Dear family and friends,
In the last three consecutive years, I’ve been fortunate to compete in the Boston Marathon. I am happy to say that I also qualified for this year’s race, something I feel very excited about! I am once again racing in honor of my son Adam and his condition MECP2 Duplication Syndrome.
This is a rare genetic disorder that has prevented Adam from being able to speak, to run, and to play with other children. Adam further suffers from seizures, low tone and has a higher risk of infections. Many children with this condition don’t make it to adulthood. Adam’s cognition is intact and essentially he is trapped within his own body. Imagine all of your parental fears manifested in a single diagnosis.
However, there is hope!
The lab of Dr. Huda Zoghbi at the Baylor College of Medicine announced in November 2015 that the syndrome has proven to be reversible. Because of your support through the years, we are now at the start of the truly revolutionary ASO Therapy trials. We cannot emphasize enough that your support is what makes this possible.
This year is a little different. I am hoping to raise $20,000. 20K in 2020 if you will. Please consider supporting me and in turn give Adam the chance at a real future and life.
Thank you for your love and support.
Elin & Pete Anderson
|Heidi Watters||$40.00||April 24, 2020|
|Carolann Hynes||$26.00||April 21, 2020|
|Jennifer Laurin||$35.00||April 21, 2020|
|Maura Szendey||$27.00||April 21, 2020|
|Chris Hunt||$100.00||April 21, 2020|
|Shaina Bendzewicz||$25.00||April 20, 2020|
|Pam Fallon||$50.00||April 20, 2020|
|Ingegerd Backlund||$20.00||April 20, 2020|
|Kristen Havey||$26.00||April 20, 2020|
|Lisa DeGloria||$25.00||April 20, 2020|
|Crissy Lippman||$26.00||April 20, 2020|
|Elise Carbonell||$150.00||April 20, 2020|
|Nadine Johnson||$50.00||April 20, 2020|
|Alexander Lotj||$26.00||April 20, 2020|
|Sue Parke||$25.00||April 20, 2020|
|Heather Rochette||$26.00||April 20, 2020|
|Randy Heins||$500.00||March 09, 2020|
|Darrin Johnson||$50.00||March 09, 2020|
|Marie Sjodin||$20.00||March 04, 2020|
|Cheryl Bruk||$50.00||February 26, 2020|
|Dan & Michele Bertrand||$50.00||February 26, 2020|
|Kenneth Chan||$200.00||February 26, 2020|
|Sarah Creutz||$100.00||February 25, 2020|
|Marianne Berg||$100.00||February 24, 2020|
|Leslie Kehoe||$100.00||February 21, 2020|
|Ruth Marrion||$500.00||February 21, 2020|
|Angel Starr||$100.00||February 18, 2020|
|Melanie Maclean||$100.00||February 10, 2020|
|Kristi Hale||$50.00||February 05, 2020|
|Elise Carbonell||$50.00||February 05, 2020|