Amelia’s Fight for a Cure

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We are launching a campaign to help raise funds for scientists working on a cure for Rett Syndrome because our Daughter Amelia has been diagnosed with it. Hearing the doctors explain what Rett is and what it means for Amelia now and in the future has utterly and completely devastated my wife and I. Amelia is a wonderful daughter and is such a fun loving and happy little girl that brings joy to everyone who is around her, her giggle is absolutely infectious! Her favorite things to do are jump on trampolines, get on the swings, motor around on her little plastic car and watch Lion Guard cartoons. Her mom and I can’t even imagine a day when she is not physically able to do these things that make her so happy. She and all the other girls in the world with Rett deserve a future, one where they can live and grow worry free like other children.

We have done the crying, been through the anger phase. Now it’s time we join the fight that parents before us started after they too got the horrible news of Rett. We are so encouraged about the awesome science 20 years in the making that has us on the verge of a cure for this affliction. We would like to invite you to stand with us and help the wonderful people working so hard to give us Rett parents hope for our babies. Amelia is worth every effort and we will not stop until we can hear the words we desperately want to hear from her doctor: “Congratulations, the treatments went great, Amelia’s Rett has been reversed!”

Thank you so much for helping us!

Miguel & Leslie Garcia


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (15)

  1. Feliciano Rios Moreno 
    3 months ago
    $50
  2. Amy Watson 
    3 months ago
    $100
  3. Jennifer Teicheira  
    3 months ago
    $100
  4. Linda Jansen 
    3 months ago
    $100
  5. Jose & Susana De La Torre 
    3 months ago
    $100
  6. Demi Cumberworth 
    3 months ago
    $20
  7. Jacque Pinol 
    3 months ago
    $50
  8. Sandra & Jay Corona 
    3 months ago
    $25
  9. Joe Pires 
    3 months ago
    $10
  10. Wes and MarleneH Harris 
    3 months ago
    $100
  11. Lori Young & Dave Cumberworth 
    3 months ago
    $50
  12. Hugo & Meg Martinez  
    3 months ago
    $250
  13. Steve & Carol Moberly 
    3 months ago
    $50
  14. Elaine and Dave Dyer 
    3 months ago
    $100
  15. Jasmine Slagle 
    3 months ago
    $25

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