For 1 Day

A campaign by: Sean Kim
53 Donors
Raised Percent :
124.14%

124.14% Funded
Share this campaign:

Elli turned eight years old this year. Like everyone we had to figure out how to deal with the pandemic and adjust how we lived. Elli continued to work diligently with her many therapists and enjoyed her virtual learning sessions with her wonderful teachers. Her seizures have gotten worse and keep her very tired most days. However, we are truly blessed that Elli avoided any significant hospitalizations so far this year. So, we celebrate and cherish special moments when she is alert. We struggle through days when seizures overwhelm her. However, we are not giving up and we will continue to fight for her so that one day she can enjoy being a kid, a big sister, precious daughter, spoiled granddaughter, and bratty pre-teenager. You can see more about Elli and our family here: https://youtu.be/pebODCUFiLU

 

Unfortunately, we were not able to host her big “For1Day” fundraiser. However, we ask you to join us to find a cure for Elli through your donation. There is a very promising project that is underway at the University of Massachusetts Medical School. A promising approach to treating MECP2 Duplication Syndrome is to reduce levels of the MECP2 protein by silencing gene expression. One way to silence genes is through editing RNA using special molecular scissors. The scientist doing this work at UMASS is Dr. Anastasia Khvorova, who is a pioneer in this field and is part of the RNA Therapeutics Institute at UMASS that brings together a critical mass of scientists with RNA expertise. With continued funding and research progress, this exciting approach could lead to clinical trials for MECP2 Duplication Syndrome.

The research requires significant funding and families around the world are trying desperately to fund the research. It is exciting to see another promising research project to ultimately find a cure for this vicious disorder. However, we need your help.  Let’s fight together For 1 Day.

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Elli's Hero

7 Donors

$500

Elli's Champion

0 Donors

$250

Elli's Believer

9 Donors

$100

Elli's Supporter

28 Donors

Name Donate Amount Date
Ron Yuen $50.00 January 16, 2021
Sinae Lee $100.00 January 01, 2021
Annie Lee $100.00 December 29, 2020
Annie Lee $100.00 December 29, 2020
Joanne Chuang $200.00 December 25, 2020
Clara Choy $250.00 December 20, 2020
Catherine Ball $25.00 December 18, 2020
Anonymous $100.00 December 18, 2020
Sean Kim $5,000.00 December 18, 2020
Bonnie Chau $100.00 December 14, 2020
Andrea Estrada $250.00 December 12, 2020
Patrick Tinsley $100.00 December 12, 2020
Valerie Adair $100.00 December 12, 2020
Soojin Uh $100.00 December 12, 2020
viki Wolfe $100.00 December 12, 2020
Veronica Vazquez $100.00 December 12, 2020
Anonymous $15,000.00 December 11, 2020
Richard Mills $100.00 December 10, 2020
Alexis Briggs $150.00 December 09, 2020
Roxanne Basgen $100.00 December 07, 2020
Anonymous $160.00 December 06, 2020
Anonymous $250.00 December 05, 2020
Jongmin Kim $250.00 December 05, 2020
Jung-In Kim $200.00 December 05, 2020
Anonymous $250.00 December 04, 2020
DANIEL MITCHELL $250.00 December 04, 2020
Yijung Byun $1,000.00 December 03, 2020
Eric Schranz $100.00 December 03, 2020
Anonymous $100.00 December 03, 2020
Ashley Robb $50.00 December 03, 2020
Jackie Choi $200.00 December 03, 2020
Hadi Garakani $250.00 December 03, 2020
Cristina Likins $200.00 December 02, 2020
Julie Pham David Bui $150.00 December 02, 2020
Mitzi Muirhead $50.00 December 02, 2020
Mike Aviles $1,000.00 December 02, 2020
Crystal Cardenas $100.00 December 02, 2020
Emily Taylor $50.00 December 02, 2020
Peter Yoon $250.00 December 02, 2020
Anonymous $25.00 December 02, 2020
Jennifer Chao $1,000.00 December 02, 2020
Anonymous $100.00 December 02, 2020
Philip Odusote $100.00 December 02, 2020
Geny Kim $25.00 December 02, 2020
Anonymous $100.00 December 02, 2020
Alicia Korth $1,000.00 December 02, 2020
Terry Han $150.00 December 02, 2020
Lila Hwang $100.00 December 01, 2020
Bernard Hewett $1,000.00 December 01, 2020
Anonymous $50.00 December 01, 2020
Chan Park $250.00 December 01, 2020
Anonymous $50.00 December 01, 2020
Ann Do $100.00 December 01, 2020

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