A Cure for Holly

A campaign by: Ghislain & Kika Collin
8 Donors
$950.00 Raised
$5,000.00 Goal
Raised Percent :
19.00%

23 Days to go
19.00% Funded
Montreal, Canada
Share this campaign:
Aujourd’hui ayant une petite fille nommé Holly, âgé d’a peine 15mois diagnostiqué du SYNDROME DE RETT, nouvelle reçu le 14 mars dernier, Ce que j’ai appris, du neurologue rencontré, à partir de 18mois ce que je constatait déjà difficile, pour elle n’est qu’un commencement a une descente aux enfers remplis de souffrance…une régression qui signifiera, perte de l’usage de la parole, motricité, respiration difficile, ingurgitation difficile (Dans certain cas impossible),début de fréquente crise d’épilepsie, automutilation etc…espérance de vie inconnue…si on peux appelé cela une vie. En tant que père directement touché par la souffrance d’Holly et sans oublier les autre enfants ayant reçu le même diagnostic je me dois de faire un appel à l’aide afin de faire avancé la recherche qui avance sans toutefois encore avoir trouvé le remède par manque d’argent flagrant. Cette maladie est présentement non réversible. Je continue de gardé espoir, ensemble on peux changé les choses.
English
Today we have a little girl named Holly, aged just 15 months, who was diagnosed with RETT SYNDROME on 14 March. What we have learned about this devastating disorder from a neurologist is that Holly is only at the beginning of a descent filled with challenges and suffering…a regression that will likely mean loss of speech, mobility, difficulty breathing, difficulty swallowing (in some cases impossible), the onset of seizures, and unknown life expectancy…If we can call it a life. As a father directly affected by the suffering of Holly and not forgetting the other children having received the same diagnosis, I call for your help and support to advance the research, which urgently needs funding. This disease is currently non-reversible. I hope that together we can change things.
Donation Amount Minimum amount is $ Maximum amount is $5000
Donation levels

$1000

Holly's Hero

0 Donors

$500

Holly's Star

0 Donors

$250

Holly's Champion

0 Donors

$100

Holly's Supporter

0 Donors

$50

Holly's Advocate

7 Donors

Name Donate Amount Date
Sani Marc $500.00 November 22, 2019
Arbour Sylvain $75.00 November 22, 2019
Jean-Francois Racine $50.00 November 22, 2019
Lina Benfeito $100.00 November 22, 2019
Francois Mitchell Soluspa $50.00 November 22, 2019
Eric Pelletier $50.00 November 22, 2019
Anne Mercier $25.00 November 22, 2019
Ruby Collin $100.00 November 22, 2019