It’s hard to believe that another year has gone by, and Ema is now 8 years old. Since we started Ema’s Rettgive campaign in 2016, we raised over $35,000 thanks to your generosity.
Ema has been very busy over the last year. She went skiing again this winter and had another awesome experience. She also participated in the St. Anthony’s Triathlon in St. Petersburg, and enjoyed her 3rd baseball season with the Cubs. Ema graduated 1st grade in May, and is now at Dream Oaks summer camp, where she is swimming, kayaking, and horseback riding. She is looking forward to starting school in the fall where she will be in the mainstream 2nd grade classroom.
We are eagerly anticipating the 1st clinical trial from Avexis which is scheduled to be out sometime this year. This gives us hope that a cure is on the horizon, and drives us to fight for Ema every single day.
Ema is growing up and maturing into a very special and remarkable young lady. She spreads love and kindness everywhere she goes, all without saying a word. Her eyes tell her story, and her smile captures the hearts of everyone around. We are, once again, asking for your help in finding a cure for Rett Syndrome. We TRULY believe this is in the near future, and any amount is greatly appreciated.
|Nili & Jerry Krassner||$180.00||June 24, 2020|
|Goldie Bertenthal||$100.00||January 14, 2020|
|Christina Burke||$250.00||December 04, 2019|
|Nili Krassner||$100.00||November 27, 2019|
|Carole Friedman||$100.00||November 26, 2019|
|Bob and Margot Offner||$1,000.00||November 26, 2019|
|Stuart and Lenka Offner||$5,000.00||November 26, 2019|