A Cure for Mackenzie

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Our sweetheart Mackenzie was born a beautiful healthy baby girl on February 16, 2016. She has been perfect since day one. However, we started to notice Mackenzie wasn’t meeting milestones (crawling and walking etc) around 9 months. It took a little over a year of genetic and neurological testing but we finally got a diagnosis. February 1st 2018 was a day we will never forget. It was the day that our amazing little girl was diagnosed with Rett Syndrome. It was also a huge turning point in our lives. We decided that we were not going to just sit around asking why, and let Rett just happen to us. Instead we are going to ATTACK Rett Syndome! We will give Mackenzie the best life we can, figure out our part in all of this, and will do our best to raise awareness, and funding to find a cure! We will never give up on her, and will never give up on the fight against Rett.

Please keep Mackenzie in your prayers and consider helping us raise funding to find a cure for these silent sweethearts.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (39)

  1. Ann Scotti Guinn 
    1 week ago
    $100
  2. Anonymous 
    3 weeks ago
    $500
  3. Jessica Miller 
    7 months ago
    $25
  4. Pop pop and mom mom r Roberts  
    10 months ago
    $250
  5. Val Maglio 
    1 year ago
    $100
  6. Rebecca Rickabaugh 
    1 year ago
    $50
  7. LLR Inc. 
    1 year ago
    $152.50
  8. Emma Zonetti 
    1 year ago
    $110
  9. Rachel Germershausen 
    1 year ago
    $20
  10. Debra James 
    1 year ago
    $25
  11. Kayla Toulson 
    1 year ago
    $100
  12. Donna Garrett 
    1 year ago
    $20
  13. Anonymous 
    1 year ago
    $30
  14. Penny and Bruce Hope 
    1 year ago
    $100
  15. Emma Zonetti 
    1 year ago
    $20
  16. Karla and Travis Tryon  
    1 year ago
    $40
  17. Ann Scotti 
    1 year ago
    $100
  18. Elizabeth Garrett 
    1 year ago
    $20
  19. Shona Hoffman 
    1 year ago
    $20
  20. Katie Roberts 
    1 year ago
    $295
  21. Jessica Muir 
    1 year ago
    $50
  22. Shanan Glasgow 
    1 year ago
    $20
  23. Mary Lou Walker 
    1 year ago
    $40
  24. Melissa Thompson 
    1 year ago
    $20
  25. Danielle Molyneaux  
    1 year ago
    $20
  26. Jessica Miller 
    1 year ago
    $50
  27. Nikki Sindorf 
    1 year ago
    $20
  28. Krystal Abdalla 
    1 year ago
    $20
  29. Meaghan Kline 
    1 year ago
    $20
  30. Christine Frost 
    1 year ago
    $100
  31. Dottie Stokes 
    1 year ago
    $100
  32. Shirley Williams 
    1 year ago
    $50
  33. Kristie Tapper  
    1 year ago
    $20
  34. Bruce Gordon 
    1 year ago
    $50
  35. Kim Lentzsch  
    1 year ago
    $40
  36. Karan Higgins 
    1 year ago
    $100
  37. Samantha Rutherford 
    2 years ago
    $20
  38. Cecilia Sadler 
    2 years ago
    $50
  39. Jackie Malecki 
    2 years ago
    $100

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