Cure Campaign for Zoey

A campaign by: Dennis Adair
35 Donors
$18,521.50 Raised
$17,500.00 Goal
Raised Percent :
105.84%

105.84% Funded
Share this campaign:

Zoey is now six years old and we continue to give her childhood experiences. In the pictures, you can see Grandma doing spin art crafts, Mom swimming with Zoey and Papa helping her operate a soap bubble gun. She continues to love her therapeutic horseback riding, which has strengthened her core muscles and significantly helped her balance. With the help of a full-time aide, she has started kindergarten. While we focus on the positive, this past year, she has started to develop scoliosis and had a gastrostomy tube placed to maintain proper nutrition and hydration when she is sick. Help for Zoey’s condition cannot come soon enough.

We raised over $6,000 last year, plus our matching funds. Please help us achieve $7,500 this year, and to emphasize the importance to us, we will continue to match your donations up to $10,000.

Rett Syndrome Research Trust (RSRT) achieved its Roadmap to a Cure goal which resulted in unprecedented progress. When Roadmap began, there were zero biopharma companies working on MECP2-specific therapeutics and today there are six! Funding is now needed to for the next phase, CURE 360, where academic lab science will be translated to more clinical trials to positively impact all those with Rett Syndrome. RSRT has taken on the critical role of becoming an incubator for transitioning MECP2 therapeutic strategies from academic lab to biopharma. RSRT also continues to support multiple cure avenues as there are six promising paths.

For one of those, all is a go for a AveXis gene therapy trial for Rett Syndrome. AveXis will be working with the FDA over the coming months to pin down exact timing and protocols. This is very exciting and promising as it will be the first clinical trial that attacks Rett at its genetic core!

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Zoey's Superhero

4 Donors

$500

Zoey's Hero

3 Donors

$250

Zoey's Guardian

4 Donors

$100

Zoey's Hope

17 Donors

$50

Zoey's Friend

6 Donors

Name Donate Amount Date
Hershey's Matching Gift for Bryan Werner $95.00 April 23, 2021
Hershey's Matching Gift for Gretchen Fisher & Megan Marshall $200.00 April 23, 2021
Matt Freidly $50.00 April 23, 2021
Bonnie & Dennis Adair $10,000.00 February 22, 2021
Brian McMahon $250.00 January 20, 2021
John & Michele Stachowiak $500.00 January 06, 2021
Matthew and Deanna Adair $1,000.00 January 01, 2021
Sergio Flores $150.00 December 31, 2020
Matthew Freidly $150.00 December 21, 2020
John Hnatishion $50.00 December 16, 2020
Patsy Primost $100.00 December 10, 2020
David Tacka $1,200.00 November 24, 2020
Hershey's Matching Gifts $200.00 November 11, 2020
Wesley Petery $250.00 November 11, 2020
Megan Marshall $100.00 October 30, 2020
Gretchen Fisher $100.00 October 29, 2020
Charles Mackey $50.00 October 29, 2020
Jeff Kemmerer $100.00 October 27, 2020
James Steeley $100.00 October 27, 2020
Patricia Peffley $125.00 October 15, 2020
William Buckfelder $250.00 October 12, 2020
Anthony Celtruda $50.00 October 12, 2020
Ricki Davis $5.00 October 08, 2020
Gates Family Giving Fund $750.00 October 08, 2020
Suzanne Miller $100.00 October 07, 2020
Jeffrey Doane $500.00 October 06, 2020
$196.50 October 06, 2020
Stephen Kloss $1,000.00 October 03, 2020
Martha Petery $100.00 September 30, 2020
Gerald Urich $100.00 September 29, 2020
Bryan Werner $100.00 September 29, 2020
Pamela Bucher $50.00 September 28, 2020
Jeff Edleman $250.00 September 25, 2020
Anonymous $100.00 September 25, 2020
Mark Novis $200.00 September 25, 2020