A Cure for Holden & Elliott

A campaign by: Stephen Baird
23 Donors
$11,290.00 Raised
$25,000.00 Goal
Raised Percent :
45.16%

22 Days to go
45.16% Funded
, United States (US)
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Starting a family was not easy for us. IVF gave us the child we were hoping for, but that joy quickly turned to fear when Holden was born prematurely and had to spend time in intensive care. We noticed developmental delays upon coming home, but believed it was related to his premature birth. It wasn’t until our second son Elliott began missing milestones that we learned both of our boys have an incredibly rare genetic disorder: MECP2 Duplication Syndrome (MDS).

Not only can MDS severely impact intellectual ability, it is often fatal. Although our boys are currently doing well, it is unlikely they will ever talk, dress themselves or live independently. Even worse, MDS is a progressive disease so our boys might lose the skills we’ve worked so hard to gain. The fear is overwhelming. Will our boys continue to be happy? Will they develop seizures? Will they lose the ability to walk? What happens to them when we’re gone?

But there is hope! Dr. Huda Zoghbi, a research scientist at Baylor College of Medicine, has shown that symptoms can be improved and the disease can be reversed in mice. Funding is needed for proof-of-concept studies before clinical trials can begin with the ultimate goal of finding a treatment and cure.

The MECP2 community needs $1.3M to fund the first two projects. (More about those projects can be found here).

Join our community. Help us develop a cure for our boys and others who are struggling with this disorder. 100% of your contribution will go to this effort.

With Love and Thanks,

Stephen, Andrea, Holden & Elliott

Donation Amount Minimum amount is $ Maximum amount is $25000
Donation levels

$5000

Holden & Eliiott's Hero

0 Donors

$1000

Holden & Eliiott's Star

0 Donors

$500

Holden & Eliiott's Champion

0 Donors

$250

Holden & Eliiott's Supporter

0 Donors

$100

Holden & Eliiott's Advocate

20 Donors

Name Donate Amount Date
Karen Warmkessel $100.00 December 06, 2019
Anonymous $100.00 December 02, 2019
Seymour Lozinsky $500.00 November 27, 2019
Annette Polonsky $100.00 November 27, 2019
Barbara Hackett $250.00 November 27, 2019
Benjamin Marcelliano $1,000.00 November 27, 2019
Jon Hackett $100.00 November 27, 2019
Teresa Boyles $100.00 November 27, 2019
Christina Shea-wright $75.00 November 27, 2019
Maya Valdes $150.00 November 27, 2019
Heather Pierson $100.00 November 27, 2019
Ryan Vogl $250.00 November 27, 2019
Lindsay Wilson $100.00 November 27, 2019
Michael Mattiello $1,000.00 November 27, 2019
Laurie Persh $200.00 November 27, 2019
David Cox $25.00 November 27, 2019
Anonymous $40.00 November 27, 2019
Anonymous $5,000.00 November 27, 2019
Ryan Cummings $100.00 November 27, 2019
Stacia Ikpe $250.00 November 27, 2019
Anonymous $250.00 November 27, 2019
Alex Katz $500.00 November 27, 2019
Anonymous $1,000.00 November 27, 2019