Across the Years for Annelise: Running to Cure Rett Syndrome

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Annelise, her Mom, and I were matched almost 5 years ago through the Facebook Group, I Run 4 Michael. I had no idea what Rett Syndrome was or how much this little lady (and her Mom) would impact my entire life. It's amazing to realize that you love someone else's child as much as you love your own child. Every run and every race that I do are dedicated to her. As of late, it hasn't been enough for me. I want a cure. I want Annelise to walk and play and laugh and talk. We have to find a cure so that Annelise and the other children/adults affected by Rett Syndrome will be able to walk and play and laugh and talk.

I am committing to running this year's Across The Years 24 Hour Event in Glendale, AZ to raise funds/awareness for Rett Syndrome. Every mile will be for Annelise and the Rett Syndrome Community. Come out and cheer us on December 28th through the 29th. Come out and help us raise funds for a cure.

Laura Mostosky

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

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