Author Archives

Katie Wester-Neal

Change 4 Charlie 2019

Change 4 Charlie 2019

MECP2 Duplication
One of our fraternal twin boys, Charlie, has had serious developmental delays for some time. We were directed to genetic testing, which showed that Charlie has an incredibly rare genetic disorder: MECP2 Duplication Syndrome. We would be so grateful if you would contribute to change the future for Charlie and others like him.

Katie Wester-Neal

Joined 1/11/2019

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