A Campaign for MECP2 Research in Honor of Aiden

A campaign by: Sam & Dan Powell
85 Donors
$13,820.00 Raised
$15,000.00 Goal
Raised Percent :
92.13%

92.13% Funded
Share this campaign:

On June 10th, we lost our sweet Aiden after 16 months. Aiden’s journey was beautifully complex – full of love, laughter, struggles, and a lot of hard work. Aiden was diagnosed in February 2020 with MECP2-related disorder, which is a family of rare lifelong genetic neurological disorders that are caused by random mutations in a gene called MECP2. Our journey with Aiden was cut short, but the path for which we were prepared would have been full of challenges, unique to Aiden and his specific genetic change of the MECP2 gene.

The hopes and dreams we had for Aiden changed with the diagnosis. Rather than hoping Aiden would run, play, and grow up with his brother, we hoped for delayed onset of symptoms and the best quality of life we could give him. We feared the progressive nature of MECP2 and that the skills that Aiden worked so hard to achieve would be taken from him. We were learning to accept that Aiden would be taken from us too soon as many children never live to adulthood because of complications from the disorder. We never would have imagined that we would lose him just as our journey was getting started.

With this campaign we hope to raise money for research for Dr. Huda Zoghbi and her team at Baylor College of Medicine in Texas who have learned that symptoms of MECP2 can be improved and even reversed in mice. There are other studies that need to be conducted before clinical trials can begin and funding is needed to complete these studies. The ultimate goal of curing MECP2 is not just a dream. It is feasible and probable and we hope that our gift in Aiden’s honor can help make MECP2-related disorders a thing of the past.

Sam & Dan Powell

Donation Amount Minimum amount is $ Maximum amount is $100000
Donation levels

$1000

Aiden's Hero

4 Donors

$500

Aiden's Star

4 Donors

$250

Aiden's Champion

8 Donors

$100

Aiden's Supporter

34 Donors

$50

Aiden's Advocate

28 Donors

Name Donate Amount Date
Lawrence Tjeltveit $20.00 August 08, 2020
Leslie Walsh $150.00 August 07, 2020
Maureen Becker $50.00 August 05, 2020
Fawad Asghar $105.00 August 01, 2020
Lindsay Alward $500.00 August 01, 2020
Billy Lester $100.00 July 29, 2020
Anne Rogel $50.00 July 27, 2020
Kathleen Hoonhout $100.00 July 24, 2020
Emily Walsh $10.00 July 22, 2020
Jacquelyn Artim $100.00 July 16, 2020
Christopher Riley $100.00 July 13, 2020
Sherian Farrar $50.00 July 13, 2020
Kim Jones $250.00 July 13, 2020
Barbara and John Hartung $100.00 July 12, 2020
Anonymous $250.00 July 10, 2020
John Fiscus $100.00 July 10, 2020
Brent Wilson $50.00 July 10, 2020
Amy Moore $50.00 July 09, 2020
Elizabeth Majetic $100.00 July 09, 2020
Kelly Aharrah $100.00 July 09, 2020
Michael Wallace $50.00 July 06, 2020
Holly Frankenbery $50.00 July 06, 2020
Debbie Addison $100.00 July 06, 2020
Kristy Breisinger $500.00 July 05, 2020
Jill Barbieri $50.00 July 04, 2020
William Powell $100.00 July 03, 2020
Anneliese Perry $30.00 July 02, 2020
Deborahj Jones $100.00 July 01, 2020
Bill Hasely $50.00 July 01, 2020
Lynne Windley $50.00 June 30, 2020
Theodore Lorigan $50.00 June 30, 2020
John Wagner $250.00 June 30, 2020
James & Cheryl Schneider $20.00 June 29, 2020
Barbara & Joe Rushing $50.00 June 29, 2020
Anonymous $1,500.00 June 29, 2020
Samantha Powell $350.00 June 29, 2020
Brad & Maureen Slezak $50.00 June 28, 2020
Traci Powell $100.00 June 28, 2020
Jennifer Rossman $50.00 June 28, 2020
Anonymous $100.00 June 28, 2020
Anonymous $50.00 June 28, 2020
Kathleen Edmiston $1,000.00 June 27, 2020
Allison Gaspari $20.00 June 27, 2020
Bethany Moffatt $150.00 June 27, 2020
Stephanie Miller $50.00 June 27, 2020
Jaime and David Groat $100.00 June 27, 2020
Denise Sheedy $150.00 June 27, 2020
Debbie and Jeff Miller $100.00 June 26, 2020
Diane DalBon $100.00 June 26, 2020
Nicole Evanek $500.00 June 26, 2020
Daniel Powell $565.00 June 26, 2020
Katie Sloan $250.00 June 26, 2020
Sandra Leipheimer $1,000.00 June 26, 2020
Tara McHenry $25.00 June 26, 2020
GEO V HAMILTON INC $250.00 June 26, 2020
Chris Harper $50.00 June 26, 2020
Anonymous $100.00 June 26, 2020
Dana Ramous $50.00 June 26, 2020
Heather Leister $100.00 June 26, 2020
Andy Wolff $100.00 June 25, 2020
Katie Dombeck $100.00 June 25, 2020
Brandon Zabinski $50.00 June 25, 2020
Glenda Vargas $100.00 June 25, 2020
Lindsey Williams $100.00 June 25, 2020
Kenny and Jan Stevens $50.00 June 25, 2020
Liam Sullivan $150.00 June 25, 2020
Kathy Hahn $100.00 June 25, 2020
Shaylin Staniszewski $100.00 June 25, 2020
Valerie Fisher $100.00 June 25, 2020
Shaylin Staniszewski $50.00 June 25, 2020
Emily Campbell $25.00 June 25, 2020
Anonymous $50.00 June 25, 2020
James Babineaux $50.00 June 25, 2020
David Isadore $50.00 June 25, 2020
Bethany Thomas $100.00 June 25, 2020
Michelle Dalfonso $50.00 June 25, 2020
Shayne Stiger $50.00 June 25, 2020
Jena Simpson $50.00 June 25, 2020
Lauren Furyk $50.00 June 25, 2020
Maira Boscolo $100.00 June 25, 2020
Edward Kipley $250.00 June 25, 2020
Anne and Alec Sutton $100.00 June 25, 2020
Daniel Powell $1,000.00 June 25, 2020
Anonymous $250.00 June 25, 2020
Daniel Powell $100.00 June 25, 2020