A Cure for Khloe

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Our beautiful daughter Khloe was diagnosed with Rett Syndrome at the age of 2. It was devastating news that shook our world in ways that no parent should ever have to experience. Rett Syndrome is a serious neurological disorder that afflicts girls almost exclusively. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic problems are common.

Something as simple as being able to hear your child say I love you was now impossible for us. The dreams and plans we had for the future came to an abrupt end….. That is, until now. We learned about the many research projects being carried out by an organization called the Rett Syndrome Research Trust in the US. It funds projects meant to improve the conditions of life for Rett patients as well as a cure. Yes, a cure is coming and has already been proven possible by reversing Rett Syndrome in mice. RSRT is now focusing on translating that remarkable achievement to girls with Rett. Human clinical trials are in the near future. But they need our help in finding funds for these vital trials and research. Please consider helping making this miracle for Khloe and all other families affected by Rett. All of the money collected by RettGive goes directly to research.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (17)

  1. United Parcel Service  
    7 months ago
    $250
  2. Andrzej Ankudowicz 
    8 months ago
    $235
  3. Linda Pizzi 
    8 months ago
    $50
  4. Jacqueline Peter 
    10 months ago
    $20
  5. Irena Wyszkowska 
    10 months ago
    $100
  6. Marta Eiche 
    10 months ago
    $100
  7. Marek Dabrowski 
    10 months ago
    $100
  8. Marie Joyce 
    1 year ago
    $30
  9. Mateusz Wójcik 
    1 year ago
    $50
  10. Joyce Santana 
    1 year ago
    $50
  11. Jagoda Petschke 
    1 year ago
    $20
  12. Marek Dabrowski 
    1 year ago
    $100
  13. Kristina Severyn 
    1 year ago
    $200
  14. joanna moscicki 
    1 year ago
    $20
  15. Anna jablonski 
    1 year ago
    $50
  16. Agnieszka Kuszczak 
    1 year ago
    $100
  17. Tim Freeman 
    1 year ago
    $50

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