We learned of Hugo’s diagnosis when he was 11 months old – we were devastated. We had little idea of what the future held for our little boy and our family.
Hugo is two now, and is such a joy to have as our son. His smile and laugh melts our hearts, and he is the happiest little boy. Hugo has started to crawl and explore, and loves babbling, food and music.
We are just taking each day as it comes as we don’t know how long Hugo will keep progressing, but things are going to get harder as he grows. There is a glimmer of hope, as research is currently underway to find a cure. All research to date has been primarily funded through fundraising efforts from family and friends of affected children. No donation is too small, so please help us support this research effort to find a cure and help Hugo and others like him.
Hugo wanted to personally thank everyone who has donated so far.
|Margaret Goldston||$500.00||March 03, 2020|
|Ben Smith||$100.00||March 01, 2020|
|Christie Woinarski||$3,250.00||January 28, 2020|
|Christie Woinarski||$3,150.00||January 27, 2020|
|Jeff Rimes||$500.00||January 25, 2020|
|Anonymous||$1,000.00||January 22, 2020|
|Alex Krickx||$50.00||January 21, 2020|
|Anonymous||$250.00||December 28, 2019|
|Kenneth Chu||$10.00||December 27, 2019|
|Tanya March||$100.00||December 25, 2019|
|Michelle Mazzaferro||$100.00||November 30, 2019|
|Monique Alfris||$100.00||November 30, 2019|
|Sophie Sallis||$15.00||November 25, 2019|