I Won’t Give Up! Ayusha

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She is cute, cool and always smiles. My silent angel Ayusha started her fight against Rett Syndrome before 8 years. She is not going to give up. Please join her to help her fight.

Imagine having the symptoms of Parkinson’s Cerebral Palsy, Epilepsy, and anxiety disorder all at once. That is what having Rett Syndrome is like, and that is what Ayusha was diagnosed with in 2011. Rett is a devastating neurological disorder that afflicts 350,000 around the world. It affects mostly girls and women and symptoms begin when girls are just a year or two old. Like Ayusha did, most girls with Rett regress and lose skills they have developed, including the ability to talk and walk. Ayusha has never spoken her first word and has never walked. Despite these very challenging symptoms, Ayusha is resilient and fights this disease. She works hard in her therapies to try to walk and do the things a girl her age typically can do. But Rett Syndrome holds her back. As you can imagine, living with Rett Syndrome is hard for Ayusha and for all of us as her family.

There is exciting and promising news however. The Rett Syndrome Research Trust has developed a three-year strategic plan called Roadmap to a Cure. There is scientific evidence that Rett can be reversed. It has, remarkably, been reversed in mice. Now RSRT’s plan is to translate the reversal in mice to a reversal in girls with Rett. But RSRT needs help with funding to carry out Roadmap to a Cure. Every dollar you contribute to this campaign goes straight to RSRT to make a more promising future for Ayusha and so many other girls and women with Rett Syndrome. Thank you for your support.

- Amar Lad

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (1)

  1. Aditya Verma 
    3 years ago

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