Beggin’ for Meghan

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  • Comments
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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don't live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Now more than five years later, Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

In 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated that a dramatic reversal of Duplication Syndrome is possible. Her lab is now working on several key experiments that are critical next steps before clinical trials can begin. These key experiments will cost $300,000. With your donation, you will help bring the cure to life. Every bit helps, and all donations are tax deductible. Please know that your donation could improve Meghan’s life and the lives of many suffering from MECP2 Duplication Syndrome, and for that, we would be most grateful.


Thank you,

Amy, Dave, and Ashleigh (big sis)


Supporters (57)

  1. Elizabeth Niemyer 
    3 weeks ago
    $100
  2. Margie Holsinger 
    3 weeks ago
    $20
  3. Joyce Welken 
    3 weeks ago
    $50
  4. Leslie Chatty 
    2 months ago
    $50
  5. Janice & Dennis Bills 
    2 months ago
    $150
  6. Natalya Sterkis 
    7 months ago
    $100
  7. Donald Feltzer, Jr. 
    7 months ago
    $50
  8. Amsted Matching Gifts 
    7 months ago
    $360
  9. Anthony Corteal, Jr. 
    8 months ago
    $25
  10. Brian Flaskrud 
    8 months ago
    $200
  11. Addison Palmer 
    8 months ago
    $100
  12. Meghan Sweigart 
    8 months ago
    $40
  13. Mark Urquhart 
    10 months ago
    $265
  14. Jenny McMillan 
    10 months ago
    $265
  15. Amy & Dave Baker 
    10 months ago
    $1,000
  16. Amsted Industries employee match 
    11 months ago
    $5,000
  17. Amy & Dave Baker 
    11 months ago
    $3,000
  18. Amy & Dave Morrison 
    12 months ago
    $5,000
  19. Bridget Dickensheets 
    1 year ago
    $50
  20. Anonymous 
    1 year ago
    $70
  21. Jan & Denns Bills 
    1 year ago
    $250
  22. Stephanie Huck 
    1 year ago
    $50
  23. Anonymous 
    1 year ago
    $25
  24. Allison Robillard 
    1 year ago
    $30
  25. Patti Ormiston 
    1 year ago
    $25
  26. Claudine Baker 
    1 year ago
    $50
  27. Karen Baumeister 
    1 year ago
    $30
  28. Darlene Rehmert 
    1 year ago
    $50
  29. Kelly Jensen 
    1 year ago
    $50
  30. Janet Boyd 
    1 year ago
    $25
  31. Christopher Boundy 
    1 year ago
    $50
  32. Karen Robillard 
    1 year ago
    $50
  33. Anonymous 
    1 year ago
    $10,000
  34. Anonymous 
    1 year ago
    $100
  35. Amy Nelson 
    1 year ago
    $25
  36. Kathy Shanley 
    1 year ago
    $100
  37. Alison McBeth 
    1 year ago
    $25
  38. Stuart Curtin  
    1 year ago
    $50
  39. Michelle Palmer  
    1 year ago
    $50
  40. Courtney Webster 
    1 year ago
    $100
  41. Roland Broadfoot  
    1 year ago
    $25
  42. Shannon Swenson 
    1 year ago
    $100
  43. Maire Ni Mhaille 
    1 year ago
    $25
  44. Maureen Stockman 
    1 year ago
    $10
  45. JEAN MAASE 
    1 year ago
    $200
  46. Evelyn Morrison 
    1 year ago
    $50
  47. Julie Russo  
    1 year ago
    $50
  48. Sheri Ewing 
    1 year ago
    $100
  49. Laurie Marquess 
    1 year ago
    $25
  50. mary Butler 
    1 year ago
    $100
  51. Theresa Roussel 
    1 year ago
    $100
  52. Jamie Meteer 
    1 year ago
    $30
  53. Arliene R Torre 
    1 year ago
    $100
  54. Nichole McGuire 
    1 year ago
    $30
  55. Kate Roussel 
    1 year ago
    $100
  56. Anonymous 
    1 year ago
    $250
  57. Sarah Parsons 
    1 year ago
    $50

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