A Cure for Azalea

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Meet Azalea! She is 2 and full of life. She was diagnosed with Rett Syndrome this past July. It was a terrible thing to hear that your daughter has a neurological disorder that will affect nearly every aspect of my child's life—the ability to speak, walk, eat, and breathe easily.

Azalea may have Rett Syndrome, but that is not what defines her. She loves Minnie Mouse, her crazy ball, and late night parties with her monkey! Azalea has numerous therapy sessions a week. She stands great in her stander. She does suffer from seizures, which makes it difficult with sleeping, irritability and mood swings.

Please help us cure Azalea so we can see her run with her siblings and hear her say "I love you"!

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive the development of treatments and cures for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

By funding the most Rett research worldwide, $35 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (4)

  1. Jane Bunnett 
    2 years ago
  2. Linda Gidley 
    2 years ago
  3. Richard Voorhees  
    2 years ago
  4. Aileen Beyer 
    2 years ago

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