A Cure for Mackenzie

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Our sweetheart Mackenzie was born a beautiful healthy baby girl on February 16, 2016. She has been perfect since day one. However, we started to notice Mackenzie wasn’t meeting milestones (crawling and walking etc) around 9 months. It took a little over a year of genetic and neurological testing but we finally got a diagnosis. February 1st 2018 was a day we will never forget. It was the day that our amazing little girl was diagnosed with Rett Syndrome. It was also a huge turning point in our lives. We decided that we were not going to just sit around asking why, and let Rett just happen to us. Instead we are going to ATTACK Rett Syndome! We will give Mackenzie the best life we can, figure out our part in all of this, and will do our best to raise awareness, and funding to find a cure! We will never give up on her, and will never give up on the fight against Rett.

Please keep Mackenzie in your prayers and consider helping us raise funding to find a cure for these silent sweethearts.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (35)

  1. Val Maglio 
    2 months ago
    $100
  2. Rebecca Rickabaugh 
    3 months ago
    $50
  3. LLR Inc. 
    5 months ago
    $152.50
  4. Emma Zonetti 
    5 months ago
    $110
  5. Rachel Germershausen 
    5 months ago
    $20
  6. Debra James 
    5 months ago
    $25
  7. Kayla Toulson 
    5 months ago
    $100
  8. Donna Garrett 
    5 months ago
    $20
  9. Anonymous 
    5 months ago
    $30
  10. Penny and Bruce Hope 
    5 months ago
    $100
  11. Emma Zonetti 
    5 months ago
    $20
  12. Karla and Travis Tryon  
    5 months ago
    $40
  13. Ann Scotti 
    5 months ago
    $100
  14. Elizabeth Garrett 
    5 months ago
    $20
  15. Shona Hoffman 
    5 months ago
    $20
  16. Katie Roberts 
    5 months ago
    $295
  17. Jessica Muir 
    6 months ago
    $50
  18. Shanan Glasgow 
    6 months ago
    $20
  19. Mary Lou Walker 
    6 months ago
    $40
  20. Melissa Thompson 
    6 months ago
    $20
  21. Danielle Molyneaux  
    6 months ago
    $20
  22. Jessica Miller 
    6 months ago
    $50
  23. Nikki Sindorf 
    6 months ago
    $20
  24. Krystal Abdalla 
    6 months ago
    $20
  25. Meaghan Kline 
    6 months ago
    $20
  26. Christine Frost 
    6 months ago
    $100
  27. Dottie Stokes 
    6 months ago
    $100
  28. Shirley Williams 
    6 months ago
    $50
  29. Kristie Tapper  
    6 months ago
    $20
  30. Bruce Gordon 
    6 months ago
    $50
  31. Kim Lentzsch  
    6 months ago
    $40
  32. Karan Higgins 
    6 months ago
    $100
  33. Samantha Rutherford 
    6 months ago
    $20
  34. Cecilia Sadler 
    6 months ago
    $50
  35. Jackie Malecki 
    6 months ago
    $100

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