Look Into My Eyes

A campaign by: Beatrice Palma
110 Donors
$3,647.48 Raised
$5,000.00 Goal
Raised Percent :
72.95%

72.95% Funded
, Italy
Share this campaign:
Dear Friend,
Thank you for being here!! My name is Beatrice Palma. I live in Italy and I have one brother and one nephew affected by MECP2 Duplication Syndrome, a rare and devastating neurological disorder. This year my brother turned 50 and he is probably the eldest man in the world with this disease. As a gift I thought I would realize my dream to write a little e-book about him and his disease.
The main goal, besides honoring my brother and raising awareness on the disease, is to raise funds for very important and promising research that could change the lives of all who struggle with this disease. The funds you contribute here will go to the Rett Syndrome Research Trust’s MECP2 Duplication Syndrome Fund. This supports numerous researchers, including an incredible scientist, Dr. Huda Zoghbi, at the Baylor College of Medicine in Houston Texas, USA. Doctor Zoghbi has demonstrated that the disease can be reversed in mice and is working now on finding a possible treatment that could be available much sooner that we could normally expect.
In my e-book you will find more detailed information about the disease and the research. My hope is also that the story of my brother will touch your heart. I want to give him the voice he has never had in this world. The final goal is to contribute to research in a significant way so that all the kids affected by this terrible disease will have a better future; they deserve it so much.

With a donation of $10 USD or higher, you will receive the e-book in your e-mail within 24/48 hours. The Rett Syndrome Research Trust will inform me every time someone makes a donation and I will send the e-book. Please help me to make this initiative significant for all the people in need. Together we can do something great and we can make good use of our potential as human beings by making this disease history.

Italian
Cara amica/o,
Grazie di essere qui!!  Mi chiamo Beatrice Palma e sono la zia di un bimbo e la sorella di un ragazzo entrambi affetti da Sindrome da Duplicazione del MECP2, una devastante malattia neurologica rara. Quest’ anno mio fratello ha compiuto 50 anni ed è molto probabilmente la persona più longeva al mondo affetto dalla sindrome. Come regalo, ho voluto realizzare il mio sogno di scrivere un piccolo e-book su di lui e sulla sua condizione.
Lo scopo principale, oltre a rendergli onore e diffondere consapevolezza sulla malattia, è quello di raccogliere fondi per una ricerca estremamente importante e promettente che potrebbe cambiare la vita di tutti coloro che lottano con questa malattia, moltissimi sono bambini.
Il denaro raccolto con questa mia iniziativa confluisce TUTTO nel fondo per la ricerca sulla Sindrome da Duplicazione del MECP2 presso il  Rett Syndrome Research Trust. Tale fondo supporta numerosi ricercatori incluso uno scienziato di altissimo livello, la Dottoressa Huda Zoghbi, presso il Baylor College of Medicine di Houston, Texas (USA). La Dottoressa Zoghbi ha dimostrato che la malattia è reversibile nel topo e sta ora lavorando a una possibile terapia che potrebbe essere disponibile molto prima di quanto ci si potrebbe normalmente aspettare.
Nel mio e-book troverete maggiori dettagli sulla malattia e sulla ricerca. La mia speranza è che la storia di mio fratello tocchi il vostro cuore; il mio desiderio è quello di dargli la voce che non ha mai avuto e contribuire in maniera significativa alla ricerca affinchè i bambini e ragazzi che lottano contro questo “mostro” possano avere un futuro migliore, come meritano.
Con una donazione minima di 5 euro (naturalmente chi volesse donare di più può farlo), riceverete l’ e-book in 24/48 ore. Il  Rett Syndrome Research Trust mi aggiornerà quotidianamente sulle donazioni e io provvederò a inviare il testo. Aiutatemi a far sì che questa iniziativa non si perda nel nulla ma raggiunga quante più persone possibili. Insieme possiamo realizzare qualcosa di grande: possiamo archiviare per sempre una malattia crudele e salvare bambini e ragazzi da un destino ingiusto. GRAZIE.
Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
Anonymous $15.00 May 24, 2020
Monica Prati $50.00 May 09, 2020
Irma Vallario $30.00 March 23, 2020
Davide Testa $29.64 March 23, 2020
Michela Ortolani $10.00 February 17, 2020
Beatrice Palma $151.00 February 16, 2020
Anonymous $30.00 February 12, 2020
Irma Vallario $30.00 February 07, 2020
Beatrice Palma $55.00 February 04, 2020
Beatrice Palma $155.00 February 04, 2020
Barbara Wester $25.00 February 04, 2020
Paola De Mari $100.00 January 28, 2020
Beatrice Palma $23.00 January 19, 2020
Beatrice Palma $13.00 January 18, 2020
Beatrice Palma $13.00 January 18, 2020
Beatrice Palma $13.00 January 18, 2020
Holly Peterson $10.00 January 11, 2020
Maria Francesca Cancilla $10.00 January 02, 2020
Sara Topi $20.00 December 31, 2019
Giorgia Leonardi $20.00 December 31, 2019
Donato Angelino $50.00 December 31, 2019
Luciana Caverni $223.00 December 28, 2019
Sandra Semprini $10.00 December 27, 2019
Sandra Semprini $0.00 December 27, 2019
Kenneth Chu $10.00 December 27, 2019
Regine Rateau $23.00 December 26, 2019
Veronica Rasori $10.00 December 23, 2019
Davide Testa $20.00 December 23, 2019
Patrizia Angelino $30.00 December 23, 2019
Sania Belli $20.00 December 22, 2019
Katie Wester-Neal $20.00 December 22, 2019
Giorgia Serafini $12.00 December 22, 2019
Anonymous $50.00 December 21, 2019
Beatrice Palma $12.00 December 21, 2019
Enrica Giampieretti $100.00 December 20, 2019
Beatrice Palma $12.00 December 17, 2019
Anonymous $5.00 December 16, 2019
Beatrice Palma $12.00 December 15, 2019
Beatrice Palma $23.00 December 15, 2019
Chiara Magi $25.00 December 12, 2019
DANIELA DEL PRETE $20.00 December 09, 2019
Beatrice Palma $13.00 December 09, 2019
Milena Marinucci $10.00 December 08, 2019
Anonymous $10.00 December 08, 2019
Angela Zanni $20.00 December 08, 2019
Anonymous $10.00 December 08, 2019
Beatrice Palma $12.00 November 26, 2019
Beatrice Palma $170.00 November 26, 2019
Patrizia Giordano $10.00 November 25, 2019
Alessandro Centrone $25.00 November 25, 2019
Amy Morrison Baker $15.00 November 25, 2019
Claudia Bertuccioli $10.00 November 25, 2019
Sara Salvatore $50.00 November 25, 2019
Mauro Marchi $50.00 November 25, 2019
Anonymous $10.00 November 25, 2019
Anonymous $30.00 November 25, 2019
Luca De Angelis $20.00 November 25, 2019
Enrica Giampieretti $20.00 November 25, 2019
Jason Moore $50.00 November 25, 2019
Taryn Taylor $15.00 November 25, 2019
Jason Knight $30.00 November 25, 2019
Jenny Howe $20.00 November 25, 2019
Ashley Lombardi $20.00 November 25, 2019
Anonymous $20.00 November 25, 2019
Chiara Pandolfi $10.00 November 25, 2019
Rhonda Brand $100.00 November 25, 2019
Laura Brugnaro $10.00 November 25, 2019
Samantha Platz $20.00 November 25, 2019
Anthony Bernazzani $20.00 November 25, 2019
Anonymous $25.00 November 25, 2019
Patrizia Angelino $30.00 November 25, 2019
Ilaria Casicci $10.00 November 25, 2019
Stephen Beck $20.00 November 25, 2019
Laura Rojas $20.00 November 25, 2019
Enrica Giampieretti $104.84 November 25, 2019
Laura Zucca $30.00 November 25, 2019
Daleth Scaramuzzi $50.00 November 25, 2019
Angie Sutton $18.00 November 25, 2019
Margy Mattison $20.00 November 25, 2019
Anna Zucca $30.00 November 25, 2019
Angela Miller $10.00 November 25, 2019
Patricia Platz $30.00 November 25, 2019
Cindy Bratkowski $50.00 November 25, 2019
Lisa Kelly $10.00 November 25, 2019
Patricia Knight $25.00 November 25, 2019
Nicoletta D'Angeli $10.00 November 25, 2019
Davide Testa $10.00 November 25, 2019
Pietro de Poda $100.00 November 25, 2019
Helen Murray $20.00 November 25, 2019
Amy Spieth $20.00 November 25, 2019
Anonymous $25.00 November 25, 2019
Elena Menotti $60.00 November 25, 2019
Karan Burns $20.00 November 25, 2019
Anonymous $40.00 November 25, 2019
Sherry McNeill $25.00 November 25, 2019
Elena Roscini $20.00 November 25, 2019
Jenna & Nate Olson $100.00 November 25, 2019
Dyna Mendoza $15.00 November 25, 2019
Collene Wright $50.00 November 25, 2019
Karen Trzebiatowski $25.00 November 25, 2019
Anonymous $20.00 November 25, 2019
Liliana Nochez $10.00 November 25, 2019
Dilene Rodrigues Teixeira $30.00 November 25, 2019
Annita Rodrigues $20.00 November 25, 2019
Annita Rodrigues $20.00 November 25, 2019
Anonymous $20.00 November 25, 2019
Oliver Freeman $20.00 November 25, 2019
Ivrea Rocchi $150.00 November 25, 2019
Anonymous $20.00 November 25, 2019
Janet Kelsay $25.00 November 25, 2019