. On the day of the event, rubber ducks are raced down a water tower where the winners receive a prize. All proceeds go towards benefitting the Miracle for Molly Campaign in support of the daughter of one of our alumni. We hope with your help we can develop a cure.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (59)

  1. Elizabeth Langa 
    3 months ago
    $600
  2. Conor Healy 
    3 months ago
    $20
  3. Kathleen Ferdinandsen  
    3 months ago
    $50
  4. Meredith Limberis  
    4 months ago
    $50
  5. Stephen Koscs 
    4 months ago
    $100
  6. Douglas Langa 
    4 months ago
    $100
  7. michael dacey 
    4 months ago
    $25
  8. Rohan Udeshi 
    4 months ago
    $50
  9. Andrew McCawley  
    4 months ago
    $25
  10. Dave Marx 
    4 months ago
    $25
  11. Amy Saffian 
    4 months ago
    $75
  12. Kevin Bates 
    4 months ago
    $5
  13. Ann Marie mullen 
    4 months ago
    $50
  14. Kelly Mcdonough 
    4 months ago
    $100
  15. Cindy Watson 
    4 months ago
    $100
  16. Kendall Schoenrock 
    4 months ago
    $100
  17. Gregory Johnson 
    4 months ago
    $100
  18. Anonymous 
    4 months ago
    $10
  19. Luke Bozich 
    4 months ago
    $100
  20. Timothy Delaney 
    4 months ago
    $50
  21. Joyce Molter 
    4 months ago
    $50
  22. Lauren Suskavcevic 
    4 months ago
    $25
  23. Dan Amabile 
    4 months ago
    $25
  24. Elizabeth Langa 
    4 months ago
    $500
  25. Lori Knox  
    4 months ago
    $50
  26. Margaret Rashti 
    4 months ago
    $100
  27. GREGG NEVOLA 
    4 months ago
    $100
  28. Mary Liquori 
    4 months ago
    $25
  29. Kimberly Santulli 
    4 months ago
    $25
  30. Sean Parisi 
    4 months ago
    $25
  31. Kimberly Nevin 
    4 months ago
    $200
  32. Amelia Galvin 
    4 months ago
    $25
  33. Kathryn Campagna 
    4 months ago
    $50
  34. Frank Capella 
    4 months ago
    $100
  35. Matthew Liquori  
    4 months ago
    $10
  36. Maria Seager 
    4 months ago
    $50
  37. John Moschella  
    4 months ago
    $25
  38. Giselle Torres 
    4 months ago
    $25
  39. Susan Dibbini 
    4 months ago
    $100
  40. Jacqueline Knoepffler 
    4 months ago
    $50
  41. Barbara Hanson 
    4 months ago
    $25
  42. Barbara McGould 
    4 months ago
    $100
  43. George and Martha Quinn 
    4 months ago
    $100
  44. Ken Radford 
    4 months ago
    $40
  45. Eileen Zimmerman 
    4 months ago
    $25
  46. Chris DiLeva 
    4 months ago
    $25
  47. Kimberly LeMond 
    4 months ago
    $50
  48. Edward DelleDonne 
    4 months ago
    $100
  49. Patricia Mifsud 
    4 months ago
    $25
  50. ceil langa 
    4 months ago
    $25
  51. Noel Dolan 
    4 months ago
    $25
  52. John Holstein 
    4 months ago
    $50
  53. Jeffrey Langa 
    4 months ago
    $50
  54. Anonymous 
    4 months ago
    $100
  55. William McCawley 
    4 months ago
    $100
  56. Michael and Kathy DiLeva 
    4 months ago
    $100
  57. Anonymous 
    4 months ago
    $250
  58. Katie and Doug Harter 
    5 months ago
    $100
  59. Richard Sperry  
    5 months ago
    $100

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