A Cure for Autumn

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I am doing this campaign for a cure for Rett Syndrome, we are not going to accept the fact that is no cure. Autumn’s parents Zack and Hailey and I, her grandmother, have faith and hope that Autumn will be cured one day.

Autumn’s smile can make you forget all your troubles and when she laughs it lights up the whole world and when she looks at you with her big beautiful, bright, blue eyes, you become so consumed with her love. She loves Disney movies that sing and dance and that are colorful, Frozen is her favorite.  If you met her, you would be amazed. Getting this diagnosis was so unexpected for her parents, but her parents are just as strong as she is. We will not give up and I know for a fact that Autumn will not give up, so do not give up on her.

What is Rett Syndrome?

Rett Syndrome is serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear in toddlerhood. Many children with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Despite the debilitating nature of the disorder our girls are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. Our confidence that Rett Syndrome is curable guides our every decision.

Learn more about Rett here.

Who is RSRT?

The Rett Syndrome Research Trust (RSRT) was launched in 2008 with a singular goal: to drive research to a cure for Rett Syndrome and related MECP2 disorders. As one of the few neurological disorders to demonstrate dramatic symptom reversal in the lab, Rett Syndrome has captured the attention of the world's premiere university and pharmaceutical industry scientists. RSRT is operating at the nexus of this activity, leading and advancing the research agenda.

In 2017 RSRT launched a three-year, $33 million strategic plan called Roadmap to a Cure. The plan prioritizes four scientific approaches that attack the disorder at its genetic core and offer the possibility of a profound reversal. Roadmap to a Cure is the only comprehensive plan ever developed by any organization anywhere to advance a cure for Rett Syndrome.

By funding the most Rett research worldwide, $58 million since 2008, we strive to put ourselves out of business as soon as possible.

Learn more about RSRT here.

Supporters (1)

  1. Anonymous 
    1 year ago

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