2019 Run to Reverse Rett for Isla

A campaign by: Sean Doyle
63 Donors
$6,105.00 Raised
$15,000.00 Goal
Raised Percent :
40.70%

22 Days to go
40.70% Funded
, United States (US)
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On August 18th I’ll Run to Reverse Rett at the Peasantman 72.3 mile steel-distance triathlon in Lake Keuka in the Finger Lakes.

Please support the search for a cure, support Isla, and support me. Together we’ve raised over $50,000 for Rett Research over the last two years! Last year we made the news: Reverse Rett – Steamtown Marathon – News Clips

Isla has Rett Syndrome, a rare genetic neurological disorder that leaves her incapable of controlling her body with intention. She is unable to speak, crawl or walk, or use her hands purposefully. But Isla is so much more capable than we can see, and there is exciting research and clinical trials underway that promise to unlock her capabilities by building the brain-body connection that is missing due to Rett.

Unfortunately, since Rett is so rare, research is significantly underfunded, and WE need to fill the gap.

Isla is incredibly sweet, happy, resilient, beautiful, and she loves to laugh! She CAN understand us and she wants desperately for us to understand her too.

Isla is making progress as she learns to use her eye-gaze controlled computer to develop her ability to communicate, and she’s getting physically stronger too, standing (with support) for longer periods of time and sometimes able to sit by herself without falling over.

Please contribute to the fight to Reverse Rett!

THANK YOU!

Sean, Stephanie, Isla, Owen

Donation Amount Minimum amount is $ Maximum amount is $15000
Donation levels

$500

Overall Podium

0 Donors

$250

Age Group Winner

0 Donors

$100

Personal Record

0 Donors

$50

Top 10% Finisher

54 Donors

Name Donate Amount Date
Oliver Bloch $25.00 November 28, 2019
Philip Kloehn $100.00 November 28, 2019
Richard & Ruth Shearer $100.00 November 28, 2019
Lindrea Spence $25.00 November 27, 2019
Andre Brandt $50.00 November 27, 2019
Stefania Fortier $100.00 November 27, 2019
David DiAngelo $50.00 November 27, 2019
Andrew Moschetti $100.00 November 27, 2019
Tom Ahrensfeld $500.00 November 27, 2019
Erich Morisse $50.00 November 27, 2019
Ethan White $50.00 November 27, 2019
Jose Fabbroni $50.00 November 27, 2019
Laurie Savage $25.00 November 27, 2019
Mark Ipri $100.00 November 27, 2019
Susan Hynson $50.00 November 27, 2019
David DeLuke $50.00 November 27, 2019
Mary Maldonado $100.00 November 27, 2019
Assata Smith Malcolm $100.00 November 27, 2019
David Attanasio $100.00 November 27, 2019
Anonymous $100.00 November 27, 2019
Todd Daniells $100.00 November 27, 2019
Samantha Lee $25.00 November 27, 2019
Sandy Martinez $25.00 November 27, 2019
Ty Davis $25.00 November 27, 2019
Fred Pappalardo $100.00 November 27, 2019
Gregory Maynor Jr $100.00 November 27, 2019
Dino Yang $50.00 November 27, 2019
Elizabeth Hogan $20.00 November 27, 2019
Mary Jo Moehle $150.00 November 27, 2019
Megan Kennedy $150.00 November 27, 2019
Jenn Menendez $50.00 November 27, 2019
Linda Murrain $100.00 November 27, 2019
Rob Gillern $25.00 November 27, 2019
Anonymous $50.00 November 27, 2019
Rahman Khan $50.00 November 27, 2019
Danyel Schoenemann $100.00 November 27, 2019
Anonymous $50.00 November 27, 2019
Justine Cuff $50.00 November 27, 2019
Shawn Valine $50.00 November 27, 2019
Paul Marchand $250.00 November 27, 2019
Paul Woelk $100.00 November 27, 2019
Seth Felt $250.00 November 27, 2019
Meredith McGough $100.00 November 27, 2019
Jennifer Garrett $50.00 November 27, 2019
Nancy Bloch $250.00 November 27, 2019
Amanda Dundas $100.00 November 27, 2019
Kerry Winn $150.00 November 27, 2019
Elaine Sackmann $50.00 November 27, 2019
Robert Bloch $250.00 November 27, 2019
Christian Ruiz $100.00 November 27, 2019
Robert Coleburn $50.00 November 27, 2019
Robin Coleburn $100.00 November 27, 2019
Andrew Chadeayne $500.00 November 27, 2019
Melissa Magliulo $50.00 November 27, 2019
Cameron Hamilton $100.00 November 27, 2019
Camilla Calhoun $50.00 November 27, 2019
Amy Miller $100.00 November 27, 2019
Robin Gutzler $100.00 November 27, 2019
Frank Modica $50.00 November 27, 2019
Christian Homlish $50.00 November 27, 2019
Brigid Doyle $100.00 November 27, 2019
Judy Wong $100.00 November 27, 2019
Anonymous $10.00 November 25, 2019