Reverse Rett: A Cure for Maya

A campaign by: Alex Thayer & Balint Seeber
154 Donors
$42,575.00 Raised
$100,000.00 Goal
Raised Percent :
42.58%

42.58% Funded
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At 22 months, our dear Maya was diagnosed with Rett Syndrome, a rare, progressive neurological disorder that largely affects girls (and even more rarely, boys). Living with Rett is like having symptoms of cerebral palsy, autism, epilepsy, and Parkinson’s. For many girls, breathing, eating, and sleeping can become difficult, while walking, talking, and purposeful use of their hands may be impossible. Many Rett families live by the motto of “taking day by day”, as you never know what the day – or hour – will bring.

Despite her difficulties, Maya continues to love her books, animals, FaceTime chats (watch out: she loves to give smooches through the screen), and stroller walks in the park. Though she is nonverbal, she is incredibly social and expressive with her eyes. Maya works hard in physical, occupational, behavioral, and speech/language therapies in order to strengthen her body and mind. We see the look of fierce determination on her face and know that she, in her own way, is fighting back against Rett and the basic skills it might deny her. Just recently she started to take some steps while walking and holding onto our hands – this gives her, and us, much joy.

We were devastated to learn of her diagnosis, but we are also hopeful. Rett Syndrome has been shown in a laboratory model to be reversible. Gene therapy holds the promise of a complete cure and, in the meantime, numerous clinical trials are underway with treatments that will allow girls with Rett to be more functional. There is optimism in the medical world that Rett will be reversible and available within just a few years! These advancements in research continue because of the generous donations made by yourself and others. Fundraising is the necessary foundation to help cure Maya and the 350,000 others living with Rett Syndrome. In honor of Maya’s second birthday (October 8th), and Rett Syndrome Awareness Month (October), please consider contributing in this fight to reverse Rett!

In gratitude,
Alex, Balint, and Maya

Follow Maya on IG @maya_c_papaya

*RSRT is a non-profit organization and all donations are 100% tax deductible.

Donation Amount Minimum amount is $ Maximum amount is $150000
Donation levels

$10000

Maya's Hero

0 Donors

$5000

Maya's Star

1 Donor

$1000

Maya's Champion

16 Donors

$500

Maya's Supporter

8 Donors

$250

Maya's Advocate

23 Donors

$100

Maya's Friend

77 Donors

Name Donate Amount Date
Serge Dautricourt $200.00 October 27, 2020
Gail Killefer & Jeff Hall $1,000.00 October 26, 2020
M&D Barton $100.00 October 23, 2020
Kathleen Hall $50.00 October 22, 2020
Diane Lanctot $100.00 October 22, 2020
Diane and James Knight $1,000.00 October 21, 2020
Anonymous $100.00 October 20, 2020
Rachel Lazarus $100.00 October 20, 2020
Stefan Sonntag $100.00 October 20, 2020
Roy Thompson $100.00 October 19, 2020
reed easley $100.00 October 19, 2020
Andrew Ciancia $100.00 October 18, 2020
Mary Flannery $100.00 October 18, 2020
Anonymous $100.00 October 17, 2020
JENNY HSU $100.00 October 15, 2020
Anonymous $100.00 October 15, 2020
Anonymous $50.00 October 15, 2020
Monica Coenraads $100.00 October 15, 2020
Nikhila Srikanth $20.00 October 15, 2020
Miao Hu $100.00 October 15, 2020
Virginia Printz-Feddersen $25.00 October 15, 2020
Martin Braun $100.00 October 15, 2020
Sukriti Dewan $25.00 October 13, 2020
Anonymous $100.00 October 10, 2020
Talia Weiss $150.00 October 10, 2020
Jonathon Pendlum $100.00 October 10, 2020
julie Donnan $250.00 October 10, 2020
Rahul Nagraj $100.00 October 09, 2020
Allison Stastny $100.00 October 09, 2020
Helen Li $100.00 October 08, 2020
Adam Worling and Alex Torino $500.00 October 08, 2020
Heather Lim $200.00 October 08, 2020
Stephanie Brugger $100.00 October 08, 2020
Advait Balaji $25.00 October 08, 2020
Matt Ames $250.00 October 08, 2020
Sarah Swift $25.00 October 08, 2020
Ruth Benz $250.00 October 07, 2020
Anonymous $250.00 October 07, 2020
Austin Epps $100.00 October 07, 2020
Christiana Gelfer $100.00 October 07, 2020
Christopher Gannon $25.00 October 07, 2020
Marina Pinter $200.00 October 07, 2020
Chibi & Gombi boccalatte $250.00 October 07, 2020
Kate Gueldemeister $100.00 October 07, 2020
Chris Hallacy $100.00 October 07, 2020
Anna Walker $100.00 October 07, 2020
Sandra Martignetti $250.00 October 06, 2020
Andrew Harter $100.00 October 06, 2020
Andrew Harter $100.00 October 06, 2020
Andrew Mayne $100.00 October 06, 2020
Mary Mertsch $50.00 October 06, 2020
Tammy Jones $25.00 October 06, 2020
Robert Stendrup $50.00 October 06, 2020
maureen mcelhinney $100.00 October 06, 2020
Kelly Jackson $100.00 October 06, 2020
Jessica Bylander $100.00 October 06, 2020
Molly Kirsch $100.00 October 06, 2020
Eliza and Peter Zimmerman $100.00 October 06, 2020
Wade Killefer $2,500.00 October 06, 2020
David Neale $100.00 October 06, 2020
Louise Olsen $250.00 October 06, 2020
James Hatzopoulos $100.00 October 06, 2020
Sue Hall $100.00 October 06, 2020
Victoria Valandra $500.00 October 06, 2020
Karen Buchanan $50.00 October 06, 2020
David Rafoni $100.00 October 06, 2020
Anonymous $150.00 October 05, 2020
Richard Paige $100.00 October 05, 2020
Ruth Oldham $100.00 October 05, 2020
Christel Parmentier $250.00 October 05, 2020
martin mager $500.00 October 05, 2020
Jessica Senn $50.00 October 05, 2020
Josie Castaneda $250.00 October 05, 2020
Molly Buccola $100.00 October 05, 2020
Michael Engle $100.00 October 05, 2020
Anonymous $1,000.00 October 05, 2020
Amanda Bolsinger Jones $100.00 October 05, 2020
Dorothy Kowal $100.00 October 05, 2020
Laura Wright $100.00 October 05, 2020
Astrid Georgescu Georgescu $250.00 October 05, 2020
Angie Whitnah $1,000.00 October 05, 2020
Ben Cohn-Urbach $500.00 October 05, 2020
Ashish Chaudhari $500.00 October 05, 2020
Lingbo Jin $20.00 October 05, 2020
Crystal Matsuoka $100.00 October 05, 2020
Christine Parker $250.00 October 05, 2020
Saman Lesinski $50.00 October 04, 2020
Peggy O'Grady $50.00 October 04, 2020
Jeff Schuler $100.00 October 04, 2020
Sarah Palmer $250.00 October 04, 2020
Matthew Lai $100.00 October 04, 2020
Gail Killefer $1,000.00 October 04, 2020
Anonymous $1,000.00 October 04, 2020
Lynette Locatelli $25.00 October 04, 2020
Jared Dulmage $100.00 October 04, 2020
Kathryn Gannon-janelle $25.00 October 03, 2020
Anonymous $50.00 October 03, 2020
Ryanne DeGood $50.00 October 03, 2020
Decibel the Dog $25.00 October 03, 2020
Matt Knight $1,000.00 October 03, 2020
Julia McElhinney $1,000.00 October 03, 2020
Peter Zimmerman $100.00 October 03, 2020
Rebecca Cary $100.00 October 03, 2020
Anonymous $250.00 October 03, 2020
Charles Handorf $250.00 October 03, 2020
Artur Lojewski $250.00 October 03, 2020
Gerard Seeber $1,000.00 October 03, 2020
Anonymous $100.00 October 03, 2020
Dennis Wingo $100.00 October 03, 2020
Matt Kaufman $100.00 October 03, 2020
Marisa Manley $500.00 October 03, 2020
Mani Seeber $250.00 October 03, 2020
Paulette Parker $100.00 October 03, 2020
Andrew Franklin $50.00 October 03, 2020
Parivash Taghizadeh-Tabrizi $500.00 October 03, 2020
Sonja Strübe $100.00 October 03, 2020
Gregory J Hampton $250.00 October 03, 2020
Louise Seeber $1,000.00 October 03, 2020
Anonymous $100.00 October 03, 2020
Ingmar Meins $40.00 October 03, 2020
Elizabeth Sweeney $100.00 October 03, 2020
Emily Donnan $250.00 October 03, 2020
Vera Zelichenok $100.00 October 02, 2020
Julianna Balla $1,000.00 October 02, 2020
Meg Fenton Funk $20.00 October 02, 2020
Kathleen Gonzalez $100.00 October 02, 2020
Pamela Parker $100.00 October 02, 2020
Megan Askew $50.00 October 02, 2020
Emily Marschok $100.00 October 02, 2020
Damian Cohen $100.00 October 02, 2020
Regina Morris $50.00 October 02, 2020
Elise Maar $100.00 October 02, 2020
Emily Stanger $250.00 October 02, 2020
Cary Hampton $200.00 October 02, 2020
Kathryn B Hampton $250.00 October 02, 2020
Phyllis and Arch Montgomery $2,000.00 October 02, 2020
Roshan Khan $250.00 October 02, 2020
Kailen Song $50.00 October 02, 2020
Marisol Enriquez $100.00 October 02, 2020
Caroline Thayer $1,000.00 October 02, 2020
Tara Kariat $100.00 October 02, 2020
John Thayer $1,000.00 October 02, 2020
John Thayer $0.00 October 02, 2020
julie dickerson $500.00 October 02, 2020
Anonymous $300.00 October 02, 2020
Teréz Máhr-Débieux $100.00 October 02, 2020
Joshua Brandon $250.00 October 02, 2020
RJ Wofford II $100.00 October 02, 2020
Joe Killefer $100.00 October 02, 2020
Jay Branscomb $100.00 October 02, 2020
Deb Languasco $50.00 October 02, 2020
robert baxley $1,000.00 October 02, 2020
Anonymous $5,000.00 October 02, 2020
Timothy Freeman $100.00 October 01, 2020