Beggin’ for Meghan

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At 4 months old, Meghan was diagnosed with MECP2 Duplication Syndrome. This neurological disorder is characterized by global developmental delay, limited or absent speech, constipation, reflux, low muscle tone, recurrent respiratory infections, gastrointestinal issues, epilepsy, and developmental regression. Children with MECP2 Duplication Syndrome can suffer greatly from a common cold. And, most children don't live past 18 years old.

As any parent can imagine, the diagnosis was devastating. Now more than five years later, Meghan cannot walk or talk and is fed through a tube that goes directly into her stomach. She needs extensive physical therapy, occupational therapy, speech therapy, feeding therapy, and supplemental oxygen when she is sleeping. She has battled through pneumonia and other infections that keep her in the hospital for several days, even months. Despite all of this, she remains a happy, go-lucky kid and has a smile that will melt your heart.

In 2015, Dr. Huda Zoghbi of Baylor College of Medicine demonstrated that a dramatic reversal of Duplication Syndrome is possible. Her lab is now working on several key experiments that are critical next steps before clinical trials can begin. These key experiments will cost $300,000. With your donation, you will help bring the cure to life. Every bit helps, and all donations are tax deductible. Please know that your donation could improve Meghan’s life and the lives of many suffering from MECP2 Duplication Syndrome, and for that, we would be most grateful.


Thank you,

Amy, Dave, and Ashleigh (big sis)


Supporters (52)

  1. Natalya Sterkis 
    3 months ago
    $100
  2. Donald Feltzer, Jr. 
    3 months ago
    $50
  3. Amsted Matching Gifts 
    3 months ago
    $360
  4. Anthony Corteal, Jr. 
    4 months ago
    $25
  5. Brian Flaskrud 
    4 months ago
    $200
  6. Addison Palmer 
    4 months ago
    $100
  7. Meghan Sweigart 
    5 months ago
    $40
  8. Mark Urquhart 
    6 months ago
    $265
  9. Jenny McMillan 
    6 months ago
    $265
  10. Amy & Dave Baker 
    6 months ago
    $1,000
  11. Amsted Industries employee match 
    8 months ago
    $5,000
  12. Amy & Dave Baker 
    8 months ago
    $3,000
  13. Amy & Dave Morrison 
    8 months ago
    $5,000
  14. Bridget Dickensheets 
    11 months ago
    $50
  15. Anonymous 
    11 months ago
    $70
  16. Jan & Denns Bills 
    11 months ago
    $250
  17. Stephanie Huck 
    11 months ago
    $50
  18. Anonymous 
    11 months ago
    $25
  19. Allison Robillard 
    11 months ago
    $30
  20. Patti Ormiston 
    11 months ago
    $25
  21. Claudine Baker 
    11 months ago
    $50
  22. Karen Baumeister 
    11 months ago
    $30
  23. Darlene Rehmert 
    11 months ago
    $50
  24. Kelly Jensen 
    11 months ago
    $50
  25. Janet Boyd 
    11 months ago
    $25
  26. Christopher Boundy 
    11 months ago
    $50
  27. Karen Robillard 
    11 months ago
    $50
  28. Anonymous 
    11 months ago
    $10,000
  29. Anonymous 
    11 months ago
    $100
  30. Amy Nelson 
    11 months ago
    $25
  31. Kathy Shanley 
    11 months ago
    $100
  32. Alison McBeth 
    11 months ago
    $25
  33. Stuart Curtin  
    11 months ago
    $50
  34. Michelle Palmer  
    12 months ago
    $50
  35. Courtney Webster 
    12 months ago
    $100
  36. Roland Broadfoot  
    12 months ago
    $25
  37. Shannon Swenson 
    12 months ago
    $100
  38. Maire Ni Mhaille 
    12 months ago
    $25
  39. Maureen Stockman 
    12 months ago
    $10
  40. JEAN MAASE 
    12 months ago
    $200
  41. Evelyn Morrison 
    12 months ago
    $50
  42. Julie Russo  
    12 months ago
    $50
  43. Sheri Ewing 
    12 months ago
    $100
  44. Laurie Marquess 
    12 months ago
    $25
  45. mary Butler 
    12 months ago
    $100
  46. Theresa Roussel 
    12 months ago
    $100
  47. Jamie Meteer 
    12 months ago
    $30
  48. Arliene R Torre 
    12 months ago
    $100
  49. Nichole McGuire 
    12 months ago
    $30
  50. Kate Roussel 
    12 months ago
    $100
  51. Anonymous 
    1 year ago
    $250
  52. Sarah Parsons 
    1 year ago
    $50

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