On August 18th I’ll Run to Reverse Rett at the Peasantman 72.3 mile steel-distance triathlon in Lake Keuka in the Finger Lakes.
Please support the search for a cure, support Isla, and support me. Together we’ve raised over $50,000 for Rett Research over the last two years! Last year we made the news: Reverse Rett – Steamtown Marathon – News Clips
Isla has Rett Syndrome, a rare genetic neurological disorder that leaves her incapable of controlling her body with intention. She is unable to speak, crawl or walk, or use her hands purposefully. But Isla is so much more capable than we can see, and there is exciting research and clinical trials underway that promise to unlock her capabilities by building the brain-body connection that is missing due to Rett.
Unfortunately, since Rett is so rare, research is significantly underfunded, and WE need to fill the gap.
Isla is incredibly sweet, happy, resilient, beautiful, and she loves to laugh! She CAN understand us and she wants desperately for us to understand her too.
Isla is making progress as she learns to use her eye-gaze controlled computer to develop her ability to communicate, and she’s getting physically stronger too, standing (with support) for longer periods of time and sometimes able to sit by herself without falling over.
Please contribute to the fight to Reverse Rett!
THANK YOU!
Sean, Stephanie, Isla, Owen
Donation Amount
Minimum amount is $
Maximum amount is $100000
Donation levels
$500
Overall Podium
3 Donors
$250
Age Group Winner
4 Donors
$100
Personal Record
28 Donors
$50
Top 10% Finisher
21 Donors
| Name | Donate Amount | Date |
|---|---|---|
| Ann Butler | $1,000.00 | January 27, 2020 |
| Charlene & Peter Paden | $100.00 | December 31, 2019 |
| Oliver Bloch | $25.00 | November 28, 2019 |
| Philip Kloehn | $100.00 | November 28, 2019 |
| Richard & Ruth Shearer | $100.00 | November 28, 2019 |
| Lindrea Spence | $25.00 | November 27, 2019 |
| Andre Brandt | $50.00 | November 27, 2019 |
| Stefania Fortier | $100.00 | November 27, 2019 |
| David DiAngelo | $50.00 | November 27, 2019 |
| Andrew Moschetti | $100.00 | November 27, 2019 |
| Tom Ahrensfeld | $500.00 | November 27, 2019 |
| Erich Morisse | $50.00 | November 27, 2019 |
| Ethan White | $50.00 | November 27, 2019 |
| Jose Fabbroni | $50.00 | November 27, 2019 |
| Laurie Savage | $25.00 | November 27, 2019 |
| Mark Ipri | $100.00 | November 27, 2019 |
| Susan Hynson | $50.00 | November 27, 2019 |
| David DeLuke | $50.00 | November 27, 2019 |
| Mary Maldonado | $100.00 | November 27, 2019 |
| Assata Smith Malcolm | $100.00 | November 27, 2019 |
| David Attanasio | $100.00 | November 27, 2019 |
| Anonymous | $100.00 | November 27, 2019 |
| Todd Daniells | $100.00 | November 27, 2019 |
| Samantha Lee | $25.00 | November 27, 2019 |
| Sandy Martinez | $25.00 | November 27, 2019 |
| Ty Davis | $25.00 | November 27, 2019 |
| Fred Pappalardo | $100.00 | November 27, 2019 |
| Gregory Maynor Jr | $100.00 | November 27, 2019 |
| Dino Yang | $50.00 | November 27, 2019 |
| Elizabeth Hogan | $20.00 | November 27, 2019 |
| Mary Jo Moehle | $150.00 | November 27, 2019 |
| Megan Kennedy | $150.00 | November 27, 2019 |
| Jenn Menendez | $50.00 | November 27, 2019 |
| Linda Murrain | $100.00 | November 27, 2019 |
| Rob Gillern | $25.00 | November 27, 2019 |
| Anonymous | $50.00 | November 27, 2019 |
| Rahman Khan | $50.00 | November 27, 2019 |
| Danyel Schoenemann | $100.00 | November 27, 2019 |
| Anonymous | $50.00 | November 27, 2019 |
| Justine Cuff | $50.00 | November 27, 2019 |
| Shawn Valine | $50.00 | November 27, 2019 |
| Paul Marchand | $250.00 | November 27, 2019 |
| Paul Woelk | $100.00 | November 27, 2019 |
| Seth Felt | $250.00 | November 27, 2019 |
| Meredith McGough | $100.00 | November 27, 2019 |
| Jennifer Garrett | $50.00 | November 27, 2019 |
| Nancy Bloch | $250.00 | November 27, 2019 |
| Amanda Dundas | $100.00 | November 27, 2019 |
| Kerry Winn | $150.00 | November 27, 2019 |
| Elaine Sackmann | $50.00 | November 27, 2019 |
| Robert Bloch | $250.00 | November 27, 2019 |
| Christian Ruiz | $100.00 | November 27, 2019 |
| Robert Coleburn | $50.00 | November 27, 2019 |
| Robin Coleburn | $100.00 | November 27, 2019 |
| Andrew Chadeayne | $500.00 | November 27, 2019 |
| Melissa Magliulo | $50.00 | November 27, 2019 |
| Cameron Hamilton | $100.00 | November 27, 2019 |
| Camilla Calhoun | $50.00 | November 27, 2019 |
| Amy Miller | $100.00 | November 27, 2019 |
| Robin Gutzler | $100.00 | November 27, 2019 |
| Frank Modica | $50.00 | November 27, 2019 |
| Christian Homlish | $50.00 | November 27, 2019 |
| Brigid Doyle | $100.00 | November 27, 2019 |
| Judy Wong | $100.00 | November 27, 2019 |
| Anonymous | $10.00 | November 25, 2019 |
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