Will Devin and Malin ever hear their little girl say, “Mama, Daddy, I love you”?
Yes. Here’s why:
There are more than 1 in 10,000 girls and women with Rett syndrome, approximately 350,000 worldwide. They are desperate.
An average of 93% of every dollar you donate goes directly toward finding a cure for Rett syndrome.
In the last 15 years RSRT, a 501(c)(3) charity, raised nearly $100 million towards this goal. That’s a stunning amount.
Early clinical trials in gene therapy have begun, undergirded largely by RSRT-funded research into a cure for Rett. Such a possibility was unthinkable even 20 years ago.
In 2023, in the first clinical trial, Patient One was dosed. After six months, she showed enough improvement, according to nine biological markers, that Patient Two was dosed.
The clinical trials and the research continue. There’s so much more to be done. Lily gets older every day. She will be 9 on December 5.
Please support our intense effort to perfect a cure for Rett syndrome now. If you do, we will reach the goal sooner than any of us can believe.
Thank you!
Ann Fromm & Bill Payne
Devin Fromm & Malin Delling
Sapphire for Lily
1 Donor
Emerald for Lily
4 Donors
Blue Topaz, Lily's Birthstone
6 Donors
Lapis Lazuli for Lily
15 Donors
| Name | Donation Amount | Date |
|---|---|---|
| Steven Goodman | $250 | March 22, 2024 |
| Colleen & Jay McKenna | $500 | March 22, 2024 |
| James and Sarah Cauley | $1,000 | January 31, 2024 |
| Stewart Libicki | $50 | January 08, 2024 |
| William Pietragallo | $100 | December 28, 2023 |
| Martha Beard | $1,000 | December 29, 2023 |
| Marian Jane McKenna | $1,000 | December 27, 2023 |
| Sheila Fine | $200 | December 27, 2023 |
| Kathleen Gavigan | $500 | December 27, 2023 |
| Madelyn Curtin | $50 | December 27, 2023 |
| Joan Ewing | $150 | December 27, 2023 |
| Kris Davitt & Rick Barr | $500 | December 26, 2023 |
| Jan Wagner | $100 | December 22, 2023 |
| Gohar BEHDADNIA | $200 | December 22, 2023 |
| BARMAK BEHDADNIA | $200 | December 22, 2023 |
| Edwin & Mona Strassburger | $250 | December 19, 2023 |
| Mary McKenna | $150 | December 18, 2023 |
| David and Colleen OBrien | $100 | December 18, 2023 |
| Marie Hinchliffe | $100 | December 18, 2023 |
| Larry & Julia Ondako | $300 | December 18, 2023 |
| Donald & Arleen Wagner | $250 | December 18, 2023 |
| Ryan McKenna | $250 | December 16, 2023 |
| Chris Gillotti | $100 | December 16, 2023 |
| Roberta Lucchino | $200 | December 15, 2023 |
| Susan & Jim Herald | $250 | December 15, 2023 |
| DAN SCHREIBEIS | $125 | December 14, 2023 |
| Linda Cochran | $100 | December 13, 2023 |
| J. and Raymond Smith | $200 | December 13, 2023 |
| Erika Staff & Jordan Strassburger | $250 | December 13, 2023 |
| Dolly Gee | $100 | December 13, 2023 |
| Kathy Laboon | $50 | December 13, 2023 |
| karen/joe Kelley | $200 | December 12, 2023 |
| Jane Waller | $100 | December 12, 2023 |
| Anne Grignon | $50 | December 11, 2023 |
| Poth Family Poth Jr | $500 | December 11, 2023 |
| Hugh & Carole Curtin | $500 | December 11, 2023 |
| Roslyn Segall | $100 | December 11, 2023 |
| Barbara Milton | $100 | December 11, 2023 |
| Paul & Penny McKenna | $250 | December 11, 2023 |
| Donna Timcho | $100 | December 11, 2023 |
| Margaret Runnette | $100 | December 11, 2023 |
| Kristen Hatch | $100 | December 11, 2023 |
| Anonymous | $250 | December 10, 2023 |
| Timothy Freeman | $100 | December 10, 2023 |
| Malvina Epstein | $100 | December 09, 2023 |
| Dorothy Cloherty | $50 | December 08, 2023 |
| Linda Thier | $100 | December 07, 2023 |
| Joseph Stuligross | $250 | December 04, 2023 |
| Kate & Al Lewis | $50 | December 04, 2023 |
| Beth & Chris Petersen | $2,500 | December 04, 2023 |
| Eleanor Heger | $100 | December 02, 2023 |
| Deb Heppner | $50 | December 02, 2023 |
| Lynn Detrick | $250 | December 01, 2023 |
| Ted & Carol Payne | $100 | December 01, 2023 |
| Lynn A Lagomarsino | $100 | December 01, 2023 |
| bruce fickman | $150 | December 01, 2023 |
| Anonymous | $50 | December 01, 2023 |
| Louis Certo | $100 | December 01, 2023 |
| Charlotte Zuschlag | $100 | December 01, 2023 |
| Janet & John Conomos | $250 | December 01, 2023 |
| Richard Findlan | $500 | December 01, 2023 |
| Carol Robinson | $300 | November 30, 2023 |
| Carolyn Morris | $50 | November 30, 2023 |
| DAVID EHRENWERTH | $50 | November 30, 2023 |
| Elaine McKenna | $25 | November 30, 2023 |
| Ronald Dean | $100 | November 30, 2023 |
| Edward Ifft Jr | $250 | November 30, 2023 |
| Naomi Herman | $50 | November 30, 2023 |
| Richard Rosenblatt | $250 | November 30, 2023 |
| Tila and Paul Cohen | $50 | November 30, 2023 |
| Gaylen Westfall | $50 | November 30, 2023 |
| Ann Fromm & Bill Payne | $20,000 | November 28, 2023 |