Jessica’s Walk for a Cure

A campaign by: Linda & Mark Goldman
76 Donors
$16,328.00 Raised
$10,000.00 Goal
Raised Percent :
163.28%

163.28% Funded
Share this campaign:
We are celebrating Jessica’s 40th birthday with a walk on June 22 at Camp Cedar Hill in Waltham to raise funds for Rett Syndrome research. Please join us in support of this important cause.
In 1979, when our beautiful daughter was born, Rett Syndrome was unheard of in this country. What a long way we have come in 40 years. Rett Syndrome is now more widely known, and the research has made remarkable progress. A major breakthrough occurred in 1999 when it was found that when the MECP2 gene is mutated it causes Rett Syndrome. Because of this discovery there is now a simple blood test to determine the existence of Rett. This discovery also led to a dramatic increase in research that has progressed at an amazing pace with clinical trials and research in animal models being conducted throughout the world.
The Rett Syndrome Research Trust (RSRT) was launched in 2008 to drive research to find a cure for the 350,000 girls and women around the world, including 15,000 in the U.S., with Rett. (A very small number of boys are also affected.) Since that time RSRT has awarded $58 million to research. Current projects are extensive and exciting. Some projects, such as gene therapy seek a cure for Rett Syndrome. Gene therapy would deliver healthy copies of the MECP2 gene to compensate for the mutated ones. Other projects focus on treatment with the goal to improve the quality of life for those with Rett Syndrome. The list of research projects is impressive.
We are thrilled to be able to celebrate Jessica’s 40th birthday. Jess continues to be able to ambulate with assistance, she is able to feed herself using an adaptive splint. She has thrived living in her group home in Foxboro these past four years where she enjoys the company of her roommates and the wonderful staff that care for her. She has continued to attend her day program at the Charles River Center where she has another community of friends and devoted caretakers. Jess spends many weekends at home. She loves long walks, snuggling on the couch with mom or dad to watch tv, and having face time with her niece and nephew. She has maintained skills that she has worked hard to achieve and has been quite healthy. Our extended families and our circle of friends have always loved and embraced Jessica and have included her in all activities and events. Jessica has enriched our lives in many ways and we treasure the years we have had with her.
You can honor Jessica on her milestone birthday by making a donation to the RSRT to help fund further research. Your donation is Jessica’s gift to the children of the future born with Rett Syndrome who will benefit from your generosity.
Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
Anonymous $100.00 November 25, 2019
Friends of Bonnie Bernstein $569.00 November 25, 2019
Frances Pursell $20.00 November 25, 2019
Anonymous $5.00 November 25, 2019
Anonymous $50.00 November 25, 2019
Elizabeth Ebb $218.00 November 25, 2019
Marti & Jerry Katz $50.00 November 25, 2019
Melinda Boroson $400.00 November 25, 2019
Page Palmer $200.00 November 25, 2019
Nao Rosenberg $100.00 November 25, 2019
Richard Kelly $100.00 November 25, 2019
Patricia Kent $100.00 November 25, 2019
Susan and Roy Kulick $100.00 November 25, 2019
John Sherfinski $0.00 November 25, 2019
Jeffrey and Andrea Lobel $100.00 November 25, 2019
Sally Sherfinski $150.00 November 25, 2019
Alicia, Phil, Arielle, Keith & Melanie Hsu Chernin $250.00 November 25, 2019
Robert Goldman $500.00 November 25, 2019
Irene and Gary Gladstone $300.00 November 25, 2019
Shirley Klein $500.00 November 25, 2019
Carol and Mitchell Macey $100.00 November 25, 2019
Robert Barr $100.00 November 25, 2019
Ellen Sabino $25.00 November 25, 2019
Phil & Sara Clarkson $100.00 November 25, 2019
The White Family Fund $5,000.00 November 25, 2019
Walter Browne $100.00 November 25, 2019
Bonnie & Bo Bernstein $723.00 November 25, 2019
Maria Paiewonsky $100.00 November 25, 2019
Gino & Tiffany Castellanos $100.00 November 25, 2019
Vincent Lamenzo $100.00 November 25, 2019
Clifton C Georgaklis $100.00 November 25, 2019
Howard Klein $400.00 November 25, 2019
Lucy and Will Ogburn $200.00 November 25, 2019
Ellen Chernikoff $100.00 November 25, 2019
Carol Thomas $50.00 November 25, 2019
Kari Innenberg $50.00 November 25, 2019
Joyce & Joseph Weiser $100.00 November 25, 2019
Jan Pendleton $200.00 November 25, 2019
Gail Nachman $50.00 November 25, 2019
Janet & Bob Hudson $40.00 November 25, 2019
Marie Leman $100.00 November 25, 2019
Kathe Langberg $25.00 November 25, 2019
Betty Winiarz $100.00 November 25, 2019
Betty Cantor $200.00 November 25, 2019
Thomas Harkins $40.00 November 25, 2019
Joshua & Laura Goldman $1,000.00 November 25, 2019
Barbara Urban $25.00 November 25, 2019
Liz Strauss $25.00 November 25, 2019
Frances Harris $100.00 November 25, 2019
Allison Loeb $200.00 November 25, 2019
Colleen Harkins $100.00 November 25, 2019
Kramer Heyman $41.00 November 25, 2019
Debbie & Mike Herbst $50.00 November 25, 2019
Mary, Paul and Mike Sodano $150.00 November 25, 2019
Kathleen Kerr $100.00 November 25, 2019
Sherrie & Bruce Weinstein $25.00 November 25, 2019
Caitlin Harkins $200.00 November 25, 2019
Michelle Barrie $25.00 November 25, 2019
Jeffrey Axelrod $100.00 November 25, 2019
Carole Roth-Abramson $100.00 November 25, 2019
Stephen Blumberg $300.00 November 25, 2019
Hallie Moldawer $50.00 November 25, 2019
Franklin Roth $500.00 November 25, 2019
Larry and Nicole Kramer $36.00 November 25, 2019
Lois Levy $100.00 November 25, 2019
Brian Innenberg $36.00 November 25, 2019
Diane Camozzi $100.00 November 25, 2019
Joan Tieman $25.00 November 25, 2019
Sinead O'Connor $100.00 November 25, 2019
Rae Harris $100.00 November 25, 2019
Linda & Klaus Shigley $200.00 November 25, 2019
Adam Zelwin $200.00 November 25, 2019
Mana Levine $100.00 November 25, 2019
Katie Matarese $100.00 November 25, 2019
LinkedIn Matching Gifts $50.00 November 25, 2019
Jane Booth $75.00 November 25, 2019