Zoey’s 2021 Miracle Campaign

A campaign by: Dennis & Bonnie Adair / $8,000 Goal
22 Donors
Raised Percent :
61.88%

61.88% Funded
, United States (US)
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Hi Everyone,

We hope all of you have survived the past year in good health and spirits.  Zoey had an excellent year in kindergarten with the help of her aide, eye gaze device and yes/no card.  She continues to be a very happy girl most of the time.  With the help of her aide and classmates’ understanding, she enjoys participating in their recess activities, and continues to enjoy crafts with Grandma, pool time, and her therapeutic horseback riding.  She is outgrowing her wheelchair and she selected bright red for her new one, and wanted nothing to do with the other colors when her Mom asked her.

With your generosity, we achieved our $7500 goal last year, and we hope you will help us achieve $8000 this year.  We will continue to match your donations up to $10,000.  I continue to be very impressed by Rett Syndrome Research Trust (RSRT) and what they accomplish with limited resources. It is critical that we continue to support their efforts for Zoey and the others with Rett Syndrome.

RSRT continues to support 6 different strategies to potential cures as it is not possible to predict which will ultimately be successful.  Two years ago, Novartis (AveXis) gene replacement seemed to be significantly ahead, but now a MECP2 Reactivation therapy is about on the same timeline for clinical trials and potential general use hopefully by 2025.  Another biotech company, Taysha, is planning to launch a gene replacement clinical trial before the end of this year, which is possible because of data generated by RSRT-funded researchers. Plus there is good news from other genetic disorder clinical trials that give hope that when a cure is available, Zoey will be able to recover many of the development milestones that she has missed.

Dennis & Bonnie

Donation Amount Minimum amount is $ Maximum amount is $10000
Donation levels

$1000

Zoey's Superhero

1 Donor

$500

Zoey's Hero

3 Donors

$250

Zoey's Guardian

2 Donors

$100

Zoey's Hope

11 Donors

$50

Zoey's Friend

5 Donors

Name Donate Amount Date
Jane DECK $100.00 November 30, 2021
John Hnatishion $50.00 November 29, 2021
Gretchen Fisher $100.00 November 17, 2021
Gerald Urich $100.00 November 15, 2021
Patsy Primost $100.00 November 15, 2021
Pamela Bucher $50.00 November 13, 2021
Wesley Petery $500.00 November 03, 2021
Gates Family $750.00 November 02, 2021
David Tacka $1,200.00 November 02, 2021
Bethany & Mark Novis $200.00 November 02, 2021
Matthew Lebo $100.00 November 02, 2021
Jeff & Sue Kemmerer $100.00 November 01, 2021
Scott Buesking $100.00 November 01, 2021
Jeff Edleman $250.00 November 01, 2021
William Buckfelder $250.00 October 30, 2021
Patricia Peffley $150.00 October 21, 2021
Matthew Freidly $100.00 October 18, 2021
Suzanne Miller $50.00 October 18, 2021
Jeffrey Doane $500.00 October 18, 2021
Martha Petery $100.00 October 17, 2021
Charles Mackey $50.00 October 15, 2021
Marcia Perrotti $50.00 October 14, 2021