Jammin’ for Jaycee 2020

A campaign by: Mike & Tina Stewart
39 Donors
$4,235.00 Raised
$10,000.00 Goal
Raised Percent :
42.35%

42.35% Funded
Share this campaign:

Jaycee is a 6 year old girl who has been battling Rett Syndrome since she was 12 months old. She is bubbly and has an amazing personality and when she laughs and smiles it brings sunshine to the cloudiest of days. Jaycee, like everyone else, has good days and bad days. Her good days are spent laughing and smiling. Her bad days are spent being frustrated. Unfortunately, Jaycee can’t communicate. She has lost the ability to speak, walk, and use her arms and hands in a purposeful manner. She must have all of her food puréed and is unable to feed herself. We cherish these bad days just as much as the good days, because we know that without a cure her symptoms could, and probably will, get worse.

Unfortunately, due to the situation with Covid-19, we have been forced to cancel this year’s in person Jammin’ for Jaycee’s Fight for a Cure fundraiser. We know that many of our family members and friends may not be in a position this year to donate but we still wanted to set up the online campaign for those of you who would like to and we look forward to hopefully seeing everyone at an in person event next year.

AveXis/Novartis has recently released a statement regarding their AVXS-201 gene therapy program for Rett Syndrome. The statement assures the Rett community that they are fully committed to this program, that preclinical studies are mostly complete, and that they will be working with the FDA in the coming months to progress towards an Investigational New Drug submission and a clinical trial. This is very promising news.

We will move mountains to make sure that the resources for finding a cure are obtainable. Funding for this research comes only from us, the friends and families of little girls with Rett Syndrome. Thank you so much for helping us change Jaycee’s life.

Sincerely,
Jaycee Rose’s loving family and friends

Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
Lisa Duda $150.00 October 28, 2020
Ethel Connors $150.00 October 28, 2020
Kelsey Walden $40.00 October 22, 2020
Silviya Peevska $300.00 October 17, 2020
Tanya Kennedy $15.00 October 16, 2020
Tanya Kennedy $0.00 October 16, 2020
Rialene Hughes $20.00 October 16, 2020
Melanie Ferrin $10.00 October 13, 2020
Mike & Sharron Ciaburri $100.00 October 13, 2020
Marty Kelly $80.00 October 13, 2020
Scott Chappell $50.00 October 13, 2020
Edward Keith $50.00 October 13, 2020
Uncle Jeffy Goodell $50.00 October 13, 2020
Terry and Jenn Bishop $100.00 October 13, 2020
Josh Ragoza $100.00 October 13, 2020
CHERYL ALBANO $20.00 October 10, 2020
Larry and Mary Stewart $500.00 October 04, 2020
Lisa Donovan $25.00 October 03, 2020
Judith Condron $25.00 October 03, 2020
Cara Carnevale $50.00 October 03, 2020
Christian Scherr $25.00 October 03, 2020
William Bonn $50.00 October 02, 2020
Suzette Naylor $20.00 September 29, 2020
Alisa Gubelman $100.00 September 26, 2020
Cheryl Hart $100.00 September 24, 2020
Elmar Uy $25.00 September 24, 2020
Tracy Potter $10.00 September 23, 2020
Fabrizio Perotti $20.00 September 23, 2020
Tanya Haas $50.00 September 23, 2020
Rick Petricca $100.00 September 22, 2020
Dick Taylor $200.00 September 20, 2020
Erica Murphy $50.00 September 19, 2020
John Liang $25.00 September 19, 2020
Dave Bassett $25.00 September 19, 2020
cathy baldasaro $25.00 September 14, 2020
Louis Eisenman $1,000.00 September 14, 2020
Sandra Totter $25.00 September 14, 2020
Mike & Tina Stewart $500.00 September 13, 2020
Tim Freeman $50.00 September 13, 2020