On June 10th, we lost our sweet Aiden after 16 months. Aiden’s journey was beautifully complex – full of love, laughter, struggles, and a lot of hard work. Aiden was diagnosed in February 2020 with MECP2-related disorder, which is a family of rare lifelong genetic neurological disorders that are caused by random mutations in a gene called MECP2. Our journey with Aiden was cut short, but the path for which we were prepared would have been full of challenges, unique to Aiden and his specific genetic change of the MECP2 gene.
The hopes and dreams we had for Aiden changed with the diagnosis. Rather than hoping Aiden would run, play, and grow up with his brother, we hoped for delayed onset of symptoms and the best quality of life we could give him. We feared the progressive nature of MECP2 and that the skills that Aiden worked so hard to achieve would be taken from him. We were learning to accept that Aiden would be taken from us too soon as many children never live to adulthood because of complications from the disorder. We never would have imagined that we would lose him just as our journey was getting started.
With this campaign we hope to raise money for research for Dr. Huda Zoghbi and her team at Baylor College of Medicine in Texas who have learned that symptoms of MECP2 can be improved and even reversed in mice. There are other studies that need to be conducted before clinical trials can begin and funding is needed to complete these studies. The ultimate goal of curing MECP2 is not just a dream. It is feasible and probable and we hope that our gift in Aiden’s honor can help make MECP2-related disorders a thing of the past.
Sam & Dan Powell
Donation Amount
Minimum amount is $
Maximum amount is $100000
Donation levels
$1000
Aiden's Hero
4 Donors
$500
Aiden's Star
3 Donors
$250
Aiden's Champion
7 Donors
$100
Aiden's Supporter
28 Donors
$50
Aiden's Advocate
25 Donors
| Name | Donate Amount | Date |
|---|---|---|
| Barbara and John Hartung | $100.00 | July 12, 2020 |
| Anonymous | $250.00 | July 10, 2020 |
| John Fiscus | $100.00 | July 10, 2020 |
| Brent Wilson | $50.00 | July 10, 2020 |
| Amy Moore | $50.00 | July 09, 2020 |
| Elizabeth Majetic | $100.00 | July 09, 2020 |
| Kelly Aharrah | $100.00 | July 09, 2020 |
| Michael Wallace | $50.00 | July 06, 2020 |
| Holly Frankenbery | $50.00 | July 06, 2020 |
| Debbie Addison | $100.00 | July 06, 2020 |
| Kristy Breisinger | $500.00 | July 05, 2020 |
| Jill Barbieri | $50.00 | July 04, 2020 |
| William Powell | $100.00 | July 03, 2020 |
| Anneliese Perry | $30.00 | July 02, 2020 |
| Deborahj Jones | $100.00 | July 01, 2020 |
| Bill Hasely | $50.00 | July 01, 2020 |
| Lynne Windley | $50.00 | June 30, 2020 |
| Theodore Lorigan | $50.00 | June 30, 2020 |
| John Wagner | $250.00 | June 30, 2020 |
| James & Cheryl Schneider | $20.00 | June 29, 2020 |
| Barbara & Joe Rushing | $50.00 | June 29, 2020 |
| Anonymous | $1,500.00 | June 29, 2020 |
| Samantha Powell | $350.00 | June 29, 2020 |
| Brad & Maureen Slezak | $50.00 | June 28, 2020 |
| Traci Powell | $100.00 | June 28, 2020 |
| Jennifer Rossman | $50.00 | June 28, 2020 |
| Anonymous | $100.00 | June 28, 2020 |
| Anonymous | $50.00 | June 28, 2020 |
| Kathleen Edmiston | $1,000.00 | June 27, 2020 |
| Allison Gaspari | $20.00 | June 27, 2020 |
| Bethany Moffatt | $150.00 | June 27, 2020 |
| Stephanie Miller | $50.00 | June 27, 2020 |
| Jaime and David Groat | $100.00 | June 27, 2020 |
| Denise Sheedy | $150.00 | June 27, 2020 |
| Debbie and Jeff Miller | $100.00 | June 26, 2020 |
| Diane DalBon | $100.00 | June 26, 2020 |
| Nicole Evanek | $500.00 | June 26, 2020 |
| Daniel Powell | $565.00 | June 26, 2020 |
| Katie Sloan | $250.00 | June 26, 2020 |
| Sandra Leipheimer | $1,000.00 | June 26, 2020 |
| Tara McHenry | $25.00 | June 26, 2020 |
| GEO V HAMILTON INC | $250.00 | June 26, 2020 |
| Chris Harper | $50.00 | June 26, 2020 |
| Anonymous | $100.00 | June 26, 2020 |
| Dana Ramous | $50.00 | June 26, 2020 |
| Heather Leister | $100.00 | June 26, 2020 |
| Andy Wolff | $100.00 | June 25, 2020 |
| Katie Dombeck | $100.00 | June 25, 2020 |
| Brandon Zabinski | $50.00 | June 25, 2020 |
| Glenda Vargas | $100.00 | June 25, 2020 |
| Lindsey Williams | $100.00 | June 25, 2020 |
| Kenny and Jan Stevens | $50.00 | June 25, 2020 |
| Liam Sullivan | $150.00 | June 25, 2020 |
| Kathy Hahn | $100.00 | June 25, 2020 |
| Shaylin Staniszewski | $100.00 | June 25, 2020 |
| Valerie Fisher | $100.00 | June 25, 2020 |
| Shaylin Staniszewski | $50.00 | June 25, 2020 |
| Emily Campbell | $25.00 | June 25, 2020 |
| Anonymous | $50.00 | June 25, 2020 |
| James Babineaux | $50.00 | June 25, 2020 |
| David Isadore | $50.00 | June 25, 2020 |
| Bethany Thomas | $100.00 | June 25, 2020 |
| Michelle Dalfonso | $50.00 | June 25, 2020 |
| Shayne Stiger | $50.00 | June 25, 2020 |
| Jena Simpson | $50.00 | June 25, 2020 |
| Lauren Furyk | $50.00 | June 25, 2020 |
| Maira Boscolo | $100.00 | June 25, 2020 |
| Edward Kipley | $250.00 | June 25, 2020 |
| Anne and Alec Sutton | $100.00 | June 25, 2020 |
| Daniel Powell | $1,000.00 | June 25, 2020 |
| Anonymous | $250.00 | June 25, 2020 |
| Daniel Powell | $100.00 | June 25, 2020 |
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