We have been overwhelmed by the generosity of so many who supported our ride and our cause, research on Rett Syndrome. Profound thanks to all who contributed. In an effort to make the greatest difference we possibly can to this research and to the lives it will impact, we have raised our goal.
Because the Rett Syndrome Research Trust is a US-based non-profit organisation, the amount you contribute will be in US Dollars. This will show on your credit card statement in Pound Sterling at the conversion rate at the time of your donation.
Alexander Kelly, Bertie Cornett, Wilfred Marriott, Benjamin Phillips, Leopold Glover and Cameron Sinclair have lost their minds and decided to take up bicycling. And more than that they are planning to cycle 800 kilometres in 6 days from Dover to Falmouth in what can only be described as the punt of their lives. With very little cycling experience and even less practical sense, these six imbeciles will attempt to climb 22,000 feet in a circuit that is designed for “experienced riders only”, typically foregone by cycling badgers and people wearing fluorescents. With no professional help being sought and a route mapped out on the back of a fag packet, this will provide a serious challenge for all those involved.
You would be forgiven for questioning why they are doing this? The answer is simple: to let you know about Rett Syndrome. Rett Syndrome is a cruel and debilitating neurological disorder that is caused by a mutated gene on the X chromosome. There is no treatment, and no cure. Rett affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett Syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. Its symptoms have been described as “autism, cerebral palsy, Parkinson’s, epilepsy, and anxiety disorder…all in one little girl.”
Numerous trials are underway to produce treatments for Rett. Many believe that advances in gene therapy could lead to a cure. Rett Syndrome stands apart from other neurological disorders due to the dramatic reversibility of symptoms in animal models. There is hope!
Now what we want more than anything it to be able to turn that hope into reality through the funding of groundbreaking research. We want to raise funds and awareness for Rett Syndrome, and we need your help to do so. All proceeds will be going to the Rett Syndrome Research Trust (RSRT), a not-for-profit organisation aimed at achieving one goal: a cure. You can learn more about Rett Syndrome, RSRT, and the research here: https://research.reverserett.org/
This is a cause close to our hearts. One little girl who suffers from Rett (Allegra Kent) is Alexander Kelly’s niece.
Allegra is seven years old. Allegra was the happiest baby, smiling and laughing and engaging people with her sparkling eyes. Until she was about 18 months old she was hitting the usual milestones. Then her language delay became noticeable and gradually she seemed less and less engaged with the world around her. After an agonising four years and endless assessments Allegra was diagnosed with Rett Syndrome, which finally explained why she had developed normally until 18 months. The regression that followed, happening before their eyes, and with no explanation at that time, was the cruelest part of the syndrome for the Kents. Allegra’s mother told us: “When I didn’t know what was wrong with my daughter I worried for her future. Now I worry if she will have a future.”
If there is anything that you can do, we will be forever grateful. Your support will change Allegra’s life and the lives of thousands of others around the world.
For more information on Allegra’s story, please use the following hashtags below. We would encourage you to share anything that you can on social media that would help us in our plight.
Much Love,
Kelly, Bertie, Wilf, Phil, Glove and Cam
#ForAllegra #RettSyndrome #MakingRettHistory
Name | Donate Amount | Date |
---|---|---|
Bank of America matches | $2,500.00 | December 23, 2021 |
Sarah Cooper | $65.00 | December 03, 2021 |
Anonymous | $10.00 | August 13, 2021 |
Louise Willis | $100.00 | June 12, 2021 |
Hamish Temporal | $50.00 | June 11, 2021 |
Elias Lindh | $30.00 | June 10, 2021 |
George Rogers | $30.00 | June 10, 2021 |
Anonymous | $40.00 | June 09, 2021 |
David Sales | $30.00 | June 09, 2021 |
Cosmo Warner | $20.00 | June 08, 2021 |
Philip Augsburger | $25.00 | June 04, 2021 |
Felix Doorenbos | $100.00 | June 04, 2021 |
dermot mcnally | $10.00 | June 04, 2021 |
Jean-Eudes Renier | $2,000.00 | June 04, 2021 |
Andrew McCredie | $25.00 | June 03, 2021 |
Anonymous | $25.00 | June 03, 2021 |
Bella Wheatman | $30.00 | June 03, 2021 |
Matilda Corfield | $30.00 | June 03, 2021 |
Angus Lowe | $40.00 | June 03, 2021 |
Jack Beeston | $20.00 | June 03, 2021 |
Billy Cubitt | $10.00 | June 03, 2021 |
Henry Hatherley | $30.00 | June 03, 2021 |
Anonymous | $20.00 | June 03, 2021 |
Siana Vere Nicoll | $10.00 | June 03, 2021 |
On behalf of Wilf Marriott | $29.00 | June 03, 2021 |
Claire Noakes | $20.00 | June 03, 2021 |
Tarcan Erisen | $75.00 | June 03, 2021 |
Will Dymond | $31.00 | June 02, 2021 |
Amanda Sykes | $105.00 | June 02, 2021 |
Harry Lloyd | $30.00 | June 02, 2021 |
Polly Simpson | $20.00 | June 02, 2021 |
Paolo Di Silvio | $30.00 | June 01, 2021 |
Nick Paterson-Morgan | $200.00 | June 01, 2021 |
Jack Chessher | $10.00 | June 01, 2021 |
Freddie Paterson Morgan | $100.00 | June 01, 2021 |
Hector Besant | $30.00 | June 01, 2021 |
Oliver Wynne-Griffith | $20.00 | June 01, 2021 |
Hugo Kent | $50.00 | May 31, 2021 |
Martin Kelly | $710.00 | May 30, 2021 |
Tara Henderson | $10.00 | May 30, 2021 |
Anonymous | $50.00 | May 29, 2021 |
Dominic Cummings | $50.00 | May 28, 2021 |
Annabel Drabble | $150.00 | May 28, 2021 |
Geordie Tulloch | $50.00 | May 28, 2021 |
Harry Croft | $50.00 | May 28, 2021 |
Sophie Rey | $20.00 | May 28, 2021 |
Daniel Hewitt | $30.00 | May 28, 2021 |
Roseanna Thompson | $50.00 | May 28, 2021 |
Cleo Smeeth | $100.00 | May 28, 2021 |
Emily Louise C | $15.00 | May 27, 2021 |
Charlotte Berrill | $35.00 | May 27, 2021 |
Catherine Davies | $10.00 | May 27, 2021 |
Emily Duffy | $30.00 | May 27, 2021 |
Matthew Korner | $30.00 | May 27, 2021 |
Annabel Wright | $20.00 | May 27, 2021 |
Anonymous | $20.00 | May 26, 2021 |
Maddy Cullen | $10.00 | May 26, 2021 |
Nina Attwood | $20.00 | May 26, 2021 |
Lotte Bolton Carter | $40.00 | May 26, 2021 |
Ella RK | $30.00 | May 26, 2021 |
Patrick Dunn | $30.00 | May 26, 2021 |
Isabel Green | $10.00 | May 26, 2021 |
Eleanor Bowers | $10.00 | May 26, 2021 |
Anonymous | $10.00 | May 26, 2021 |
D & A Phillips | $70.00 | May 26, 2021 |
L Hallam | $70.00 | May 26, 2021 |
hina patel | $15.00 | May 24, 2021 |
Larna Brooks | $20.00 | May 24, 2021 |
Nicky Gossage | $75.00 | May 24, 2021 |
Claire Martin | $50.00 | May 24, 2021 |
Otilija Ramanauskaite | $5.00 | May 24, 2021 |
Ferdous Aolad | $25.00 | May 23, 2021 |
Edward Fane Trefusis | $25.00 | May 23, 2021 |
Sam Archer | $10.00 | May 23, 2021 |
Brittany Forster | $50.00 | May 23, 2021 |
Charlotte Franco | $25.00 | May 23, 2021 |
Alex Hearne | $50.00 | May 22, 2021 |
Nick Howard | $100.00 | May 22, 2021 |
Olivia Edwards | $15.00 | May 22, 2021 |
Posy Wood | $10.00 | May 22, 2021 |
Kim Burton-Race | $70.00 | May 22, 2021 |
Catherine Vaughan-Edwards | $70.00 | May 22, 2021 |
Cleo Smeeth | $100.00 | May 22, 2021 |
Cleo Smeeth | $50.00 | May 22, 2021 |
Oliver Phillips | $70.00 | May 22, 2021 |
Laura Schicht | $50.00 | May 21, 2021 |
Euan Fenton | $30.00 | May 21, 2021 |
David Gabriel | $20.00 | May 21, 2021 |
Georgia Fowler | $30.00 | May 21, 2021 |
Helen Callaghan | $15.00 | May 21, 2021 |
Rowan Taylor | $5.00 | May 21, 2021 |
James Hampton | $150.00 | May 21, 2021 |
Martha Dendle | $75.00 | May 21, 2021 |
Oliver Newland | $50.00 | May 21, 2021 |
The Hags | $50.00 | May 21, 2021 |
Dominic Barrington | $20.00 | May 21, 2021 |
Oliver Mills | $10.00 | May 21, 2021 |
Frederic Lyons | $50.00 | May 21, 2021 |
George Lee | $25.00 | May 21, 2021 |
Emma Chamings | $20.00 | May 21, 2021 |
Yoseph Burggraaf | $15.00 | May 21, 2021 |
Hugo Plunkett | $50.00 | May 21, 2021 |
Umberto Modiano | $30.00 | May 20, 2021 |
Bradley Gayler | $10.00 | May 20, 2021 |
Harriet Noble | $30.00 | May 20, 2021 |
Anonymous | $70.00 | May 20, 2021 |
Archie Hewlett | $50.00 | May 20, 2021 |
Guy Briston | $20.00 | May 20, 2021 |
Morgan Ward | $30.00 | May 20, 2021 |
Nancy Morrison | $41.00 | May 20, 2021 |
Ben Kirke | $80.00 | May 20, 2021 |
Alexia Fenn | $20.00 | May 20, 2021 |
Mollie Royds | $20.00 | May 20, 2021 |
Emily Evans | $45.00 | May 20, 2021 |
A J WRIGHT | $25.00 | May 20, 2021 |
Oliver Spray | $50.00 | May 20, 2021 |
Thomas Nokes | $20.00 | May 19, 2021 |
Alasdair Murdoch | $100.00 | May 19, 2021 |
Klara King | $25.00 | May 19, 2021 |
Michael Toogood | $100.00 | May 19, 2021 |
James Metcalf | $50.00 | May 19, 2021 |
Rory Townsend-Rose | $25.00 | May 19, 2021 |
P EVANS-BEVAN | $30.00 | May 19, 2021 |
Alice Hanson | $20.00 | May 19, 2021 |
Jess Radford | $15.00 | May 18, 2021 |
Lucy Maitland | $30.00 | May 18, 2021 |
Ed Nicholson | $20.00 | May 18, 2021 |
Emily Marchant | $30.00 | May 17, 2021 |
Martin Cornett | $300.00 | May 17, 2021 |
Anonymous | $50.00 | May 17, 2021 |
Andrew & Harriet Newland | $75.00 | May 16, 2021 |
Vanessa Evans | $1,500.00 | May 15, 2021 |
Kate McClean | $30.00 | May 14, 2021 |
Michael Glenn | $10.00 | May 13, 2021 |
Matthew Strawson | $50.00 | May 13, 2021 |
Charles Beamish | $100.00 | May 13, 2021 |
Team Lego | $140.00 | May 13, 2021 |
Sarah Toogood | $140.00 | May 13, 2021 |
Lucy Winterton | $50.00 | May 13, 2021 |
Anna Craven-Smith-Milnes | $100.00 | May 13, 2021 |
Zander Millar | $30.00 | May 12, 2021 |
Thomas Holroyd | $250.00 | May 12, 2021 |
Melanie Canning | $20.00 | May 12, 2021 |
Nikita Sirko-Galouchenko | $80.00 | May 12, 2021 |
James McClean | $75.00 | May 11, 2021 |
Zoe Donovan | $30.00 | May 11, 2021 |
Anonymous | $50.00 | May 10, 2021 |
Justin Anstee | $150.00 | May 10, 2021 |
Aline Camargo | $50.00 | May 10, 2021 |
Anonymous | $30.00 | May 10, 2021 |
Emily Burkle | $100.00 | May 10, 2021 |
Caroline Demian | $50.00 | May 10, 2021 |
Samuel Forbes | $50.00 | May 10, 2021 |
Andrew Lopes | $50.00 | May 10, 2021 |
Anonymous | $50.00 | May 10, 2021 |
Hattie Lucas-Clements | $20.00 | May 10, 2021 |
Anonymous | $70.00 | May 09, 2021 |
Emily Phillips | $100.00 | May 09, 2021 |
Carolyn Vane | $70.00 | May 08, 2021 |
Ed Wills | $10.00 | May 08, 2021 |
James Robinson | $40.00 | May 08, 2021 |
Cressida Hope | $30.00 | May 08, 2021 |
Isobel Scott | $20.00 | May 07, 2021 |
Lottie Phillips | $30.00 | May 07, 2021 |
Phil Maund | $50.00 | May 07, 2021 |
Pandy Lewis | $15.00 | May 07, 2021 |
george fitzroy | $25.00 | May 05, 2021 |
Sophie Myles | $70.00 | May 05, 2021 |
Rose Bertie | $25.00 | May 04, 2021 |
Sally Merison | $150.00 | May 04, 2021 |
Sarah Cornett | $200.00 | May 04, 2021 |
Matilda Butcher | $20.00 | May 02, 2021 |
Polly Haggas | $50.00 | April 30, 2021 |
Michael Hampton | $300.00 | April 27, 2021 |
Alexander Pain | $20.00 | April 27, 2021 |
Humphrey FitzRoy newdegate | $40.00 | April 26, 2021 |
Jane Kent | $69.00 | April 26, 2021 |
Inez Aspinall | $20.00 | April 26, 2021 |
Melanie Hampton | $700.00 | April 26, 2021 |
Philip Cayford | $100.00 | April 25, 2021 |
India Cornett | $70.00 | April 25, 2021 |
Fergus Penny | $30.00 | April 25, 2021 |
Felicity Longfield | $140.00 | April 25, 2021 |
Jamie Heinrich | $20.00 | April 24, 2021 |
James Pearson | $100.00 | April 24, 2021 |
Henry Chancellor | $10.00 | April 23, 2021 |
Daisy Hughes | $15.00 | April 23, 2021 |
Fabian Burnett Small | $20.00 | April 23, 2021 |
Freddie Wright | $150.00 | April 23, 2021 |
Oskar Winkler von Stiernhielm | $40.00 | April 23, 2021 |
Charlotte Cook | $20.00 | April 23, 2021 |
Oswald Miller | $20.00 | April 20, 2021 |
Anonymous | $105.00 | April 19, 2021 |
Toby Morgan-Grenville | $20.00 | April 19, 2021 |
Victoria Aurell | $20.00 | April 16, 2021 |
Katherine Harington | $20.00 | April 16, 2021 |
Jeremy Phillips | $70.00 | April 13, 2021 |
Diana Hewitt | $30.00 | April 11, 2021 |
Louisa Greville Williams | $100.00 | April 08, 2021 |
Olivia Scott | $10.00 | April 08, 2021 |
THOMAS MARRIOTT | $130.00 | April 07, 2021 |
Edward Glover | $500.00 | April 06, 2021 |
Henry Vane | $220.00 | April 05, 2021 |
Tamara Rowan Hamilton | $30.00 | April 03, 2021 |
Freddie Monk | $50.00 | April 01, 2021 |
Frederick Henderson | $350.00 | March 31, 2021 |
Andrew Sweerts | $20.00 | March 31, 2021 |
Hugo Carmedy | $25.00 | March 30, 2021 |
Nick Howard | $0.00 | March 28, 2021 |
William Fowler | $30.00 | March 27, 2021 |
James Stork | $50.00 | March 26, 2021 |
Sam Littler | $10.00 | March 23, 2021 |
Vijay Vaswani | $100.00 | March 23, 2021 |
Alex popplewell | $100.00 | March 22, 2021 |
Chris Kershaw | $40.00 | March 22, 2021 |
Dinah Marriott | $250.00 | March 18, 2021 |
Dinah Marriott | $0.00 | March 18, 2021 |
Willa Gray | $35.00 | March 18, 2021 |
Chloe Dodson | $35.00 | March 18, 2021 |
George Bollon | $50.00 | March 16, 2021 |
Tom Hutchins | $80.00 | March 14, 2021 |
Alexander Macdonald | $10.00 | March 13, 2021 |
George Borrows | $50.00 | March 11, 2021 |
Agnes Matrai | $500.00 | March 11, 2021 |
Christopher Kelly | $30.00 | March 10, 2021 |
Sue Forbes | $50.00 | March 10, 2021 |
Simon Phillips | $500.00 | March 10, 2021 |
Sue Forbes | $0.00 | March 10, 2021 |
Patrick Gunn | $50.00 | March 08, 2021 |
Carol Donnelly | $30.00 | March 08, 2021 |
SHAUNA Longfield | $100.00 | March 08, 2021 |
Stephen Sinclair | $500.00 | March 08, 2021 |
Arthur Fitz | $30.00 | March 07, 2021 |
Christopher Kelly | $195.00 | March 04, 2021 |
Tom Lynas | $10.00 | March 04, 2021 |
angus robertson | $100.00 | March 03, 2021 |
Gil Lapsley | $40.00 | March 02, 2021 |
Jemima Murray-Poore | $30.00 | March 02, 2021 |
Phoebe Unwin | $15.00 | March 01, 2021 |
Jane Kent | $250.00 | February 27, 2021 |
Caspar Mould | $25.00 | February 27, 2021 |
Olivia Orr | $50.00 | February 23, 2021 |
Annabel Eden | $30.00 | February 23, 2021 |
Nigheann Enderby | $100.00 | February 23, 2021 |
ALEX STEWART-LIBERTY | $40.00 | February 23, 2021 |
Anonymous | $100.00 | February 22, 2021 |
Onnalee Cubitt | $140.00 | February 22, 2021 |
Edward Longfield | $100.00 | February 22, 2021 |
Fiona Homan | $100.00 | February 22, 2021 |
JON QUESNEL | $70.00 | February 22, 2021 |
Will Jackson-Moore | $500.00 | February 22, 2021 |
Daryl Neumann | $50.00 | February 22, 2021 |
Arabella Kelly | $80.00 | February 21, 2021 |
Tim Clews | $20.00 | February 21, 2021 |
Tom Cassady | $40.00 | February 21, 2021 |
Oliver Jacobs | $30.00 | February 20, 2021 |
Thomas Williams | $75.00 | February 20, 2021 |
Tom Schmider | $30.00 | February 20, 2021 |
Charles Miller | $60.00 | February 19, 2021 |
Eloise Melville | $20.00 | February 19, 2021 |
George Holt | $50.00 | February 19, 2021 |
Christopher Kelly | $70.00 | February 19, 2021 |
Lettice Carter | $20.00 | February 19, 2021 |
Megan Duckett | $20.00 | February 19, 2021 |
Ella Markham | $20.00 | February 19, 2021 |
Andrew Barrie | $50.00 | February 19, 2021 |
George Mitchard | $50.00 | February 19, 2021 |
Cameron Barrie | $25.00 | February 19, 2021 |
Stroma Parker | $20.00 | February 19, 2021 |