A Cure for Korrie

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Korrie is a beautiful 3 year old girl. She was just diagnosed with Rett Syndrome in November 2018. She is a happy girl and full of life. She loves to smile and has the silliest personality. Bouncing in her jumper, listening to music, reading books and being outside are a few of her favorite things. She also LOVES her hair.

We have been on this journey since Korrie was 1. Receiving this diagnosis was a relief in a way as we had been looking for answers for so long. Now we know how to best help her, and knowing the cure is within reach is such a comfort! We are surrounded by an incredible community of Rett families and for that we are so thankful.

We hope you will support Korrie’s campaign for the Rett Syndrome Research Trust. Every contribution matters. Thank you.

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (4)

  1. Sarah hart 
    9 months ago
  2. Money Stevenson 
    9 months ago
  3. Marty Sanders 
    9 months ago
  4. Anonymous 
    9 months ago

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