Our precious daughter is turning 25 years old this month. When we were her age we had graduate degrees, we had traveled extensively, had jobs that excited us, we were planning our wedding. Chelsea has never spoken a word or taken an independent step. She cannot use her hands. She is tortured by relentless seizures and an indescribable anxiety that torments her day and night.
Despite her many challenges Chelsea showers us with love and affection. Her soulful and intense gaze and the smiles that melt us speak louder than words ever could.
When Chelsea was diagnosed with Rett syndrome at the age of 2 very little was known about the disorder, including what caused it. Monica made our young daughter a promise that she would dedicate herself to helping develop a cure for Rett.
Today we know the cause, dozens of animal models have been developed, and great progress has been made in understanding the “Rett protein”. Most importantly there is an active research community focused on attacking the root cause of the disorder through genetic solutions. We expect gene replacement clinical trials to start as soon as year-end.
The Rett Syndrome Research Trust, run by Monica and inspired by Chelsea, has played a significant role in this remarkable progress.
Chelsea is the most vulnerable and yet the strongest person we know. In celebration of her milestone birthday we ask that you make a donation in support of Rett research that honors her resilience.
If you leave a comment for her (click on comment right under the pictures above) we’ll make sure to read her each one.
With love and gratitude,
Monica and Pieter Coenraads
Ps Chelsea’s grandmother died this past January. Nonna always called Chelsea “mio tesoro bello”….my beautiful treasure. It is with that term of endearment in mind that we have named the giving levels.
|Usree Bhattacharya||$100.00||October 24, 2021|
|Elizabeth Wolffe||$2,500.00||October 23, 2021|
|Deborah Wright DeVere||$100.00||October 22, 2021|
|Jan Ramirez||$2,500.00||October 21, 2021|
|Deborah Wright DeVere||$0.00||October 21, 2021|
|Karen Fox||$100.00||October 21, 2021|
|John Spiro||$150.00||October 20, 2021|
|Matthew Lyst||$50.00||October 20, 2021|
|Huda Zoghbi||$2,500.00||October 19, 2021|
|Luis Sanchez-Perez||$250.00||October 18, 2021|
|Michael Elowitz||$100.00||October 17, 2021|
|Peter Young||$100.00||October 17, 2021|
|Emily Nevola||$35.00||October 16, 2021|
|Mary Palmet||$50.00||October 16, 2021|
|Marta Benedetti||$100.00||October 16, 2021|
|Ann Fromm||$100.00||October 16, 2021|
|Kathrin Meyer||$250.00||October 15, 2021|
|Jeff Bemiss||$100.00||October 15, 2021|
|Jim Selfridge||$10.00||October 15, 2021|
|Eric Marsh||$50.00||October 14, 2021|
|Anonymous||$250.00||October 14, 2021|
|Annie McDonald||$100.00||October 13, 2021|
|Andrea Cerase||$50.00||October 13, 2021|
|Alan Packer||$100.00||October 11, 2021|
|Christina Greeley||$50.00||October 11, 2021|
|Anonymous||$10,000.00||October 11, 2021|
|AnnMarie & Bill Harlor||$5,000.00||October 11, 2021|
|Ben Philpot||$100.00||October 10, 2021|
|Ann White||$50.00||October 10, 2021|
|William Lowry||$100.00||October 10, 2021|
|Ben Shaberman||$50.00||October 10, 2021|
|Alex Coenraads||$150.00||October 10, 2021|
|Ricki D.avis||$150.00||October 07, 2021|
|Alexandra Seeber||$50.00||October 05, 2021|