A Cure for Christmas 3.0

  • Description
  • FAQ
  • Comments
  • Supporters

Our sweet daughter, Gisele, was diagnosed with atypical Rett Syndrome in September 2014 at the age of 3 years old. In the two years since her diagnosis, my wife and I have mostly adjusted to the new normal of constant challenges, daily therapies, and an unknown future. But, we remain optimistic that the research, funded in part by generous donations to campaigns such as this, will one day cure our daughter and the 350,000 girls and women around the world like her.


Currently, there is neither a cure nor effective treatments. HOWEVER, the research is promising and donations from this campaign make a significant impact to the cause.


PRIMER ON RETT SYNDROME

Rett Syndrome is a neurological disorder that affects less than 1 in 10,000 girls, striking completely randomly during childhood.

Picture a perfectly [thought-to-be] healthy child, developing normally (crawling, walking, talking, etc.) for several months to years then rapidly regressing

Picture a child with: severe autism + cerebral palsy + epilepsy + anxiety + speech and behavior disorder(s) + too many others to mention = a child with Rett Syndrome


(You can read more by clicking on the FAQ tab at the top of this page or clicking the following links:

About Rett Syndrome

Current Research


MY GOAL

Raise at least $50,000 to help contribute to finding treatments and a cure.


MY WISH FOR GISELE

While most children wish for Santa to bring them toys and games, and then unwrap the gifts in the presence of loving parents and relatives, my daughter is unable to communicate her wishes or even unwrap presents. My wish for Gisele is that one day she can "unwrap" the best gift of all, a cure for Rett.


MY PLEDGE

Like in previous A Cure for Christmas campaigns, I will grow my beard beginning on Giving Tuesday (Nov 29th) and keep it without trimming until after Christmas. On Christmas morning, I dress as Santa to go along with my beard and help my daughter unwrap presents. I look forward to the year when she the present she "unwraps" is a cure for Rett.


We will match $1,000 for every $10,000 that's donated (up to a match of $10,000).


Thank you for your support!

MJ and Brenna


P.S.  RSRT (Rett Syndrome Research Trust), has an incredibly low expense ratio. Over 95% of funds raised go directly to research.


What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world’s premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (190)

  1. Nicole Welch 
    8 months ago
    $250
  2. Rebecca Perlmutter 
    10 months ago
    $500
  3. Michael Memoly 
    11 months ago
    $250
  4. LBA Realty Charitable Foundation Fund 
    12 months ago
    $2,500
  5. Don Hirose 
    1 year ago
    $500
  6. Adam Pastor 
    1 year ago
    $500
  7. Andrea Leslie 
    1 year ago
    $50
  8. Alan Carmichael 
    1 year ago
    $250
  9. dale camera 
    1 year ago
    $200
  10. Stephen Sprenger 
    1 year ago
    $1,000
  11. Jeff Chiate 
    1 year ago
    $500
  12. Heather Anzelc 
    1 year ago
    $100
  13. Steve & Barbara Layton 
    1 year ago
    $2,500
  14. Eloy Covarrubias 
    1 year ago
    $1,000
  15. Sarah Ammon 
    1 year ago
    $75
  16. Jonathan Carley 
    1 year ago
    $50
  17. Patrick Inglis 
    1 year ago
    $50
  18. Timothy Brosnan 
    1 year ago
    $250
  19. Bob O\'Neill 
    1 year ago
    $100
  20. Christine Brewer 
    1 year ago
    $500
  21. Cameron Driscoll 
    1 year ago
    $100
  22. Michael Johnson 
    1 year ago
    $6,000
  23. Danielle Ballantyne 
    1 year ago
    $50
  24. John Crawford 
    1 year ago
    $250
  25. Eric Mendelson 
    1 year ago
    $10
  26. Sue Johnson 
    1 year ago
    $1,000
  27. Neil Banerjee 
    1 year ago
    $100
  28. Lindsay Russell 
    1 year ago
    $100
  29. Don Shaver 
    1 year ago
    $250
  30. Sara Johnston 
    1 year ago
    $100
  31. Stefan Rust 
    1 year ago
    $50
  32. Cindy Brooks 
    1 year ago
    $25
  33. Tom Rutherford 
    1 year ago
    $250
  34. Channing Freeman 
    1 year ago
    $50
  35. Karen Mcroberts  
    1 year ago
    $500
  36. Brad Neglia 
    1 year ago
    $500
  37. Marybeth Miller  
    1 year ago
    $50
  38. Liezl Van Riper 
    1 year ago
    $100
  39. Joseph Finnigan 
    1 year ago
    $250
  40. Lynette Austin  
    1 year ago
    $100
  41. K.C. Scheipe  
    1 year ago
    $500
  42. Adriana Isacke 
    1 year ago
    $100
  43. Sung Lee 
    1 year ago
    $250
  44. Jessica Howard 
    1 year ago
    $100
  45. Gina Welc 
    1 year ago
    $50
  46. Matthew Mexia 
    1 year ago
    $250
  47. Sammie Peng 
    1 year ago
    $100
  48. Forest Wilkerson 
    1 year ago
    $100
  49. Carla Holland 
    1 year ago
    $50
  50. Hilary Isacke 
    1 year ago
    $1,000
  51. Mia Kely 
    1 year ago
    $100
  52. Lisa Schafer 
    1 year ago
    $30
  53. The D\'Amato Family 
    1 year ago
    $100
  54. Erin Molino 
    1 year ago
    $100
  55. Cortney Donaldson 
    1 year ago
    $250
  56. Adam & Tammie Cox 
    1 year ago
    $100
  57. Shannon Lamb 
    1 year ago
    $100
  58. Tiffany North 
    1 year ago
    $50
  59. anthony bejarano 
    1 year ago
    $50
  60. Barbara Emmons  
    1 year ago
    $250
  61. cameron merrill 
    1 year ago
    $250
  62. Nick Spatafore 
    1 year ago
    $100
  63. Tim Howard 
    1 year ago
    $500
  64. Michael Goldwater 
    1 year ago
    $100
  65. Kristin Bendt 
    1 year ago
    $50
  66. Steve Haston 
    1 year ago
    $1,000
  67. Peter McWilliams 
    1 year ago
    $500
  68. Rooney Daschbach 
    1 year ago
    $100
  69. Nando Parete 
    1 year ago
    $250
  70. Dominic & Jennifer Petrucci 
    1 year ago
    $500
  71. david dowd 
    1 year ago
    $250
  72. Pamela Wilson 
    1 year ago
    $100
  73. Joseph George 
    1 year ago
    $250
  74. Milo Lipson 
    1 year ago
    $100
  75. Michael Hartel 
    1 year ago
    $100
  76. Charles and Bridget Belden 
    1 year ago
    $500
  77. John Collins 
    1 year ago
    $250
  78. Christina Gruneisen 
    1 year ago
    $50
  79. Robert Hollmann 
    1 year ago
    $50
  80. H Stanley Johnson 
    1 year ago
    $2,500
  81. Denise Donofrio 
    1 year ago
    $50
  82. Lyndsay Avalos 
    1 year ago
    $50
  83. Perry Schonfeld 
    1 year ago
    $1,000
  84. Miles Isacke 
    1 year ago
    $1,400
  85. mike margileth 
    1 year ago
    $250
  86. Stacy Paek 
    1 year ago
    $500
  87. Rob Lujan 
    1 year ago
    $50
  88. Nick Siemsen 
    1 year ago
    $250
  89. Loretta Pollack 
    1 year ago
    $100
  90. DAVID THOMAS 
    1 year ago
    $5,000
  91. Melanie Colbert 
    1 year ago
    $250
  92. Eric Brown 
    1 year ago
    $500
  93. craig kaplan 
    1 year ago
    $250
  94. Jeff Badertscher 
    1 year ago
    $150
  95. John Garrigan 
    1 year ago
    $500
  96. Claudine Gamboa 
    1 year ago
    $100
  97. Mark Zorn 
    1 year ago
    $100
  98. Lynn Knox 
    1 year ago
    $100
  99. Nicole Welch 
    1 year ago
    $500
  100. Sue Johnson 
    1 year ago
    $1,600
  101. Jim Koenig 
    1 year ago
    $250
  102. Dana Cox 
    1 year ago
    $1,000
  103. Jeffrey Cole 
    1 year ago
    $150
  104. David and Shari Wensley 
    1 year ago
    $500
  105. Clyde Stauff 
    1 year ago
    $200
  106. william kearns 
    1 year ago
    $1,000
  107. donna clark 
    1 year ago
    $50
  108. Erik Larson 
    1 year ago
    $500
  109. Philip Lombardo 
    1 year ago
    $500
  110. gus andros 
    1 year ago
    $250
  111. Louis Tomaselli 
    1 year ago
    $1,000
  112. chris sheehan 
    1 year ago
    $250
  113. Jeff Sanita 
    1 year ago
    $250
  114. Wesley Talich 
    1 year ago
    $100
  115. Anonymous  
    1 year ago
    $2,500
  116. Richard Schwartz 
    1 year ago
    $100
  117. Danielle France 
    1 year ago
    $250
  118. Kristine H 
    1 year ago
    $100
  119. Alison & Mike Vukovich 
    1 year ago
    $250
  120. Ryan Cooke 
    1 year ago
    $150
  121. Stacey LePech 
    1 year ago
    $100
  122. Lisa Ellis 
    1 year ago
    $100
  123. Tony and Marian Welch 
    1 year ago
    $100
  124. beth fisher 
    1 year ago
    $300
  125. Mark Repstad 
    1 year ago
    $500
  126. Ryan Velasquez 
    1 year ago
    $50
  127. Michael Vernick 
    1 year ago
    $100
  128. Plautz Bill 
    1 year ago
    $500
  129. Richard Mendelson 
    1 year ago
    $2,500
  130. Brad Yates 
    1 year ago
    $500
  131. Jeff Smith 
    1 year ago
    $500
  132. Adam Edwards 
    1 year ago
    $500
  133. Deanna Horst 
    1 year ago
    $1,000
  134. Kaitlyn Wilbraham 
    1 year ago
    $100
  135. Eloy Covarrubias 
    1 year ago
    $2,500
  136. Paul Jones 
    1 year ago
    $250
  137. David Prior 
    1 year ago
    $250
  138. Kaelin Currie 
    1 year ago
    $100
  139. John & Jennifer McMillan 
    1 year ago
    $500
  140. Alison Shimizu 
    1 year ago
    $50
  141. Eve Lake 
    1 year ago
    $100
  142. Tim Farahnik 
    1 year ago
    $500
  143. Sean Ward 
    1 year ago
    $250
  144. Elliott Almond 
    1 year ago
    $100
  145. Erin Kaplan 
    1 year ago
    $100
  146. Veronica Drascich 
    1 year ago
    $50
  147. Steve & Sue Silk 
    1 year ago
    $1,000
  148. Michael Bouma 
    1 year ago
    $250
  149. Tim Pimentel 
    1 year ago
    $250
  150. jonathan pauls 
    1 year ago
    $100
  151. Matthew Semmer 
    1 year ago
    $100
  152. Jett McCormick 
    1 year ago
    $100
  153. Adam Schwartz 
    1 year ago
    $100
  154. Zachary Sakowski 
    1 year ago
    $500
  155. Darla Longo 
    1 year ago
    $500
  156. Tim Sullivan 
    1 year ago
    $250
  157. Michael Chavez 
    1 year ago
    $100
  158. Robert Lambert 
    1 year ago
    $100
  159. Jake Swan 
    1 year ago
    $250
  160. Chuck Littell 
    1 year ago
    $50
  161. Barry Hill 
    1 year ago
    $100
  162. Frank Schulz 
    1 year ago
    $250
  163. Bill Heim 
    1 year ago
    $2,500
  164. Eduardo Martorell 
    1 year ago
    $50
  165. Andrew Briner 
    1 year ago
    $1,000
  166. Susan Borst 
    1 year ago
    $250
  167. Jeff Huberman 
    1 year ago
    $1,000
  168. Steve Young 
    1 year ago
    $250
  169. Stephen Wagner 
    1 year ago
    $100
  170. Garrett Toft 
    1 year ago
    $250
  171. Joey Sugar 
    1 year ago
    $150
  172. Todd Tydlaska 
    1 year ago
    $250
  173. Alice Wilson 
    1 year ago
    $100
  174. Stacy Villarreal 
    1 year ago
    $50
  175. karen penhall 
    1 year ago
    $100
  176. Souwleen Lisseth Chang-ho 
    1 year ago
    $100
  177. Christa Sutter 
    1 year ago
    $50
  178. Paul Johnson 
    1 year ago
    $100
  179. Robert Hubbard III 
    1 year ago
    $250
  180. Ross Boughton 
    1 year ago
    $200
  181. Georgette Taylor 
    1 year ago
    $100
  182. Brittney Bowman 
    1 year ago
    $50
  183. Miriam Otero 
    1 year ago
    $100
  184. Tom & Allison Motherway 
    1 year ago
    $1,000
  185. Giao Hoang 
    1 year ago
    $100
  186. Michael Coppola 
    1 year ago
    $250
  187. Allison Beck 
    1 year ago
    $30
  188. Priscilla Cirino 
    1 year ago
    $30
  189. Robert Kubichek 
    1 year ago
    $100
  190. Anonymous  
    1 year ago
    $100

This is a unique website which will require a more modern browser to work!

Please upgrade today!