Jaycee is a 5 year old little girl that has been battling Rett Syndrome since she was 12 months old. She is bubbly and has an amazing personality and when she laughs and smiles it brings sunshine to the cloudiest of days. Jaycee like everyone else has good days and bad days. Her good days are spent laughing and smiling. Her bad days are spent being frustrated. Unfortunately, Jaycee can’t communicate. She has lost the ability to speak, walk, and use her arms and hands in a purposeful manner. She also must have all of her food puréed and is unable to feed herself. We cherish these bad days just as much as the good days, because we know that without a cure her symptoms could, and probably will, get worse.
We will be holding another event on October 20, 2019 in Pittsfield Mass at Tavern at the A in the form of a band concert called the 4th Annual Jammin’ for Jaycee’s Fight for a Cure. All proceeds will be going to Rett Syndrome Research Trust. We know many of our friends and family live far away and will not be able to attend. That’s why we started this campaign to go along with our event. If you are unable to attend our event on October 20, 2019 please consider supporting research here. Every dollar matters. RSRT has recently announced their ROADMAP TO A CURE!! Now scientist are closer than ever to reversing Rett Syndrome but they need our support. Please help JAYCEE and thousands of other little girls have a chance for a normal life.
We will move mountains to make sure that the resources for finding a cure are obtainable. Funding for this research comes only from us, the friends and families of little girls with Rett Syndrome. Thank you so much for helping us change Jaycee’s life.
Thank you. God bless.
Jaycee Rose’s loving family and friends
|Anonymous||$100.00||January 07, 2020|
|Jammin' for Jaycee 2019 Event||$13,766.51||November 26, 2019|
|Lisa Cantalupo||$25.00||November 26, 2019|
|Sheriff Thomas Bowler & The Berkshire County Deputy Sheriffs' Association||$100.00||November 26, 2019|
|Silviya Peevska||$300.00||November 26, 2019|
|Tanya Haas||$50.00||November 26, 2019|
|Benjamin Popplewell||$25.00||November 26, 2019|
|Ashley Bove||$50.00||November 26, 2019|
|Diana Belair||$50.00||November 26, 2019|
|Tracy Potter||$20.00||November 26, 2019|
|Christine Thomson||$100.00||November 26, 2019|
|Bob & Cindy Basdekis||$30.00||November 26, 2019|
|Richard Petricca||$100.00||November 26, 2019|
|David & Terrie Comalli||$200.00||November 26, 2019|
|Lou Eisenman||$300.00||November 26, 2019|
|Anonymous||$100.00||November 26, 2019|