A Cure for Daphne!

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Daphne Faye Calvert changed our life forever the day she was born on 6/21/16. Her big sister Sadie has always been the best of help and is the FUNNEST person in Daphne's eyes. We were the perfect little family and feeling so lucky to have such healthy beautiful girls. Daphne was reaching all of her milestones although never crawled or walked. All of a sudden at around 18 months old, she could no longer feed herself or hold toys, after looking up what Rett Syndrome was, whether we liked it or not, we knew that’s what she had. Her hands were (and still are) not of much use. We started genetic testing and got our official Rett diagnosis we had been waiting for on 2/23/18.

Through it all Daphne has been the light of our life with smiles and giggles and learning to communicate through facial expressions, we are so lucky to have her in our lives. Even though Rett does not define her, it’s a horrible disorder that we know is already frustrating for her. There are SO MANY medical issues she will have in her future although we don’t know what they will be. Since she is only 2 we haven’t seen much of this. We know Rett has not even reared its true ugliness yet and we already hate it. It restricts her from the things she wants to do. She is so cognitively smart and very social with people - we wish Rett was not in her way. Leigh and I are lucky to be able to afford her medical bills, medications, and equipment. We are also so lucky to have such a large support group of people wanting to help...this is how we ask for your help: DONATE! We kindly ask all of our friends and family to donate toward RSRT to help find the CURE!! We are so close to finding a cure and if we are able to, it would change not only Daphne's life but so many other kids who deserve their own voice and hands and movement.



Each donation will receive a thank you note from Daphne. Level 5 will get an invitation to Daphne's catered and sponsored 3rd birthday party next year and VIP treatment during the event.

All our love, the Calvert Family


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

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