Beggin’ for Meghan

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  • Comments
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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don't live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Now more than five years later, Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

In 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated that a dramatic reversal of Duplication Syndrome is possible. Her lab is now working on several key experiments that are critical next steps before clinical trials can begin. These key experiments will cost $300,000. With your donation, you will help bring the cure to life. Every bit helps, and all donations are tax deductible. Please know that your donation could improve Meghan’s life and the lives of many suffering from MECP2 Duplication Syndrome, and for that, we would be most grateful.


Thank you,

Amy, Dave, and Ashleigh (big sis)


Supporters (42)

  1. Amsted Industries employee match 
    2 weeks ago
    $5,000
  2. Amy & Dave Baker 
    3 weeks ago
    $3,000
  3. Amy & Dave Morrison 
    4 weeks ago
    $5,000
  4. Bridget Dickensheets 
    4 months ago
    $50
  5. Anonymous 
    4 months ago
    $70
  6. Jan & Denns Bills 
    4 months ago
    $250
  7. Stephanie Huck 
    4 months ago
    $50
  8. Anonymous 
    4 months ago
    $25
  9. Allison Robillard 
    4 months ago
    $30
  10. Patti Ormiston 
    4 months ago
    $25
  11. Claudine Baker 
    4 months ago
    $50
  12. Karen Baumeister 
    4 months ago
    $30
  13. Darlene Rehmert 
    4 months ago
    $50
  14. Kelly Jensen 
    4 months ago
    $50
  15. Janet Boyd 
    4 months ago
    $25
  16. Christopher Boundy 
    4 months ago
    $50
  17. Karen Robillard 
    4 months ago
    $50
  18. Anonymous 
    4 months ago
    $10,000
  19. Anonymous 
    4 months ago
    $100
  20. Amy Nelson 
    4 months ago
    $25
  21. Kathy Shanley 
    4 months ago
    $100
  22. Alison McBeth 
    4 months ago
    $25
  23. Stuart Curtin  
    4 months ago
    $50
  24. Michelle Palmer  
    4 months ago
    $50
  25. Courtney Webster 
    4 months ago
    $100
  26. Roland Broadfoot  
    4 months ago
    $25
  27. Shannon Swenson 
    4 months ago
    $100
  28. Maire Ni Mhaille 
    4 months ago
    $25
  29. Maureen Stockman 
    4 months ago
    $10
  30. JEAN MAASE 
    5 months ago
    $200
  31. Evelyn Morrison 
    5 months ago
    $50
  32. Julie Russo  
    5 months ago
    $50
  33. Sheri Ewing 
    5 months ago
    $100
  34. Laurie Marquess 
    5 months ago
    $25
  35. mary Butler 
    5 months ago
    $100
  36. Theresa Roussel 
    5 months ago
    $100
  37. Jamie Meteer 
    5 months ago
    $30
  38. Arliene R Torre 
    5 months ago
    $100
  39. Nichole McGuire 
    5 months ago
    $30
  40. Kate Roussel 
    5 months ago
    $100
  41. Anonymous 
    5 months ago
    $250
  42. Sarah Parsons 
    5 months ago
    $50

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