A Cure for Holden & Elliott

A campaign by: Stephen Baird
59 Donors
$44,193.00 Raised
$50,000.00 Goal
Raised Percent :
88.39%

88.39% Funded
, United States (US)
Share this campaign:

Starting a family was not easy for us. IVF gave us the child we were hoping for, but that joy quickly turned to fear when Holden was born prematurely and had to spend time in intensive care. We noticed developmental delays upon coming home, but believed it was related to his premature birth. It wasn’t until our second son Elliott began missing milestones that we learned both of our boys have an incredibly rare genetic disorder: MECP2 Duplication Syndrome (MDS).

Not only can MDS severely impact intellectual ability, it is often fatal. Although our boys are currently doing well, it is unlikely they will ever talk, dress themselves or live independently. Even worse, MDS is a progressive disease so our boys might lose the skills we’ve worked so hard to gain. The fear is overwhelming. Will our boys continue to be happy? Will they develop seizures? Will they lose the ability to walk? What happens to them when we’re gone?

But there is hope! Dr. Huda Zoghbi, a research scientist at Baylor College of Medicine, has shown that symptoms can be improved and the disease can be reversed in mice. Funding is needed for proof-of-concept studies before clinical trials can begin with the ultimate goal of finding a treatment and cure.

Join our community. Help us develop a cure for our boys and others who are struggling with this disorder. 100% of your contribution will go to this effort.

With Love and Thanks,

Stephen, Andrea, Holden & Elliott

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$5000

Holden & Eliiott's Hero

3 Donors

$1000

Holden & Eliiott's Star

5 Donors

$500

Holden & Eliiott's Champion

10 Donors

$250

Holden & Eliiott's Supporter

13 Donors

$100

Holden & Eliiott's Advocate

23 Donors

Name Donate Amount Date
William Miller IV $4,123.00 May 11, 2020
Thomas Royce $250.00 May 06, 2020
Anonymous $550.00 April 29, 2020
Michelle Melinger $500.00 April 14, 2020
Jeremy Wright $100.00 April 05, 2020
William Miller III $10,000.00 March 12, 2020
Scott Helbing $250.00 March 08, 2020
Anonymous $100.00 March 08, 2020
Anita Rosen $100.00 February 26, 2020
Elisabeth Lozinsky $100.00 February 24, 2020
Joseph H Taglioli $30.00 February 18, 2020
Eric Taglioli $250.00 February 14, 2020
Bernard Campbell $100.00 February 14, 2020
Blake Haas $250.00 February 12, 2020
Paul Rademacher $50.00 February 11, 2020
Myron Morrow $500.00 February 11, 2020
Chris Favella $100.00 February 11, 2020
Josh Clark $200.00 February 11, 2020
Laurie Persh $500.00 February 10, 2020
Samantha McLemore $10,000.00 February 08, 2020
Anonymous $500.00 February 04, 2020
Anonymous $500.00 January 30, 2020
Melinda McGlothlin $250.00 January 30, 2020
Michael Fortino $250.00 January 30, 2020
Anonymous $1,000.00 January 17, 2020
Tyler Goodell $250.00 January 15, 2020
Glen Offord $100.00 January 14, 2020
Stephanie Offord $100.00 January 14, 2020
Sarah Rogers $100.00 January 12, 2020
Judson Crawford $500.00 January 09, 2020
Hayden Griffin Haby III $250.00 January 08, 2020
Oliver Jackson $100.00 January 07, 2020
John Brandenberger $100.00 January 07, 2020
John Sammons $100.00 January 07, 2020
Ryan Burkhardt $500.00 January 06, 2020
Tanner Flood $250.00 January 06, 2020
Karen Warmkessel $100.00 December 06, 2019
Anonymous $100.00 December 02, 2019
Seymour Lozinsky $500.00 November 27, 2019
Annette Polonsky $100.00 November 27, 2019
Barbara Hackett $250.00 November 27, 2019
Benjamin Marcelliano $1,000.00 November 27, 2019
Jon Hackett $100.00 November 27, 2019
Teresa Boyles $100.00 November 27, 2019
Christina Shea-wright $75.00 November 27, 2019
Maya Valdes $150.00 November 27, 2019
Heather Pierson $100.00 November 27, 2019
Ryan Vogl $250.00 November 27, 2019
Lindsay Wilson $100.00 November 27, 2019
Michael Mattiello $1,000.00 November 27, 2019
Laurie Persh $200.00 November 27, 2019
David Cox $25.00 November 27, 2019
Anonymous $40.00 November 27, 2019
Anonymous $5,000.00 November 27, 2019
Ryan Cummings $100.00 November 27, 2019
Stacia Ikpe $250.00 November 27, 2019
Anonymous $250.00 November 27, 2019
Alex Katz $500.00 November 27, 2019
Anonymous $1,000.00 November 27, 2019