Boston Marathon for Adam 2020

A campaign by: Elin & Pete Anderson
14 Donors
$1,970.00 Raised
$20,000.00 Goal
Raised Percent :
9.85%

9.85% Funded
Share this campaign:

Dear family and friends,

In the last three consecutive years, I’ve been fortunate to compete in the Boston Marathon. I am happy to say that I also qualified for this year’s race, something I feel very excited about! I am once again racing in honor of my son Adam and his condition MECP2 Duplication Syndrome.

This is a rare genetic disorder that has prevented Adam from being able to speak, to run, and to play with other children. Adam further suffers from seizures, low tone and has a higher risk of infections. Many children with this condition don’t make it to adulthood. Adam’s cognition is intact and essentially he is trapped within his own body. Imagine all of your parental fears manifested in a single diagnosis.

However, there is hope!

The lab of Dr. Huda Zoghbi at the Baylor College of Medicine announced in November 2015 that the syndrome has proven to be reversible. Because of your support through the years, we are now at the start of the truly revolutionary ASO Therapy trials. We cannot emphasize enough that your support is what makes this possible.

This year is a little different. I am hoping to raise $20,000. 20K in 2020 if you will. Please consider supporting me and in turn give Adam the chance at a real future and life.

Thank you for your love and support.
Elin & Pete Anderson

Donation Amount Minimum amount is $ Maximum amount is $100000
Name Donate Amount Date
Randy Heins $500.00 March 09, 2020
Darrin Johnson $50.00 March 09, 2020
Marie Sjodin $20.00 March 04, 2020
Cheryl Bruk $50.00 February 26, 2020
Dan & Michele Bertrand $50.00 February 26, 2020
Kenneth Chan $200.00 February 26, 2020
Sarah Creutz $100.00 February 25, 2020
Marianne Berg $100.00 February 24, 2020
Leslie Kehoe $100.00 February 21, 2020
Ruth Marrion $500.00 February 21, 2020
Angel Starr $100.00 February 18, 2020
Melanie Maclean $100.00 February 10, 2020
Kristi Hale $50.00 February 05, 2020
Elise Carbonell $50.00 February 05, 2020