In Search for a Cure in Kai’s Name

A campaign by: Firas & Diala Masri
60 Donors
$12,425.00 Raised
$30,000.00 Goal
Raised Percent :
41.42%

74 Days to go
41.42% Funded
Share this campaign:

Dear family, friends, and welcome strangers,

Our names are Firas and Diala and our son is named Kai. From the moment he opened his eyes, Kai filled our lives with joy and turned our house into a home. With his big and innocent blue-grey eyes and his infectious laughter, Kai quickly attracted all the attention, radiating happiness wherever he went. Despite this, Kai exhibited slower development than normal and experienced a number of medical emergencies with no explanation as to the causes of them. We conducted every medical exam that was available to us, each yielding negative results so we resorted to taking a genetic test. We received the results on November 20 which revealed that Kai had Rett Syndrome. After learning the consequences of Rett Syndrome in boys, our lives turned upside down and became completely focused on getting Kai the best care we could provide him in the hopes he could live long enough for a cure to be developed. Over his life, Kai was admitted to the ER or ICU multiple times, mostly related to issues with breathing, digestion problems and pneumonia. In April 2019, Kai was admitted to the ICU after getting pneumonia for the fourth time. Following 11 days of fighting, despite our best efforts and all the support we received from family and friends, Kai passed away at 14 months old.

While time ran out for our son Kai, there is still a chance for every other person affected by Rett Syndrome today to live long enough to get a cure. To that end, Firas will be climbing Mount Kilimanjaro from February 4 – February 12 with a goal of raising $30,000 that will go towards the Rett Syndrome Research Trust’s Roadmap to a Cure initiative. We have launched this campaign on November 20, 2019, the anniversary of Kai’s diagnosis, until February 20, 2020, what would have been Kai’s 2nd birthday.

From the bottom of our hearts, we thank you in advance for your donations towards this important cause.

Sincerely,
Firas, Diala and Kai

Donation Amount Minimum amount is $ Maximum amount is $30000
Donation levels

$1000

Kai's Angel

0 Donors

$500

Kai's Hero

0 Donors

$250

Kai's Star

0 Donors

$100

Kai's Champion

0 Donors

$50

Kai's Friend

56 Donors

Name Donate Amount Date
Anonymous $1,000.00 December 07, 2019
Anonymous $50.00 December 07, 2019
Hazem Zureiqat $50.00 December 06, 2019
Gus Khalik $200.00 December 06, 2019
Anonymous $50.00 December 06, 2019
Elspeth Dehnert $20.00 December 06, 2019
Firas Masri $1,000.00 December 06, 2019
Maya Mikati $100.00 December 06, 2019
Fadi Maktabi $500.00 December 06, 2019
Hikmat Lubbadeh $500.00 December 06, 2019
Nather Jarrar $100.00 December 06, 2019
Noha & Rami Salame $100.00 December 06, 2019
Anonymous $250.00 December 06, 2019
Tasneem Abbas $100.00 December 06, 2019
Ban Barkawi $250.00 December 05, 2019
Noor Elhaj Ali $100.00 December 05, 2019
Diana Abousleiman $20.00 December 05, 2019
Bechara Khawand $100.00 December 05, 2019
Anonymous $50.00 December 05, 2019
Sara Brenwald $50.00 December 04, 2019
Dany Nakhoul $50.00 December 04, 2019
Saad, Dalia and Sienna Samadi $150.00 December 04, 2019
Anonymous $250.00 December 04, 2019
Rula Kanan $100.00 December 04, 2019
FERAS ALZAWATI $250.00 December 04, 2019
Yasmin Mustafa $50.00 December 04, 2019
Tala Sukhun $100.00 December 04, 2019
Anonymous $250.00 December 04, 2019
melanie chami $100.00 December 04, 2019
Anonymous $100.00 December 04, 2019
Anonymous $100.00 December 04, 2019
Miya Cain $25.00 December 03, 2019
Anonymous $1,000.00 December 03, 2019
Nadia Masri $200.00 December 03, 2019
Lamees hamdan $50.00 December 03, 2019
Kai’s foot Masseuse $500.00 December 03, 2019
Anonymous $100.00 December 03, 2019
Hanibal Choujaa $50.00 December 03, 2019
Anonymous $100.00 December 02, 2019
Lydia Fayad $100.00 December 02, 2019
Laian, Aaron, and Milia Najjar-McIntyre $500.00 December 02, 2019
Anonymous $450.00 December 02, 2019
Anonymous $50.00 December 02, 2019
Lily Spiridon $100.00 December 02, 2019
Ghida Barbari $50.00 December 02, 2019
Khulood Siddiqi $500.00 December 02, 2019
Joubran Abdul Khalek $100.00 December 02, 2019
Basam Hadai $100.00 December 02, 2019
Yara Maasri $250.00 December 02, 2019
Anonymous $1,000.00 December 02, 2019
Houwaida Alameddine $50.00 December 02, 2019
Carlo Rammouz $50.00 December 02, 2019
Timothy Freeman $10.00 December 02, 2019
Tamara Kemaleddine $250.00 December 01, 2019
Tamara Kemaleddine $250.00 December 01, 2019
Mira Saidi $100.00 December 01, 2019
Munyema Hasan $50.00 December 01, 2019
Najla Khatib $50.00 December 01, 2019
Anonymous $50.00 December 01, 2019
Dana Masri $250.00 December 01, 2019