Beggin’ for Meghan

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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don't live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Now more than five years later, Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

In 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated that a dramatic reversal of Duplication Syndrome is possible. Her lab is now working on several key experiments that are critical next steps before clinical trials can begin. These key experiments will cost $300,000. With your donation, you will help bring the cure to life. Every bit helps, and all donations are tax deductible. Please know that your donation could improve Meghan’s life and the lives of many suffering from MECP2 Duplication Syndrome, and for that, we would be most grateful.


Thank you,

Amy, Dave, and Ashleigh (big sis)


Supporters (88)

  1. Nancie Arsenis 
    1 month ago
    $100
  2. Amy McHugh 
    1 month ago
    $50
  3. Amy & David Baker 
    2 months ago
    $2,000
  4. Elizabeth Baker 
    6 months ago
    $100
  5. Stephen Zidek 
    7 months ago
    $50
  6. Elizabeth Baker 
    7 months ago
    $100
  7. Susan Kotra 
    7 months ago
    $25
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    7 months ago
    $25
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    7 months ago
    $240
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    7 months ago
    $25
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    7 months ago
    $260
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    7 months ago
    $60
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    7 months ago
    $100
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    7 months ago
    $500
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    7 months ago
    $70
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    7 months ago
    $25
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    7 months ago
    $25
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    7 months ago
    $40
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    7 months ago
    $50
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    7 months ago
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    7 months ago
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    7 months ago
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    8 months ago
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    8 months ago
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    8 months ago
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    9 months ago
    $750
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    9 months ago
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    12 months ago
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    12 months ago
    $20
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    12 months ago
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    1 year ago
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    1 year ago
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    1 year ago
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    1 year ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
    $40
  44. Mark Urquhart 
    2 years ago
    $265
  45. Jenny McMillan 
    2 years ago
    $265
  46. Amy & Dave Baker 
    2 years ago
    $1,000
  47. Amsted Industries employee match 
    2 years ago
    $5,000
  48. Amy & Dave Baker 
    2 years ago
    $3,000
  49. Amy & Dave Morrison 
    2 years ago
    $5,000
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    2 years ago
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  51. Anonymous 
    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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  64. Anonymous 
    2 years ago
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  65. Anonymous 
    2 years ago
    $100
  66. Amy Nelson 
    2 years ago
    $25
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    2 years ago
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    2 years ago
    $25
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    2 years ago
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    2 years ago
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    2 years ago
    $100
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    2 years ago
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    2 years ago
    $100
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    2 years ago
    $25
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    2 years ago
    $10
  76. JEAN MAASE 
    2 years ago
    $200
  77. Evelyn Morrison 
    2 years ago
    $50
  78. Julie Russo  
    2 years ago
    $50
  79. Sheri Ewing 
    2 years ago
    $100
  80. Laurie Marquess 
    2 years ago
    $25
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    2 years ago
    $100
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    2 years ago
    $100
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    2 years ago
    $30
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    2 years ago
    $100
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    2 years ago
    $30
  86. Kate Roussel 
    2 years ago
    $100
  87. Anonymous 
    2 years ago
    $250
  88. Sarah Parsons 
    2 years ago
    $50

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