Beggin’ for Meghan

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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don't live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Now more than five years later, Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

In 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated that a dramatic reversal of Duplication Syndrome is possible. Her lab is now working on several key experiments that are critical next steps before clinical trials can begin. These key experiments will cost $300,000. With your donation, you will help bring the cure to life. Every bit helps, and all donations are tax deductible. Please know that your donation could improve Meghan’s life and the lives of many suffering from MECP2 Duplication Syndrome, and for that, we would be most grateful.


Thank you,

Amy, Dave, and Ashleigh (big sis)


Supporters (65)

  1. William Coffey 
    1 week ago
    $75
  2. Erik Krauss 
    4 weeks ago
    $25
  3. Amy & David Baker  
    1 month ago
    $75
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    1 month ago
    $175
  5. Peyton's 4-H Project  
    1 month ago
    $175
  6. James Woodley, Jr. 
    1 month ago
    $175
  7. Yakabod  
    2 months ago
    $750
  8. Elizabeth Baker 
    2 months ago
    $250
  9. Elizabeth Niemyer 
    5 months ago
    $100
  10. Margie Holsinger 
    5 months ago
    $20
  11. Joyce Welken 
    5 months ago
    $50
  12. Leslie Chatty 
    6 months ago
    $50
  13. Janice & Dennis Bills 
    6 months ago
    $150
  14. Natalya Sterkis 
    11 months ago
    $100
  15. Donald Feltzer, Jr. 
    11 months ago
    $50
  16. Amsted Matching Gifts 
    11 months ago
    $360
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    12 months ago
    $25
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    1 year ago
    $200
  19. Addison Palmer 
    1 year ago
    $100
  20. Meghan Sweigart 
    1 year ago
    $40
  21. Mark Urquhart 
    1 year ago
    $265
  22. Jenny McMillan 
    1 year ago
    $265
  23. Amy & Dave Baker 
    1 year ago
    $1,000
  24. Amsted Industries employee match 
    1 year ago
    $5,000
  25. Amy & Dave Baker 
    1 year ago
    $3,000
  26. Amy & Dave Morrison 
    1 year ago
    $5,000
  27. Bridget Dickensheets 
    2 years ago
    $50
  28. Anonymous 
    2 years ago
    $70
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    2 years ago
    $250
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    2 years ago
    $50
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    2 years ago
    $25
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
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    2 years ago
    $50
  40. Karen Robillard 
    2 years ago
    $50
  41. Anonymous 
    2 years ago
    $10,000
  42. Anonymous 
    2 years ago
    $100
  43. Amy Nelson 
    2 years ago
    $25
  44. Kathy Shanley 
    2 years ago
    $100
  45. Alison McBeth 
    2 years ago
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    2 years ago
    $50
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    2 years ago
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    2 years ago
    $100
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    2 years ago
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    2 years ago
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  51. Maire Ni Mhaille 
    2 years ago
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    2 years ago
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    2 years ago
    $200
  54. Evelyn Morrison 
    2 years ago
    $50
  55. Julie Russo  
    2 years ago
    $50
  56. Sheri Ewing 
    2 years ago
    $100
  57. Laurie Marquess 
    2 years ago
    $25
  58. mary Butler 
    2 years ago
    $100
  59. Theresa Roussel 
    2 years ago
    $100
  60. Jamie Meteer 
    2 years ago
    $30
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    2 years ago
    $100
  62. Nichole McGuire 
    2 years ago
    $30
  63. Kate Roussel 
    2 years ago
    $100
  64. Anonymous 
    2 years ago
    $250
  65. Sarah Parsons 
    2 years ago
    $50

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