In Search for a Cure in Kai’s Name

A campaign by: Firas & Diala Masri
197 Donors
$37,150.00 Raised
$40,000.00 Goal
Raised Percent :
92.88%

92.88% Funded
Share this campaign:

Dear family, friends, and welcome strangers,

Our names are Firas and Diala and our son is named Kai. From the moment he opened his eyes, Kai filled our lives with joy and turned our house into a home. With his big and innocent blue-grey eyes and his infectious laughter, Kai quickly attracted all the attention, radiating happiness wherever he went. Despite this, Kai exhibited slower development than normal and experienced a number of medical emergencies with no explanation as to the causes of them. We conducted every medical exam that was available to us, each yielding negative results so we resorted to taking a genetic test. We received the results on November 20 which revealed that Kai had Rett Syndrome. After learning the consequences of Rett Syndrome in boys, our lives turned upside down and became completely focused on getting Kai the best care we could provide him in the hopes he could live long enough for a cure to be developed. Over his life, Kai was admitted to the ER or ICU multiple times, mostly related to issues with breathing, digestion problems and pneumonia. In April 2019, Kai was admitted to the ICU after getting pneumonia for the fourth time. Following 11 days of fighting, despite our best efforts and all the support we received from family and friends, Kai passed away at 14 months old.

While time ran out for our son Kai, there is still a chance for every other person affected by Rett Syndrome today to live long enough to get a cure. To that end, Firas will be climbing Mount Kilimanjaro from February 4 – February 12 with a goal of raising $30,000 that will go towards the Rett Syndrome Research Trust’s Roadmap to a Cure initiative. We have launched this campaign on November 20, 2019, the anniversary of Kai’s diagnosis, until February 20, 2020, what would have been Kai’s 2nd birthday.

From the bottom of our hearts, we thank you in advance for your donations towards this important cause.

Sincerely,
Firas, Diala and Kai

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Kai's Angel

0 Donors

$500

Kai's Hero

0 Donors

$250

Kai's Star

0 Donors

$100

Kai's Champion

0 Donors

$50

Kai's Friend

186 Donors

Name Donate Amount Date
jad chaaya $50.00 February 18, 2020
Kai’s Foot Masseuse $100.00 February 17, 2020
Samer Hajjar $50.00 February 14, 2020
Wujood AlFalasi $100.00 February 13, 2020
Rita Saad $100.00 February 13, 2020
Rana Haddad $100.00 February 10, 2020
Randa Haidar $300.00 February 10, 2020
Anonymous $50.00 February 09, 2020
Anonymous $100.00 February 08, 2020
Arjun Sarwal $100.00 February 06, 2020
Anonymous $50.00 February 05, 2020
Leila Al-Bori $50.00 February 05, 2020
Jiddo Kamal -Uncle Youssef $500.00 February 05, 2020
Lara Traboulsi $100.00 February 05, 2020
Parasto Hamed $35.00 February 04, 2020
Zeina Saab $50.00 February 04, 2020
Anonymous $100.00 February 02, 2020
Kathi Karcher $50.00 February 02, 2020
Sara O Aboul Hosn $100.00 February 01, 2020
Nour Kabariti $500.00 February 01, 2020
Anonymous $50.00 February 01, 2020
Anonymous $250.00 January 31, 2020
Lisa & David Birch $100.00 January 31, 2020
ZAina Kanaan $50.00 January 30, 2020
Anonymous $250.00 January 30, 2020
Rita Aoun $1,500.00 January 28, 2020
Anonymous $100.00 January 28, 2020
Leanne Rimmer $50.00 January 25, 2020
Solandia Saab $25.00 January 24, 2020
Mohamad Yasmin $100.00 January 24, 2020
Hrag Hayrabedian $250.00 January 19, 2020
Adam Aboulhosn $50.00 January 19, 2020
Milos Sirkovic $100.00 January 18, 2020
Alyah Rafeh Bowler $25.00 January 18, 2020
Hanan Rafeh $100.00 January 18, 2020
Sasha & Naj $100.00 January 18, 2020
Julia Kolesarova $50.00 January 13, 2020
Laian Najjar $200.00 January 12, 2020
Taghrid Khoury $250.00 January 12, 2020
Laian Najjar $65.00 January 11, 2020
Richard Addington $50.00 January 10, 2020
Amer El-Kalache $100.00 January 10, 2020
Choucrallah Karam $250.00 January 10, 2020
Kaia Nehme (Bahous) $100.00 January 08, 2020
Talin Harbidyan $100.00 January 05, 2020
Anonymous $250.00 January 05, 2020
Anonymous $50.00 January 05, 2020
Philip Carton $0.00 January 05, 2020
Anonymous $65.00 January 04, 2020
Anonymous $100.00 January 04, 2020
Raif Al Azem $100.00 January 04, 2020
Anonymous $50.00 January 04, 2020
Ziad Najjar $200.00 January 03, 2020
Carine Zeidan $100.00 January 03, 2020
Wissam Najjar $50.00 January 03, 2020
omer najar $200.00 January 02, 2020
Samar Elchaar $250.00 January 02, 2020
Anonymous $50.00 January 01, 2020
Michelle Davison $60.00 January 01, 2020
Rosy & Wajdi Abou Kheir $50.00 January 01, 2020
Diala Najjar $1,000.00 December 31, 2019
Rana Hajjar $50.00 December 31, 2019
Caroline Afara $200.00 December 30, 2019
Gregory Baeker $100.00 December 29, 2019
Zuheir Najjar $50.00 December 28, 2019
Dana Najjar $50.00 December 28, 2019
Carla Saad $150.00 December 28, 2019
Anonymous $100.00 December 27, 2019
Sophien Ben-Achour $50.00 December 27, 2019
Rebecca Reyes $135.00 December 27, 2019
Kenneth Chu $10.00 December 27, 2019
Anonymous $50.00 December 26, 2019
Samar and mazen Ali $200.00 December 25, 2019
Raad Family $250.00 December 25, 2019
Aunty Hind Masri $500.00 December 25, 2019
Teta and Jiddo Masri $1,000.00 December 25, 2019
HABIBA EL DERINI $100.00 December 24, 2019
Anonymous $50.00 December 24, 2019
Anonymous $50.00 December 24, 2019
Sandra Helayel $100.00 December 23, 2019
Konstantina Korovilas $100.00 December 23, 2019
Basak Sen Sasal $100.00 December 21, 2019
Evy Maarawi $250.00 December 21, 2019
Sunaina basu $20.00 December 21, 2019
Angad Bagai $200.00 December 21, 2019
Anonymous $250.00 December 21, 2019
Claudine Zeidan $250.00 December 21, 2019
Anonymous $50.00 December 21, 2019
Samar Hamra $50.00 December 21, 2019
Anonymous $50.00 December 21, 2019
Tia Iwan $100.00 December 21, 2019
Grace Zakka $100.00 December 20, 2019
Sabina Rizvi $100.00 December 20, 2019
Anonymous $50.00 December 20, 2019
Karma Hamady $50.00 December 20, 2019
Anonymous $100.00 December 20, 2019
Nadine V $100.00 December 20, 2019
Mohamad Noueihed $100.00 December 18, 2019
Anonymous $100.00 December 17, 2019
Hilda Kassardjian $50.00 December 17, 2019
Stella Braban $100.00 December 17, 2019
Shadi Hajj $1,000.00 December 16, 2019
Hind Masri $200.00 December 16, 2019
Anonymous $50.00 December 16, 2019
Mais Al Nahawi $250.00 December 16, 2019
Anonymous $50.00 December 15, 2019
Anonymous $50.00 December 14, 2019
Maher Najjar $100.00 December 14, 2019
Maher Najjar $250.00 December 14, 2019
Anonymous $1,000.00 December 13, 2019
Nadeen Hakim $100.00 December 13, 2019
Elie Maalouf $500.00 December 13, 2019
Anonymous $100.00 December 13, 2019
Anonymous $50.00 December 13, 2019
Anonymous $200.00 December 12, 2019
Kamal Ali $250.00 December 12, 2019
Naila Abdul Khalek $100.00 December 12, 2019
Ralph El-Helou $250.00 December 12, 2019
Victoria McIntyre $50.00 December 12, 2019
Anonymous $10.00 December 12, 2019
Anonymous $75.00 December 12, 2019
Anonymous $100.00 December 12, 2019
Zeina Kabbara $100.00 December 12, 2019
Anonymous $50.00 December 11, 2019
Yasmin Agha $100.00 December 11, 2019
Anonymous $50.00 December 11, 2019
Zaina Ali $250.00 December 11, 2019
Anonymous $3,000.00 December 11, 2019
Cornelis Steyn $50.00 December 10, 2019
Auntie's Love $100.00 December 10, 2019
Fahad AL $500.00 December 08, 2019
H AH $100.00 December 08, 2019
Anonymous $250.00 December 08, 2019
Anonymous $50.00 December 08, 2019
Anthony D $250.00 December 08, 2019
Hibzy N $200.00 December 08, 2019
Mark Toubia $50.00 December 08, 2019
Anonymous $1,000.00 December 07, 2019
Anonymous $50.00 December 07, 2019
Hazem Zureiqat $50.00 December 06, 2019
Gus Khalik $200.00 December 06, 2019
Anonymous $50.00 December 06, 2019
Elspeth Dehnert $20.00 December 06, 2019
Firas Masri $1,000.00 December 06, 2019
Maya Mikati $100.00 December 06, 2019
Fadi Maktabi $500.00 December 06, 2019
Hikmat Lubbadeh $500.00 December 06, 2019
Nather Jarrar $100.00 December 06, 2019
Noha & Rami Salame $100.00 December 06, 2019
Anonymous $250.00 December 06, 2019
Tasneem Abbas $100.00 December 06, 2019
Ban Barkawi $250.00 December 05, 2019
Noor Elhaj Ali $100.00 December 05, 2019
Diana Abousleiman $20.00 December 05, 2019
Bechara Khawand $100.00 December 05, 2019
Anonymous $50.00 December 05, 2019
Sara Brenwald $50.00 December 04, 2019
Dany Nakhoul $50.00 December 04, 2019
Saad, Dalia and Sienna Samadi $150.00 December 04, 2019
Anonymous $250.00 December 04, 2019
Rula Kanan $100.00 December 04, 2019
FERAS ALZAWATI $250.00 December 04, 2019
Yasmin Mustafa $50.00 December 04, 2019
Tala Sukhun $100.00 December 04, 2019
Anonymous $250.00 December 04, 2019
melanie chami $100.00 December 04, 2019
Anonymous $100.00 December 04, 2019
Anonymous $100.00 December 04, 2019
Miya Cain $25.00 December 03, 2019
Anonymous $1,000.00 December 03, 2019
Nadia Masri $200.00 December 03, 2019
Lamees hamdan $50.00 December 03, 2019
Kai’s foot Masseuse $500.00 December 03, 2019
Anonymous $100.00 December 03, 2019
Hanibal Choujaa $50.00 December 03, 2019
Anonymous $100.00 December 02, 2019
Lydia Fayad $100.00 December 02, 2019
Laian, Aaron, and Milia Najjar-McIntyre $500.00 December 02, 2019
Anonymous $450.00 December 02, 2019
Anonymous $50.00 December 02, 2019
Lily Spiridon $100.00 December 02, 2019
Ghida Barbari $50.00 December 02, 2019
Khulood Siddiqi $500.00 December 02, 2019
Joubran Abdul Khalek $100.00 December 02, 2019
Basam Hadai $100.00 December 02, 2019
Yara Maasri $250.00 December 02, 2019
Anonymous $1,000.00 December 02, 2019
Houwaida Alameddine $50.00 December 02, 2019
Carlo Rammouz $50.00 December 02, 2019
Timothy Freeman $10.00 December 02, 2019
Tamara Kemaleddine $250.00 December 01, 2019
Tamara Kemaleddine $250.00 December 01, 2019
Mira Saidi $100.00 December 01, 2019
Munyema Hasan $50.00 December 01, 2019
Najla Khatib $50.00 December 01, 2019
Anonymous $50.00 December 01, 2019
Dana Masri $250.00 December 01, 2019