A Cure for Haden

A campaign by: Jenni & Byron Harper
23 Donors
$4,950.00 Raised
$20,000.00 Goal
Raised Percent :
24.75%

77 Days to go
24.75% Funded
Share this campaign:

Our precious son, Haden, is the most loving, sweet soul. He loves trucks (just like his daddy) and is amazed by his big sister, Alli. Haden goes to Pre-school for half of a day and rotates between his special class and a regular education class. He memorizes things very easily and knows all of his letters, numbers, and colors. Haden is amazing.

With all of Haden’s accomplishments, he still struggles with many physical, intellectual, and developmental challenges. Haden was diagnosed with MeCP2 Duplication Syndrome, which is a rare genetic disorder that causes an array of severe symptoms. Although Haden is doing well now (comparatively) it is unlikely that he will ever talk, dress himself, be without diapers, or live independently without treatment. MeCP2 is also a progressive disorder which means that all the skills he has worked so hard to achieve (like walking at age four) will most likely be lost within a few years.

MeCP2 is also often fatal. Most children never live to adulthood because of complications from the disorder. This syndrome has drastically changed our hopes and dreams for our child. Rather than praying for good friends to love him and for him to grow up and be married with children and a great job, we pray for Haden to live and hopefully have some sort of quality of life.

We still have very high hopes! Dr. Huda Zoghbi and her team at Baylor College of Medicine in Texas, have learned that symptoms of MeCP2 can be improved and even reversed in mice. There are other studies that need to be conducted before clinical trials can begin. Funding is needed to complete these studies. All we need is $700,000. That sounds huge until you realize it could potentially save Haden’s life along with many others.

The ultimate goal of curing MeCP2 is not just a dream. It is feasible and probable. We just hope it happens before it is too late for Haden and other children living with it now.

Please help keep Haden with us as long as possible! Join our efforts to help find the cure. 100% of your donation goes straight to this research.

Thank you so much for any amount you can give!
Byron and Jenni Harper

The Rett Syndrome Research Trust (RSRT) is a 501(c)(3) Nonprofit EIN: 26-0687439

Donation Amount Minimum amount is $ Maximum amount is $20000
Donation levels

$5000

Haden's Angel

0 Donors

$2500

Haden's Hero

0 Donors

$1000

Haden's Star

0 Donors

$500

Haden's Champion

0 Donors

$250

Haden's Supporter

0 Donors

$100

Haden's Advocate

15 Donors

Name Donate Amount Date
Roy Perren $100.00 January 15, 2020
Anonymous $50.00 January 13, 2020
ROBERT MURPHY $2,500.00 December 30, 2019
Frances Sparks $250.00 December 29, 2019
Amanda Harper Wagoner $100.00 December 29, 2019
Shanley Young $100.00 December 28, 2019
Shelly Haney $50.00 December 28, 2019
Deborah Fain $100.00 December 20, 2019
Patsy MAYES $100.00 December 18, 2019
Teresa Burch $100.00 December 16, 2019
Eliel Escamilla $10.00 December 16, 2019
Judy Rogers $250.00 December 16, 2019
Timothy Hunnicutt $100.00 December 15, 2019
Emma & Steve Burch $100.00 December 15, 2019
Vic Stephens-Berrong $100.00 December 14, 2019
Melissa snd Randy McConnell $100.00 December 14, 2019
Anonymous $40.00 December 14, 2019
Steve Hunter $200.00 December 13, 2019
Emily Wilson $25.00 December 13, 2019
Anonymous $50.00 December 13, 2019
Pam Dailey $25.00 December 13, 2019
Pam Dailey $0.00 December 13, 2019
Candice Thompson $500.00 December 13, 2019