2018/2019 for Daphne has seen some incredible highs and lows. One thing for certain, is when preparing things like this, you realize you only document by photo, the highs. In all you learn about Rett Syndrome, I am thankful that we have an abundance of photos of this amazing kid, smiling. She breaks our heart!
In 2018, we had the family move into our new, single level ADA friendly home – a place where we can optimize Daphne’s life for the long run. We celebrated the arrival of baby brother Dean Calvert. My word, how Dean and Daphne adore one another!
In 2019, we took the whole family, Dean and all, to England for a wedding, celebrating two close friends tying the knot. We got the chance to see lots of friends and family. Daphne also got her first opportunity to attend the Rett Clinic at Oregon Health and Science University, which was as good as we had hoped it would be.
Now, those were some amazing highs. The lows and challenges, I will review quick but not detail too much.
Insurance battles to get therapy….not only just to get therapy in WA (where we live), but to also get more than the allowance of 25 therapies for the year, which would cover physical therapy, speech therapy, occupational therapy. Most kids we read about with Rett in other states, get 4 sessions a week covered by insurance – we were struggling to get 1 every 2 weeks. Screaming…..Lord the screaming. High pitched, break glass screaming – albeit happy screaming so we can’t complain too much. Thankfully this has lowered! Sleeping – few and far between are full nights sleep, but we finally were prescribed a sleep medication that the pharmacist denied our access to because of Daphne’s age. She now has it, and she gets better sleep, which improved all aspects of her life. This includes her attitude in the day, her eating, physical therapy, playing and general interaction. A massive component!
This year, our goal is again $20,000 – and WE WILL BEAT IT! Last year we got so close and we’re thrilled with reaching 89% of the same goal ($17,877, provided by 152 supporters). This year, we will meet or surpass that goal, with all funds going to Reverse Rett. Human clinical trials are on the cards now, and with $8m left to raise, of the original $33m goal made in 2017, hopefully 2019 will bring more supporters to the community and we can see incredible things happen in the near future.
Thank you for your continued support. Thank you for continuing to raise awareness. Thank you for helping us Reverse Rett.
Love, Daphne & the rest of the Calvert Clan!
Donation Amount
Minimum amount is $
Maximum amount is $100000
Donation levels
$1000
Level 1
4 Donors
$500
Level 2
4 Donors
$300
Level 3
1 Donor
$200
Level 4
9 Donors
$100
Level 5
6 Donors
| Name | Donate Amount | Date |
|---|---|---|
| Anonymous | $25.00 | March 30, 2020 |
| Kenneth Chu | $10.00 | December 27, 2019 |
| Alastair McKenzie | $50.00 | December 19, 2019 |
| Anonymous | $1,000.00 | December 03, 2019 |
| Victoria Bain | $100.00 | November 27, 2019 |
| Christine Calvert | $200.00 | November 27, 2019 |
| Anonymous | $50.00 | November 27, 2019 |
| Jade Oliver | $100.00 | November 27, 2019 |
| Matt Gregg | $40.00 | November 27, 2019 |
| Peggy Hillis | $1,000.00 | November 27, 2019 |
| Laura and Leigh Oliver | $250.00 | November 27, 2019 |
| Natalie Jackson | $60.00 | November 27, 2019 |
| Anonymous | $500.00 | November 27, 2019 |
| Alisha M | $30.00 | November 27, 2019 |
| Jamie Kindschuh | $50.00 | November 27, 2019 |
| Karen Howard | $20.00 | November 27, 2019 |
| Anonymous | $650.00 | November 27, 2019 |
| Joan & Floyd Holmes | $200.00 | November 27, 2019 |
| Ali McKenzie | $200.00 | November 27, 2019 |
| Stace Schiefelbein | $500.00 | November 27, 2019 |
| Denise Petersen | $40.00 | November 27, 2019 |
| Sabina and James Schmeling | $100.00 | November 27, 2019 |
| Gaston De La Torre | $20.00 | November 27, 2019 |
| Alan Leonard | $50.00 | November 27, 2019 |
| Nabil Zerizef | $50.00 | November 27, 2019 |
| Anonymous | $1,275.00 | November 27, 2019 |
| Betty Harding | $100.00 | November 26, 2019 |
| Karen Cannon | $100.00 | November 26, 2019 |
| Carrie Kor | $50.00 | November 26, 2019 |
| Anonymous | $3,200.00 | November 26, 2019 |
| Jan Jacobson | $200.00 | November 26, 2019 |
| Anonymous | $250.00 | November 26, 2019 |
| Etgar Family | $200.00 | November 26, 2019 |
| Sharp Jodie | $250.00 | November 26, 2019 |
| Thomas McMullen | $300.00 | November 26, 2019 |
| Margaret Wazny | $75.00 | November 26, 2019 |
| Ali McKenzie | $200.00 | November 26, 2019 |
| Christine Calvert | $100.00 | November 26, 2019 |
| Anonymous | $600.00 | November 26, 2019 |
| Anonymous | $10.00 | November 24, 2019 |
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