Never Giving Up Hope for Jilly

A campaign by: Jennifer & Justin Endres
48 Donors
$3,835.00 Raised
$5,000.00 Goal
Raised Percent :
76.70%

76.70% Funded
Share this campaign:

Hello Friends and Family!

As many of you know, we were planning to host our Kentucky Derby fundraiser on May 2nd. Due to the Covid-19 virus, we had to cancel our event. This event unites our friends, family and community and reminds everyone of the importance and urgency of funding Rett Syndrome research. This “ask” is in lieu of our event for 2020.

We, the Endres family, and thousands upon thousands of other families affected by Rett Syndrome, ask that you please step back and take a look at your own life. Look at your own family; your own children….Imagine if you had a beautiful child who was born perfectly healthy. Imagine that she woke up one day, before the age of two years old, and no longer could walk or talk or even pick up a Cheerio. Imagine the devastation and heartache. As a parent, you would do everything you could do in your power to “fix” the situation, right? The “fix” takes money!

It feels like a very odd and perhaps wrong time to be fundraising these days. Our world is in crisis and we are all trying to navigate these uncertain times. Another Rett mom recently shared the following words to her family and friends, asking for their support in helping to fund research on Rett Syndrome and it really made an impact on Justin’s and my heart. It made us realize that we cannot stop fighting for Jilly and all the others diagnosed with Rett Syndrome. Please take a moment to read her words and consider making a donation to the Rett Syndrome Research Trust.

 

If you think being “trapped” in your house the last couple months is unbearable…imagine being trapped in a body you can’t control the movements of.

If you think not being able to talk to your friends face to face is sad… imagine losing your ability to speak completely.

If you think wearing a mask to the store makes it hard to breathe… imagine involuntary breath holding, seizures and the fear you’d have not being able to draw a breath when you tried.

If you think having your normal activities interrupted is causing you pain… imagine never having the chance to do any of the “normal” things your peers can do.

That’s how the children with Rett Syndrome live Every. Single. Day.

So covid-19 or not, we have to keep fighting for them. We cannot waste any time.

— Tsan Diltz

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Jilly's Hero

0 Donors

$500

Jilly's Hero

1 Donor

$250

Jilly's Champion

1 Donor

$100

Jilly's Supporter

19 Donors

$50

Jilly's Advocate

18 Donors

Name Donate Amount Date
Matthew Pare $50.00 June 14, 2020
Julie Pierangeli $50.00 June 13, 2020
Barb’s Bike Shop $100.00 June 12, 2020
Mike Garbitt $50.00 June 12, 2020
Katie Mullen $50.00 June 12, 2020
Tricia Rood $25.00 June 12, 2020
Grace Brown $75.00 June 12, 2020
Janet Dupee $50.00 June 12, 2020
Tsan Rydel $100.00 June 11, 2020
Ann Sullivan $25.00 June 11, 2020
Shannon & Jared Reeves $100.00 June 11, 2020
celeste high $25.00 June 11, 2020
Glenda Shea $50.00 June 08, 2020
Jane Collins-Hasting $150.00 June 06, 2020
Lynn Larkowski $100.00 June 06, 2020
Justin Endres $500.00 June 06, 2020
Linda Sullivan $25.00 June 06, 2020
Lori Clancy $30.00 June 06, 2020
Sarah SarahEndres $100.00 June 06, 2020
Melanie Desley $100.00 June 06, 2020
Jinx O’Loughlin $50.00 June 06, 2020
Cody Pimental $20.00 June 06, 2020
Tina Qvarnstrom $50.00 June 06, 2020
Jeff Woodward $100.00 June 06, 2020
David Glick $100.00 June 06, 2020
Keith LaValley $250.00 June 06, 2020
Raymond McNulty $100.00 June 06, 2020
Brant Kotel $100.00 June 02, 2020
Kathy Malkasian $50.00 June 02, 2020
Meghan Collins $50.00 May 29, 2020
Kathryn McAdams $50.00 May 29, 2020
Annette Fontaine $20.00 May 29, 2020
Karen & Bill Chase $50.00 May 29, 2020
Rebecca Munini $50.00 May 29, 2020
Ann-Marie Stanton $15.00 May 29, 2020
Matt Serpone $50.00 May 29, 2020
Debbi Cross $100.00 May 28, 2020
Debra Barbo $100.00 May 28, 2020
Chris robinson $100.00 May 27, 2020
Linda ORourke $100.00 May 27, 2020
Kathleen Twitchell $50.00 May 27, 2020
Timothy Freeman $100.00 May 27, 2020
Ricki Davis $100.00 May 27, 2020
Joanne Ralston $50.00 May 26, 2020
Freeman Winslow $100.00 May 26, 2020
Cynthia Eldredge $50.00 May 26, 2020
Katie Beebe $25.00 May 26, 2020
Kerry Johns $100.00 May 26, 2020