Dear family and friends,
The last two years in a row I’ve been fortunate to compete in the Boston Marathon. I am happy to say that I also qualified for this year’s race, something I feel very excited about! I am once again racing in honor of my son Adam and his condition Mecp2 Duplication Syndrome.
This is a rare genetic disorder which has prevented Adam from being able to speak, to run, and to play with other children. Adam further suffers from seizures, low tone and has a higher risk of infections. Many children with this condition don’t make it to adulthood. Adam’s cognition is intact and essentially he is trapped within his own body. Imagine all of your parental fears manifested in a single diagnosis.
However, there is hope!
The lab of Dr. Huda Zoghbi at the Baylor College of Medicine announced in November 2015 that the syndrome has proven to be reversible. The pathway to treatment has been shown, but will come at high cost. With adequate funding, Adam could be cured within a matter of a few years, and for a parent this would be the greatest gift of all.
Please consider supporting me and in turn give Adam the chance at a real future and life.
Thank you for your love and support.
Sincerely,
Elin
Donation Amount
Minimum amount is $
Maximum amount is $100000
| Name | Donate Amount | Date |
|---|---|---|
| Marilyn Licciardello | $27.00 | April 20, 2020 |
| Randy Heins | $100.00 | November 27, 2019 |
| Marcia Anderson | $1,000.00 | November 27, 2019 |
| Marcia Anderson | $1,000.00 | November 27, 2019 |
| Pam Fallon | $50.00 | November 27, 2019 |
| Elise Carbonell | $50.00 | November 27, 2019 |
| Jennifer Hawkes | $50.00 | November 27, 2019 |
| Leslie Kehoe | $50.00 | November 27, 2019 |
| Anonymous | $50.00 | November 27, 2019 |
| Linda Jelson | $30.00 | November 27, 2019 |
| Denise Francese | $25.00 | November 27, 2019 |
| Janice Parsons | $100.00 | November 27, 2019 |
| Linda Wells | $100.00 | November 27, 2019 |
| Maria Ruedlinger Walker | $25.00 | November 27, 2019 |
| Melanie Pappas | $25.00 | November 27, 2019 |
| Josefin Berg | $100.00 | November 27, 2019 |
| Heather Belson | $26.20 | November 27, 2019 |
| Colleen Harrington | $100.00 | November 27, 2019 |
| Leonardo Covarrubias | $100.00 | November 27, 2019 |
| Shannon Donahue | $20.00 | November 27, 2019 |
| Dan & Michele Bertrand | $25.00 | November 27, 2019 |
| Genevieve Rajewski | $30.00 | November 27, 2019 |
| Cheryl Bruk | $50.00 | November 27, 2019 |
| Charlotte Lenfest | $50.00 | November 27, 2019 |
| Kelly Gilbert | $50.00 | November 27, 2019 |
| Huda Zoghbi | $500.00 | November 27, 2019 |
| Frida Backe | $100.00 | November 27, 2019 |
| Caryl Haley | $100.00 | November 27, 2019 |
| Melanie MacLean | $100.00 | November 27, 2019 |
| Pete Pacquette | $100.00 | November 27, 2019 |
| Ruth Marrion | $500.00 | November 27, 2019 |
| Carrie Leary | $50.00 | November 27, 2019 |
| Barry Cullen | $100.00 | November 27, 2019 |
| Susan Harding | $200.00 | November 27, 2019 |
| Susie Kraemer | $500.00 | November 27, 2019 |
| Olga Lee | $50.00 | November 27, 2019 |
| Gustavo J Castro | $50.00 | November 27, 2019 |
| Marie Sjodin | $25.00 | November 27, 2019 |
| Kim and Kristin Angelo | $25.00 | November 27, 2019 |
| Bill Gardner | $50.00 | November 27, 2019 |
| Elisa Goldberg | $25.00 | November 27, 2019 |
| Kenneth Levine | $100.00 | November 27, 2019 |
| Charlotte Cantone | $50.00 | November 27, 2019 |
| Amy Pekock | $50.00 | November 27, 2019 |
| Zandra Faulkner | $100.00 | November 27, 2019 |
| Nadine Johnson | $50.00 | November 27, 2019 |
| John Lilly | $50.00 | November 27, 2019 |
| Mindy Meyer | $20.00 | November 27, 2019 |
| Anna Simon | $150.00 | November 27, 2019 |
| Donald Guthrie | $50.00 | November 27, 2019 |
| Megan Last | $100.00 | November 27, 2019 |
| Eileen Sheets | $100.00 | November 27, 2019 |
| Hanna Frank | $25.00 | November 27, 2019 |
| Eva and Thomas Frank | $200.00 | November 27, 2019 |
| Karen Robinson | $50.00 | November 27, 2019 |
| Anonymous | $10.00 | November 27, 2019 |
| Kristina Brassel | $25.00 | November 27, 2019 |
| Henrik Strandberg | $200.00 | November 27, 2019 |
| Ulrika Gerth | $20.00 | November 27, 2019 |
| Nick Savarese | $25.00 | November 27, 2019 |
| Lisa Plume | $100.00 | November 27, 2019 |
| Darrin Johnson | $50.00 | November 27, 2019 |
| Shannon Clough | $20.00 | November 27, 2019 |
| Jenn Ezell | $50.00 | November 27, 2019 |
| Deborah Smith | $40.00 | November 27, 2019 |
| Tim Guthrie | $150.00 | November 27, 2019 |
| Ingrid Geygan | $50.00 | November 27, 2019 |
| Karin Sodervall | $50.00 | November 27, 2019 |
| Christopher Hayes | $100.00 | November 27, 2019 |
| Elizabeth Murphy | $50.00 | November 27, 2019 |
| Frida Frank | $30.00 | November 27, 2019 |
| Helena Blomqvist | $100.00 | November 27, 2019 |
| Analog Devices | $50.00 | November 27, 2019 |
| Karin Buffett | $20.00 | November 27, 2019 |
| Ana and Jaime FloresQuero | $50.00 | November 27, 2019 |
| Rusty Bilodeau | $100.00 | November 27, 2019 |
| Marcia Anderson | $1.00 | November 27, 2019 |
| Julie Ambrose | $45.00 | November 27, 2019 |
| Christina Lilliehook | $25.00 | November 27, 2019 |
| Regina Kean | $10.00 | November 27, 2019 |
| Mary Dyan | $20.00 | November 27, 2019 |
| Ray and Rita Kraemer | $100.00 | November 27, 2019 |
| Anonymous | $75.00 | November 27, 2019 |
| Tara Anne St. Hilaire | $50.00 | November 27, 2019 |
| Debra Daley | $50.00 | November 27, 2019 |
| Rhonda Boudreau | $20.00 | November 27, 2019 |
| Glen Hartford | $75.00 | November 27, 2019 |
| Peter Waterman | $25.00 | November 27, 2019 |
| Sheryl Rudis | $25.00 | November 27, 2019 |
| Stephanie Owen | $50.00 | November 27, 2019 |
| Natalie Howard | $50.00 | November 27, 2019 |
| Anonymous | $50.00 | November 27, 2019 |
| Jay Schaefer | $25.00 | November 27, 2019 |
| BethAnne Magnuson | $25.00 | November 27, 2019 |
| Julee Gibson | $50.00 | November 27, 2019 |
| Christeen Murray | $50.00 | November 27, 2019 |
| Deanna Pomfret | $200.00 | November 27, 2019 |
| Kerin McLoughlin | $100.00 | November 27, 2019 |
| Dahlia Khankan | $25.00 | November 27, 2019 |
| Kim Briggs | $50.00 | November 27, 2019 |
| Matthew Davey | $370.00 | November 27, 2019 |
| Carl Ahlund | $370.00 | November 27, 2019 |
| Marianne Racioppi | $50.00 | November 27, 2019 |
| Aimee Phleger | $50.00 | November 27, 2019 |
| Hayley O'Sullivan | $50.00 | November 27, 2019 |
| Jennifer Colson | $20.00 | November 27, 2019 |
| Liz Oneil | $10.00 | November 27, 2019 |
| Alexis Latsey | $15.00 | November 27, 2019 |
| Rose Sullivan | $25.00 | November 27, 2019 |
| Irina Penttinen-Klein | $300.00 | November 27, 2019 |
| Kaitlin Sorensen | $25.00 | November 27, 2019 |
| Sarah Creutz | $50.00 | November 27, 2019 |
| Sue Dibble | $50.00 | November 27, 2019 |
| Karen Purtschert | $25.00 | November 27, 2019 |
| Marilyn Licciardello | $50.00 | November 27, 2019 |
| Sue Parke | $20.00 | November 27, 2019 |
| Elizabeth von der Heydt | $300.00 | November 27, 2019 |
| Christine Duffy | $25.00 | November 27, 2019 |
| Nicole Allen | $50.00 | November 27, 2019 |
| Amy Austin | $20.00 | November 27, 2019 |
| Belinda Sapienza | $25.00 | November 27, 2019 |
| Jaine Phillips | $50.00 | November 27, 2019 |
| Elin Wallerstein | $50.00 | November 27, 2019 |
| Paul Geffken | $50.00 | November 27, 2019 |
| Barbara Klanderman | $100.00 | November 27, 2019 |
| Maria Johansson | $40.00 | November 27, 2019 |
| Christine DiGiammarino | $25.00 | November 27, 2019 |
| J. Richard Conrad | $50.00 | November 27, 2019 |
| Heather LaRosa | $50.00 | November 27, 2019 |
| Michael Miller | $275.00 | November 27, 2019 |
| Susan Bond | $50.00 | November 27, 2019 |
| Anonymous | $20.00 | November 27, 2019 |
| Kristen Lovett | $100.00 | November 27, 2019 |
| John & Miranda Stanley | $500.00 | November 26, 2019 |
| Marcia Anderson | $500.00 | November 26, 2019 |
| Anonymous | $10.00 | November 24, 2019 |
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