Dear Friends of Dakota,
We pray for all of you as we move toward the Christmas season and the religious holidays that bring family and friends together in December.
Although 2020 was a new type of challenge for each of us, I am writing to encourage further scientific research to identify a treatment (or even a cure) for a genetic disorder known as MECP2 Duplication Syndrome (MDS). This syndrome profoundly affects our son Dakota. Many of you know Dakota personally, and see how God has blessed him with the strength and endurance to tolerate the frequent seizures and breathing issues he faces daily. Dakota’s health has not improved during this past year, nor has it declined. So, for Dakota and all the MDS Families who do not sit on the sidelines, but make the effort to fight for progress, we are asking for your prayers and financial support for research.
You can make your contribution on this campaign and it will go directly to research on MECP2 Duplication Syndrome. Or you can send a check written to “RSRT” and mailed to Rett Syndrome Research Trust (RSRT), 67 Under Cliff Road, Trumbull, CT 06611 Please reference “Friends of Dakota/MECP2 Duplication Syndrome”
Email your questions to me and Bryan at 401Project@optonline.net to get a quick response.
Many blessings and many thanks,
With love,
Loretta, Bryan, Dakota, Chandler and the 401 Project Team
For further background on MECP2 Duplication Syndrome please go here:
Donation Amount
Minimum amount is $
Maximum amount is $100000
| Name | Donate Amount | Date |
|---|---|---|
| Constance Sheehan | $100.00 | January 22, 2021 |
| Lisa Pacheco | $50.00 | January 18, 2021 |
| Stephanie Comunale | $12.00 | January 18, 2021 |
| Anna Golden | $100.00 | January 14, 2021 |
| Lyudmila Coccia | $100.00 | January 12, 2021 |
| Linda Hernandez | $25.00 | January 08, 2021 |
| Kevin przybylowski | $250.00 | January 08, 2021 |
| Anthony Fusco | $250.00 | January 07, 2021 |
| Erich Liendo | $100.00 | January 07, 2021 |
| freddy LongMattera | $100.00 | January 07, 2021 |
| Jonathan Latham | $50.00 | January 06, 2021 |
| ross cord | $50.00 | January 06, 2021 |
| Frances Greves | $25.00 | January 04, 2021 |
| Varin Neitzel | $500.00 | January 01, 2021 |
| Jane Thelen | $200.00 | January 01, 2021 |
| Aurelie Teebagy | $100.00 | December 31, 2020 |
| Donald and Gladys Stone | $0.00 | December 30, 2020 |
| Pamela Rogers | $50.00 | December 27, 2020 |
| Bryan Rogers | $50.00 | December 23, 2020 |
| Loretta Beine | $200.00 | December 23, 2020 |
| Margaret & William Wenzel | $100.00 | December 21, 2020 |
| Alma & Frank Cavallaro | $50.00 | December 21, 2020 |
| Theresa & Irwin Fishberg | $50.00 | December 21, 2020 |
| Jayne & James Devereaux | $50.00 | December 21, 2020 |
| Vera & Michael Nicoletti | $100.00 | December 21, 2020 |
| Michele Coco | $25.00 | December 21, 2020 |
| Eileen Mildenberger | $100.00 | December 20, 2020 |
| Eileen Mildenberger | $0.00 | December 20, 2020 |
| Chandler Crawford | $50.00 | December 19, 2020 |
| paul Feinman | $50.00 | December 19, 2020 |
| Anonymous | $8.00 | December 18, 2020 |
| Nanci & Michael Mildenberger | $200.00 | December 16, 2020 |
| Debbie HOFFMANN | $25.00 | December 15, 2020 |
| Josephine and Harry Obrien | $100.00 | December 15, 2020 |
| Mark Pavlat | $50.00 | December 15, 2020 |
| Jenine Sarich | $50.00 | December 14, 2020 |
| Anne Sidoti | $50.00 | December 14, 2020 |
| Diane DiTommaso | $50.00 | December 14, 2020 |
| Donnalee and John Gray | $50.00 | December 11, 2020 |
| Siobhan Neitzel | $50.00 | December 10, 2020 |
| Linda & Bryan Rogers, Sr. | $500.00 | December 09, 2020 |
| Victoria Pepitone | $100.00 | December 08, 2020 |
| Delia Neitzel | $300.00 | December 08, 2020 |
| Delia Neitzel | $0.00 | December 08, 2020 |
| Maria Blaut | $30.00 | December 08, 2020 |
| Jennifer Bagetis | $50.00 | December 08, 2020 |
| Dakota Crawford | $50.00 | December 08, 2020 |
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