Angela may not say anything, but she speaks to us with her eyes, hugs, cries and her giggles. Anyone who knows Angie, knows her as a sweet girl who adores her family, her dogs, and her Snow White doll. Angie’s favorite activities include eating, being outside, splashing in water, and watching her favorite TV show, Team Umizoomi.
On July 18, 2017, Angie was diagnosed with Rett Syndrome at 2 ½ years old, after almost a year of appointments, evaluations, testing and interventions. The diagnosis was a shock to us, especially since we were told by more than one physician that “Angela does not have Rett Syndrome.” Even nearly 2 months later, we are still coming to grips with it all, and wish we knew what the future for Angie will hold.
Up until Angie’s diagnosis, we were mildly aware of Rett Syndrome due to the fact that Angie has a second cousin who also has Rett, but we were in no way as knowledgeable about it as we seem to be now that we are living it. Anyone to whom we’d told about Angie’s diagnosis, responded with a variation of the same sentence: “I’ve never heard of Rett Syndrome before, but I just looked it up to learn more about it.” We realize that Rett Syndrome does not get the national recognition that other genetic disorders get, which is a part of the reason why we are starting this campaign – to raise awareness. We also are hopeful, based on recent research findings, that a cure can be possible for Rett Syndrome. We are committed to making this our life’s work, and will fight for Angie and girls like her in any way possible.
Jill & Mark Goodfellow
Donation Amount
Minimum amount is $
Maximum amount is $10000
Donation levels
$1000
Angela's Angel
0 Donors
$500
Angela's Guardian
0 Donors
$250
Angela's Wings
0 Donors
$100
Angela's Prayer
0 Donors
$50
Angela's Light
33 Donors
| Name | Donate Amount | Date |
|---|---|---|
| Nancy Staurovsky | $250.00 | December 06, 2019 |
| Stewart & Barbara Washburn | $1,000.00 | December 04, 2019 |
| Nancy Staurovsky | $250.00 | December 04, 2019 |
| Cindy & Jay Washburn | $1,000.00 | December 04, 2019 |
| Chris Mangone | $100.00 | December 04, 2019 |
| Sue & Matt Barez | $300.00 | December 04, 2019 |
| Barbara & Stewart Washburn | $1,000.00 | December 04, 2019 |
| Helen Matzonkai | $100.00 | December 04, 2019 |
| Kelly Radomski | $100.00 | December 04, 2019 |
| Kathy Radomski | $100.00 | December 04, 2019 |
| Chris Mangone | $50.00 | December 04, 2019 |
| Mark Goodfellow | $1,000.00 | December 04, 2019 |
| Catherine Stone | $100.00 | December 04, 2019 |
| Amy Randall | $100.00 | December 04, 2019 |
| Megan Dusing | $100.00 | December 04, 2019 |
| Robyn Engels | $25.00 | December 04, 2019 |
| Linda Akoury-White | $100.00 | December 04, 2019 |
| Patricia Resio | $100.00 | December 04, 2019 |
| Ryan Tita | $100.00 | December 04, 2019 |
| Katie Hoffman | $15.00 | December 04, 2019 |
| Kristina Nartowicz | $50.00 | December 04, 2019 |
| Samantha Ciaccia | $50.00 | December 04, 2019 |
| Matt Gaylord | $100.00 | December 04, 2019 |
| Sarah Fish | $100.00 | December 04, 2019 |
| Sarah Valenti | $100.00 | December 04, 2019 |
| Anna Bernath | $500.00 | December 04, 2019 |
| Deborah Harkness-Curry | $500.00 | December 04, 2019 |
| Jacqueline Nigro | $25.00 | December 04, 2019 |
| Danielle DeLapp | $100.00 | December 04, 2019 |
| Nancy Staurovsky | $500.00 | December 04, 2019 |
| Peter Goodfellow | $100.00 | December 04, 2019 |
| Cindy & Jay Washburn | $1,000.00 | December 04, 2019 |
| Antoinette Dionis | $500.00 | December 04, 2019 |
| Cindy & Ken Greenhill | $100.00 | December 04, 2019 |
| Barbara & Stewart Washburn | $1,000.00 | December 04, 2019 |
| Mark Goodfellow | $1,000.00 | December 04, 2019 |
| Anonymous | $10.00 | December 04, 2019 |
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