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Matt and Julia’s Rett Registry

A campaign by: Matt & Julia
11 Donors
Raised Percent :

77.00% Funded
, United States (US)
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We feel incredibly blessed to be able to celebrate our love with so many of our friends and family this fall. However, there is one little and wonderful friend in our lives who will be notably missing: our honorary flower girl, Maya. 

Maya, who turns four this October, was diagnosed with Rett Syndrome, a rare and debilitating neurological disease at the age of one. As a result, she is unable to travel to celebrate with us like we’d so love her to. Like the 350,000 others living with this heartbreaking disease, Maya suffers from seizures and breathing issues and is unable to speak or use her hands. She requires braces to walk and buttons to talk. 

Despite these immense challenges, Maya is one of the most beautiful and happy people you will ever meet. She is a true reflection of her incredibly kind, strong and positive parents, our dear friends Alex and Balint. Maya has touched Matt and me in ways words cannot describe. She has brought us closer together in our love for another through our shared love for her and our shared commitment to curing Rett for Maya and all those who live with Rett.

Please honor us and this little person who we love with all our hearts with a donation to the Rett Syndrome Research Trust, a pioneering and inspiring nonprofit organization that is well on its way to curing Rett.  

With hope and love,

Matt and Julia

All donations are tax deductible. If you would prefer to send a check, please make it out to “Rett Syndrome Research Trust” and mail it to:


67 Under Cliff Road

Trumbull, CT 06611

Please write “Maya” in the memo line.


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Name Donation Amount Date
Sam Altman $500.00 September 19, 2022
Meredith Gannon $200.00 September 19, 2022
Lars and Charlsy Waldo $200.00 September 15, 2022
Paul Robert Steeves $100.00 September 14, 2022
Phillip Brennan $200.00 September 13, 2022
$1,000.00 September 11, 2022
Nancy Collier $100.00 September 07, 2022
P. David Lagomarsino $1,000.00 September 07, 2022
Matthew Delaney $150.00 September 06, 2022
Eleanor Chamberlain-Stoltzfus $100.00 September 06, 2022
John Schulman & Avery Pan $300.00 September 06, 2022