Hello Friends and Family!
As many of you know, we were planning to host our Kentucky Derby fundraiser on May 2nd. Due to the Covid-19 virus, we had to cancel our event. This event unites our friends, family and community and reminds everyone of the importance and urgency of funding Rett Syndrome research. This “ask” is in lieu of our event for 2020.
We, the Endres family, and thousands upon thousands of other families affected by Rett Syndrome, ask that you please step back and take a look at your own life. Look at your own family; your own children….Imagine if you had a beautiful child who was born perfectly healthy. Imagine that she woke up one day, before the age of two years old, and no longer could walk or talk or even pick up a Cheerio. Imagine the devastation and heartache. As a parent, you would do everything you could do in your power to “fix” the situation, right? The “fix” takes money!
It feels like a very odd and perhaps wrong time to be fundraising these days. Our world is in crisis and we are all trying to navigate these uncertain times. Another Rett mom recently shared the following words to her family and friends, asking for their support in helping to fund research on Rett Syndrome and it really made an impact on Justin’s and my heart. It made us realize that we cannot stop fighting for Jilly and all the others diagnosed with Rett Syndrome. Please take a moment to read her words and consider making a donation to the Rett Syndrome Research Trust.
If you think being “trapped” in your house the last couple months is unbearable…imagine being trapped in a body you can’t control the movements of.
If you think not being able to talk to your friends face to face is sad… imagine losing your ability to speak completely.
If you think wearing a mask to the store makes it hard to breathe… imagine involuntary breath holding, seizures and the fear you’d have not being able to draw a breath when you tried.
If you think having your normal activities interrupted is causing you pain… imagine never having the chance to do any of the “normal” things your peers can do.
That’s how the children with Rett Syndrome live Every. Single. Day.
So covid-19 or not, we have to keep fighting for them. We cannot waste any time.
— Tsan Diltz
|Matthew Pare||$50.00||June 14, 2020|
|Julie Pierangeli||$50.00||June 13, 2020|
|Barb’s Bike Shop||$100.00||June 12, 2020|
|Mike Garbitt||$50.00||June 12, 2020|
|Katie Mullen||$50.00||June 12, 2020|
|Tricia Rood||$25.00||June 12, 2020|
|Grace Brown||$75.00||June 12, 2020|
|Janet Dupee||$50.00||June 12, 2020|
|Tsan Rydel||$100.00||June 11, 2020|
|Ann Sullivan||$25.00||June 11, 2020|
|Shannon & Jared Reeves||$100.00||June 11, 2020|
|celeste high||$25.00||June 11, 2020|
|Glenda Shea||$50.00||June 08, 2020|
|Jane Collins-Hasting||$150.00||June 06, 2020|
|Lynn Larkowski||$100.00||June 06, 2020|
|Justin Endres||$500.00||June 06, 2020|
|Linda Sullivan||$25.00||June 06, 2020|
|Lori Clancy||$30.00||June 06, 2020|
|Sarah SarahEndres||$100.00||June 06, 2020|
|Melanie Desley||$100.00||June 06, 2020|
|Jinx O’Loughlin||$50.00||June 06, 2020|
|Cody Pimental||$20.00||June 06, 2020|
|Tina Qvarnstrom||$50.00||June 06, 2020|
|Jeff Woodward||$100.00||June 06, 2020|
|David Glick||$100.00||June 06, 2020|
|Keith LaValley||$250.00||June 06, 2020|
|Raymond McNulty||$100.00||June 06, 2020|
|Brant Kotel||$100.00||June 02, 2020|
|Kathy Malkasian||$50.00||June 02, 2020|
|Meghan Collins||$50.00||May 29, 2020|
|Kathryn McAdams||$50.00||May 29, 2020|
|Annette Fontaine||$20.00||May 29, 2020|
|Karen & Bill Chase||$50.00||May 29, 2020|
|Rebecca Munini||$50.00||May 29, 2020|
|Ann-Marie Stanton||$15.00||May 29, 2020|
|Matt Serpone||$50.00||May 29, 2020|
|Debbi Cross||$100.00||May 28, 2020|
|Debra Barbo||$100.00||May 28, 2020|
|Chris robinson||$100.00||May 27, 2020|
|Linda ORourke||$100.00||May 27, 2020|
|Kathleen Twitchell||$50.00||May 27, 2020|
|Timothy Freeman||$100.00||May 27, 2020|
|Ricki Davis||$100.00||May 27, 2020|
|Joanne Ralston||$50.00||May 26, 2020|
|Freeman Winslow||$100.00||May 26, 2020|
|Cynthia Eldredge||$50.00||May 26, 2020|
|Katie Beebe||$25.00||May 26, 2020|
|Kerry Johns||$100.00||May 26, 2020|