Thanksgiving for Lily

A campaign by: Ann Fromm & Bill Payne / $75,000 Goal
105 Donors
Raised Percent :
50.43%

50.43% Funded
, United States (US)
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Lily, 6, makes us happy.  When those outstanding volunteers took her surfing last summer, we were thrilled.  You could see it on Lily’s face — in her wide open smiles, her excited arm motions.  We could have cried for the joy we felt.  You can see it in the video below.  Likewise, when Lily looks in the mirror and sees herself in a beautiful new dress, and a smile cracks open her face:  that makes us happy, too.  There are a million things like this!

Yet it’s Lily’s mom or dad who has slipped the dress over Lily’s head, and propped her in front of the mirror to see herself.  It’s her parents who have handed her over to volunteers for surfing.  Lily herself can’t do anything.  She can’t walk or talk, use her fingers, or indicate a yes or no with a headshake or nod.

No child should live like this, trapped in, unable to say, “I love that dress!” or “Thank you for taking me surfing.”  Children with Rett Syndrome can’t even type those words.

I’m Lily’s grandmother.  Along with my wonderful husband, and my extraordinary children and their spouses, I’m committed to fund-raising in order to find a cure for Rett Syndrome.  It’s a single-gene disease.  It’s been reversed in laboratory animals.  Our children can be cured!  It’s a matter of time and money.  Money drives science and shortens the time.  Your past donations have already helped, since clinical trials are scheduled to begin as soon as the coming new year.  RSRT is proud to have funded the underpinnings of these trials.

This Thanksgiving, and always, we are grateful for Lily.  We are also hopeful for her future.  If you’ve already donated, thank you more than I can say.

Ann Fromm

Donation Amount Minimum amount is $ Maximum amount is $10000
Name Donate Amount Date
Loretta Lobes $150.00 November 24, 2021
Judith Stafford $100.00 November 24, 2021
Jeff Markel & Carol Robinson $250.00 November 24, 2021
Bob Ward $50.00 November 24, 2021
Edward & Judy Walter $100.00 November 24, 2021
Mraianne Corbett $50.00 November 24, 2021
Suzanne Steitz $100.00 November 24, 2021
Joan Shoemaker $150.00 November 24, 2021
Karl Haglund $50.00 November 22, 2021
jeanie schlafly $200.00 November 20, 2021
David & Susan Sunseri $75.00 November 19, 2021
Roslyn Segall $100.00 November 19, 2021
James Cauley $500.00 November 19, 2021
G D SCHREIBEIS $125.00 November 18, 2021
Herald Family $500.00 November 17, 2021
Hugh & Carole Curtin $500.00 November 17, 2021
Geoff & Lois Foley $200.00 November 17, 2021
David & Colleen O'Brien $200.00 November 17, 2021
Eugene Conti $250.00 November 17, 2021
Joseph & Marie Hinchliffe $100.00 November 17, 2021
Dolly Gee $100.00 November 17, 2021
Louis & Alessandra Certo $25.00 November 17, 2021
Karl Fromm $100.00 November 17, 2021
J W C Sucoop $150.00 November 17, 2021
J. & Kathleen Friday $100.00 November 17, 2021
Annie & Bernard McKenna $50.00 November 17, 2021
Ellen Doyle & Lawrence Frolik $250.00 November 17, 2021
John & Missy Uncovic $200.00 November 17, 2021
KARL FROMM $100.00 November 17, 2021
Missy & John Unkovic $200.00 November 17, 2021
Mary Ann Stuart-Templeton $100.00 November 16, 2021
Nelson & Louise Person $50.00 November 16, 2021
Shelly Ann & Maurice Peconi $100.00 November 16, 2021
Chris & Barbara Gillotti $100.00 November 16, 2021
Bruce & Virginia Fickman $100.00 November 16, 2021
David & Malvina Epstein $100.00 November 16, 2021
Mark & Stephanie Veenis $250.00 November 16, 2021
Ronald Dean $250.00 November 16, 2021
Paul & Marsha Whitehead $500.00 November 16, 2021
John & Joan Ammer $100.00 November 16, 2021
James & Rose O'Malley $100.00 November 16, 2021
Chuck Lynn $75.00 November 16, 2021
Laura & Andrew Voigt $50.00 November 16, 2021
Raymond Smith $200.00 November 16, 2021
Dan & Dee Delaney $75.00 November 16, 2021
Janet Wagner $100.00 November 16, 2021
Thomas Friday $50.00 November 16, 2021
Stefan & Shirley Fromm $500.00 November 16, 2021
Edwin & Mona Strassburger $100.00 November 16, 2021
Larry & Julia Ondako $500.00 November 16, 2021
Marie Hinchliffe $100.00 November 15, 2021
Tila and Paul Cohen $50.00 November 14, 2021
Annie and Barney Mckenna $50.00 November 13, 2021
Bill & Barbara Henninger $500.00 November 13, 2021
MaryLou Gatewood $100.00 November 13, 2021
Lynda & Bob Hogan $100.00 November 13, 2021
James Fanning $200.00 November 13, 2021
Irma Lauble $25.00 November 13, 2021
Penny Holden $100.00 November 13, 2021
DONNA ROSENWASSER $100.00 November 11, 2021
Yaimi Vega $50.00 November 11, 2021
Margaret Mooney $50.00 November 11, 2021
Elizabeth Weaver $200.00 November 11, 2021
Martha Beard $200.00 November 10, 2021
Anonymous $50.00 November 10, 2021
Michele Bender $75.00 November 10, 2021
Collette Parker $100.00 November 10, 2021
Linda Barrett $100.00 November 10, 2021
Linda Bucci $200.00 November 10, 2021
Marcia & Karl Kline $250.00 November 09, 2021
Laurel Coppersmith $75.00 November 09, 2021
Alex & Leslie Sciulli $25.00 November 09, 2021
Mary & Harry Wagner $200.00 November 09, 2021
Gilda & Francis Hurite $50.00 November 09, 2021
Beth Petersen $1,000.00 November 09, 2021
Joan & John Ewing $150.00 November 09, 2021
Mary & John Maher $200.00 November 09, 2021
Jane and Mike Waller $100.00 November 09, 2021
Cynthia Cable $100.00 November 08, 2021
Howard Voigt $100.00 November 08, 2021
constance Bentzen $100.00 November 08, 2021
Charles Snyder $250.00 November 08, 2021
John Myers $150.00 November 08, 2021
Liza Brown $50.00 November 08, 2021
Barbara & Lee Reichbaum $100.00 November 08, 2021
Suzanne Steitz $100.00 November 08, 2021
Barbara Milton $100.00 November 08, 2021
Edward Ifft $200.00 November 08, 2021
Ted Payne $100.00 November 08, 2021
Doug Kittenbrink $250.00 November 08, 2021
Richard Findlan $200.00 November 08, 2021
Anonymous $1.00 November 08, 2021
Mary McKenna $100.00 November 08, 2021
Katherine Lewis $100.00 November 08, 2021
John Conomos $100.00 November 08, 2021
Naomi Herman $50.00 November 08, 2021
Kristin Wells $250.00 November 08, 2021
Judith Morrissey $100.00 November 08, 2021
Jeanne Berdik $100.00 November 08, 2021
Kathleen Laboon $50.00 November 08, 2021
Elaine Dullea $100.00 November 08, 2021
Richard Risenblatt $150.00 November 08, 2021
Ann Fromm & Bill Payne $20,000.00 October 23, 2021
Joyce & Edward Ging $2,000.00 October 23, 2021
Barbara Maher $100.00 October 23, 2021

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