More 4 Marlowe

A campaign by: Shoshanna Ramirez
19 Donors
Raised Percent :

40.00% Funded
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It’s been amazing watching Marlowe’s dad, Mike Ramirez, celebrate on the slopes with his US Snowboard team as they rack up gold medals in Pyeongchang for the 2018 Winter Olympics. We are thankful for Mike and his athletes for joining our cause and bringing awareness to Rett Syndrome. If you haven’t seen it, watch this video of the team supporting the #ReverseRett campaign and “reversing” their gear.


Marlowe’s 10-year-old cousin Ava just raised $40,000 for research by auctioning off her pig at a 4-H fair in Deschutes County Oregon. This remarkable act of generosity has surpassed the campaign goal 4 times over!

The magical setting of Salt Lake City in the glow of the night.. literally! On July 29th, at 9pm, team MORE4MARLOWE will be running a 5k Foam Glow run. White t-shirts, black lights, and lots of neon-colored foam! It should be a fun time for all, especially to share Marlowe’s story and the overwhelming need for funding to cure Rett Syndrome. Marlowe is definitely a glowing light in our family. Her eyes twinkle with mischief and cheekiness. Lately she has been all about watering her plants and flowers in the garden. Won’t it be wonderful the day she can do it all by herself?! She is all about having a good time, watching Little Einsteins or Moana & listening to some good music. Classical music is her favorite but she can jive with some Creedence Clearwater Revival. She has endured so much in her life, and it seems like lately her battle has gotten a little bit more difficult. Rett Syndrome makes it impossible for her to walk, or crawl, or even just sit up now independently with the progression of her scoliosis. Her inability to vocalize her feelings, thoughts, wants and needs has been taken from her. She is constantly fighting a battle to keep her lungs clear from aspirating. New symptoms keep popping up just when we’ve figured out how to manage the last. But through it all, her positive demeanor keeps us on track to kick some Rett BUTT!!

The Roadmap to a Cure is the golden prize awaiting us all. Each and every day is one day closer. The cure is in sight and we want it so bad we can hardly breath. We are running now, so she can later! Please help with whatever you can. This is ALL going to research, and contributions are tax deductible.
Shoshanna & Mike Ramirez

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels


Hero for Marlowe

2 Donors


Brave for Marlowe

0 Donors


Love for Marlowe

4 Donors


Trooper for Marlowe

6 Donors


Smarty-Pants for Marlowe

4 Donors


Cheeky for Marlowe

3 Donors

Name Donate Amount Date
Ralph Beebe $1,000.00 November 08, 2021
Andrew Compton $250.00 October 09, 2021
Charles beckinsale $100.00 October 06, 2021
Lisa Hewson $100.00 October 05, 2021
Redmond Gerard $250.00 October 02, 2021
Malachi Gerard $50.00 October 02, 2021
Elise saarela $25.00 October 02, 2021
Claudia Campbell $100.00 September 30, 2021
Jessika Jenson $25.00 September 30, 2021
Teresa Frazier $100.00 September 30, 2021
Josh Underwood $200.00 September 30, 2021
John Graves $100.00 September 30, 2021
Patricia Stump $250.00 September 30, 2021
Russell Probert $25.00 September 29, 2021
Carl Canter $1,000.00 September 29, 2021
Carrie Shi $50.00 September 29, 2021
Jenna OBrien $75.00 September 29, 2021
Nate Ramirez $250.00 September 29, 2021
Nik Baden $50.00 May 10, 2021


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