Dakota’s Campaign

A campaign by: Loretta & Bryan Beine
52 Donors
$5,162.00 Raised
$10,000.00 Goal
Raised Percent :
51.62%

51.62% Funded
Share this campaign:

Dear Friends of Dakota,
We pray for all of you as we move toward the Christmas season and the religious holidays that bring family and friends together in December.

Although 2020 was a new type of challenge for each of us, I am writing to encourage further scientific research to identify a treatment (or even a cure) for a genetic disorder known as MECP2 Duplication Syndrome (MDS). This syndrome profoundly affects our son Dakota. Many of you know Dakota personally, and see how God has blessed him with the strength and endurance to tolerate the frequent seizures and breathing issues he faces daily. Dakota’s health has not improved during this past year, nor has it declined. So, for Dakota and all the MDS Families who do not sit on the sidelines, but make the effort to fight for progress, we are asking for your prayers and financial support for research.

You can make your contribution on this campaign and it will go directly to research on MECP2 Duplication Syndrome. Or you can send a check written to “RSRT” and mailed to Rett Syndrome Research Trust (RSRT), 67 Under Cliff Road, Trumbull, CT 06611   Please reference “Friends of Dakota/MECP2 Duplication Syndrome”

Email your questions to me and Bryan at 401Project@optonline.net to get a quick response.

Many blessings and many thanks,
With love,

Loretta, Bryan, Dakota, Chandler and the 401 Project Team

For further background on MECP2 Duplication Syndrome please go here:

http://curemds.org/mecp2-duplication-syndrome

Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
Joseph & Rose Marie Beine $200.00 February 26, 2021
John Rogers $100.00 February 05, 2021
Anonymous $12.00 February 02, 2021
June Wagner $100.00 January 25, 2021
Michael Melia $200.00 January 25, 2021
Constance Sheehan $100.00 January 22, 2021
Lisa Pacheco $50.00 January 18, 2021
Stephanie Comunale $12.00 January 18, 2021
Anna Golden $100.00 January 14, 2021
Lyudmila Coccia $100.00 January 12, 2021
Linda Hernandez $25.00 January 08, 2021
Kevin przybylowski $250.00 January 08, 2021
Anthony Fusco $250.00 January 07, 2021
Erich Liendo $100.00 January 07, 2021
freddy LongMattera $100.00 January 07, 2021
Jonathan Latham $50.00 January 06, 2021
ross cord $50.00 January 06, 2021
Frances Greves $25.00 January 04, 2021
Varin Neitzel $500.00 January 01, 2021
Jane Thelen $200.00 January 01, 2021
Aurelie Teebagy $100.00 December 31, 2020
Donald and Gladys Stone $0.00 December 30, 2020
Pamela Rogers $50.00 December 27, 2020
Bryan Rogers $50.00 December 23, 2020
Loretta Beine $200.00 December 23, 2020
Margaret & William Wenzel $100.00 December 21, 2020
Alma & Frank Cavallaro $50.00 December 21, 2020
Theresa & Irwin Fishberg $50.00 December 21, 2020
Jayne & James Devereaux $50.00 December 21, 2020
Vera & Michael Nicoletti $100.00 December 21, 2020
Michele Coco $25.00 December 21, 2020
Eileen Mildenberger $100.00 December 20, 2020
Eileen Mildenberger $0.00 December 20, 2020
Chandler Crawford $50.00 December 19, 2020
paul Feinman $50.00 December 19, 2020
Anonymous $8.00 December 18, 2020
Nanci & Michael Mildenberger $200.00 December 16, 2020
Debbie HOFFMANN $25.00 December 15, 2020
Josephine and Harry Obrien $100.00 December 15, 2020
Mark Pavlat $50.00 December 15, 2020
Jenine Sarich $50.00 December 14, 2020
Anne Sidoti $50.00 December 14, 2020
Diane DiTommaso $50.00 December 14, 2020
Donnalee and John Gray $50.00 December 11, 2020
Siobhan Neitzel $50.00 December 10, 2020
Linda & Bryan Rogers, Sr. $500.00 December 09, 2020
Victoria Pepitone $100.00 December 08, 2020
Delia Neitzel $300.00 December 08, 2020
Delia Neitzel $0.00 December 08, 2020
Maria Blaut $30.00 December 08, 2020
Jennifer Bagetis $50.00 December 08, 2020
Dakota Crawford $50.00 December 08, 2020